Reliability and Validity of 39-Item Parkinson’s Disease Questionnaire and Parkinson’s Disease Quality of Life Questionnaire

Jesus‐Ribeiro, Joana; Vieira, E. R.; Ferreira, Pedro Lopes; Januário, Cristina; Freire, Antônio Fernando Menezes

doi:10.20344/amp.8202

Cited by 16 publications

(11 citation statements)

References 20 publications

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“…The Cronbach's alpha coefficients in the present study (range of 0.69 to 0.92) were similar to those found by Peto et al [18] in the original validation study and to those of the original British version [19]. They were also similar to those obtained in most translations [18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35] and validation studies [20, 26-28, 30, 31]. In this study, the Cronbach's alpha coefficient for the social support subtest was < 0.70, suggesting that this dimension may not provide accurate data.…”

Section: Discussionsupporting

confidence: 89%

“…Among the eight dimensions of the PDQ-39, Spearman's rank correlation coefficients for the total score of the SF-36 were significant [50]. Most previous validation studies of the PDQ-39 in other cultural settings used a variety of rating scales and classifications to assess construct validity [18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35]. All these studies found statistically significant correlations between disease severity and some of the PDQ-39 domains.…”

Section: Discussionmentioning

confidence: 99%

“…Sample According to previous validations of the tool [18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35], a minimum sample size of 86 participants with PD was required. The diagnosis of PD was based on the clinical diagnostic criteria of the Movement Disorder Society for PD [35]. We included patients older than 40 years, with a Mini-Mental State Examination score of ≥ 23 points [46,47] and a minimum level of 5 years of education.…”

Section: Methodsmentioning

confidence: 99%

“…The PDQ-39 is a patient-assessed instrument, which reflects the entire spectrum of health-related quality of life in PD patients, and research has shown that it is feasible, reliable, valid, comprehensive, and sensitive to change. The PDQ-39 is widely used worldwide, and it has been translated, culturally adapted, and validated into 13 different languages: English [18,19], Spanish [20], American [21,22], Greek [23], Chinese [24][25][26], Singaporean [27], Ecuadorian [28], French [29], Brazilian [30], Estonian [31], Iranian [32], Korean [33,34], and Portuguese [35]. For the development of clinical practice and research in the field of PD, a practical and appropriate measurement scale is needed that is universally accepted.…”

Section: Introductionmentioning

confidence: 99%

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Quality of life in Parkinson’s disease: Italian validation of the Parkinson’s Disease Questionnaire (PDQ-39-IT)

et al. 2018

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Translation and cross-cultural adaptation of the 39-item Parkinson's Disease Questionnaire (PDQ-39) to the Italian culture was performed by Oxford University Innovation in 2008, but this version has never been validated. Therefore, we performed the process of validation of the Italian version of the PDQ-39 (PDQ-39-IT) following the "Consensus-Based Standards for the Selection of Health Status Measurement Instruments" checklist. The translated PDQ-39-IT was tested with 104 patients diagnosed with Parkinson's disease (PD) who were recruited between June and October 2017. The mean age of the participants was 65.7 ± 10.2 years, and the mean duration of symptoms was 7.4 ± 5.3 years. The internal consistency of the PDQ-39-IT was assessed by Cronbach's alpha and ranged from 0.69 to 0.92. In an assessment of test-retest reliability in 35 of the 104 patients, the infraclass correlation coefficient (ICC) ranged from 0.85 to 0.96 for the various subitems of the PDQ-39-IT (all p < 0.01). Spearman's rank correlation coefficient for the validity of the PDQ-39-IT and the Italian version of the 36-Item Short Form (SF-36) was - 0.50 (p < 0.01). The results show that the PDQ-39-IT is a reliable and valid tool to assess the impact of PD on functioning and well-being. Thus, the PDQ-39-IT can be used in clinical and research practice to assess this construct and to evaluate the overall effect of different treatments in Italian PD patients.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Quality of life in Parkinson’s disease: Italian validation of the Parkinson’s Disease Questionnaire (PDQ-39-IT)

et al. 2018

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“…Each item ranges from 0 (never) to 4 (always). A summary index of eight domain scores ranges from 0 to 100, with higher scores representing worse health-related quality of life 37 38. The data collected are depicted in table 2.…”

Section: Methodsmentioning

confidence: 99%

Study protocol for a single-blind randomised controlled trial to evaluate the clinical effects of an Integrated Qigong exercise intervention on freezing of gait in Parkinson’s disease

Zhuang

Jiang

et al. 2019

BMJ Open

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IntroductionQigong exercise offers a potentially safe, low-cost and effective mind–body rehabilitative intervention for mitigating the problem of gait interruption among patients with Parkinson’s disease (PD) who have frequent freezing of gait (FOG) episodes. However, its clinical effects have not been established. This paper describes the trial protocol of evaluating the clinical efficacy of a newly developed Integrated Qigong in improving gait among patients with PD who have FOG.Methods and analysisA single-blind randomised controlled trial is designed to compare Integrated Qigong and balance training with an attention control. Participants will be patients with mild to moderate PD who experience FOG and are recruited from local communities in Shanghai, China. Participants will be randomly allocated to one of the three groups: Integrated Qigong group, a balance exercise intervention group, or control group. The total number of participants will be 126, and masked assessments will be made at baseline, 12 weeks (end of intervention) and 12-week follow-up. Both Integrated Qigong group and balance training group will receive a group-based exercise intervention that meets three times per week, 60 min in duration, for 12 weeks. The control group will receive a 60 min weekly group session and monthly health education. The primary outcomes are gait parameters (stride length, gait velocity, stride time variability) and occurrence of FOG. The secondary outcomes are postural instability, walking disability, falling, fear of falling and quality of life.Ethics and disseminationThis study has been approved by the Ethics Committee of Shanghai University of Sport and registered at China Clinical Trial Registry. Participants will sign informed consent prior to the participation of the trial. The findings of the study will be published in peer-reviewed academic journals and disseminated to PD support groups, medical community and media.Trial registration numberChiCTR1800016570.

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Patient Perspectives on Upper‐Limb Daily Function in Parkinson's Disease

Cohen,

Kizony

2024

Movement Disord Clin Pract

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BackgroundDexterity impairments are common among people with Parkinson's disease (PWP), yet little is understood about the effect of upper‐limb (UL) dysfunction on daily activity performance.ObjectivesThe aims were to (1) map the dexterity activities most affected and meaningful to PWP; (2) explore the associations between perceived dexterity function and disease severity, cognitive and motor UL impairments, dexterity ability, self‐reported activities of daily living (ADL) function, and quality of life (QOL); (3) investigate variables explaining perceived dexterity function; and (4) examine the differences in perceived dexterity function based on dominance affectedness.MethodsA total of 43 PWP (mean age = 70.00 years, standard deviation [SD] = 6.75) were assessed for perceived dexterity function (36‐item Dexterity Questionnaire [DextQ‐36]), dexterity ability (Coin Rotation Task), disease severity (modified Hoen and Yahr Scale), self‐reported ADL function and motor UL impairments (Movement Disorder Society‐Unified Parkinson's Disease Rating Scale), cognition (Montreal Cognitive Assessment), and QOL (Parkinson's Disease Questionnaire‐39).ResultsThe leading dexterity activities participants reported as difficult and meaningful included using a touchscreen, pulling on socks, and dialing a phone. Perceived dexterity significantly correlated with self‐reported ADL function (r = 0.716), QOL (r = 0.691), disease severity (r = 0.470), and dominant‐hand dexterity (r = 0.432). Dexterity ability and disease severity explained 30% of perceived dexterity variance. No differences in perceived dexterity function based on dominance affectedness were found.ConclusionsPWP encounter challenges in complex dexterity tasks that impact their independence. Before interventions focused on UL function are initiated, assessments of PWP should include inquiries about the meaningfulness of challenging dexterity activities.

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Reliability and Validity of 39-Item Parkinson’s Disease Questionnaire and Parkinson’s Disease Quality of Life Questionnaire

Cited by 16 publications

References 20 publications

Quality of life in Parkinson’s disease: Italian validation of the Parkinson’s Disease Questionnaire (PDQ-39-IT)

Quality of life in Parkinson’s disease: Italian validation of the Parkinson’s Disease Questionnaire (PDQ-39-IT)

Study protocol for a single-blind randomised controlled trial to evaluate the clinical effects of an Integrated Qigong exercise intervention on freezing of gait in Parkinson’s disease

Patient Perspectives on Upper‐Limb Daily Function in Parkinson's Disease

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