Reliability and validity of pediatric powered mobility outcome measures

Gefen, Naomi; Rigbi, Amihai; Weiss, Patrice L.

doi:10.1080/17483107.2020.1819449

Cited by 15 publications

(17 citation statements)

References 20 publications

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“…Basic steering control is demonstrated at phase 6 and at phase 7 they can use the power mobility device to participate in other activities. The ALP has established validity for a wide range of ages and abilities and inter-rater reliability has recently been established between experienced professionals (ICC 2,1 0.83) [66] and between professionals and relatives or assistants (κ w 0.85) [67].…”

Section: Discussionmentioning

confidence: 99%

“…Good inter-rater reliability (κ w 0.87) and fair intra-rater reliability (κ w 0.52) was reported from repeated assessment of 9 children with physical disabilities in the original study [30]. Recently other researchers reported excellent intra-rater (ICC 2,1 0.97/0.98) and good to excellent inter-rater reliability (ICC 2,1 0.93/0.87) from assessment of 30 children over two occasions [66]. It has been widely used in paediatric power mobility research although concerns remain regarding its structure and content [54].…”

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confidence: 93%

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Enhancing Function, Fun and Participation with Assistive Devices, Adaptive Positioning, and Augmented Mobility for Young Children with Infantile-Onset Spinal Muscular Atrophy: A Scoping Review and Illustrative Case Report

Livingstone

Paleg²

2021

Disabilities

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Recent advances in medical interventions have changed the prognosis for children with infantile-onset spinal muscular atrophy (SMA-1); however, little has been published regarding rehabilitation management. A rapid scoping review was conducted in November 2020 using Medline and CINAHL databases. Evidence supporting use of assistive devices and equipment to enhance participation, mobility, function, and posture in lying, sitting, and standing positions was sought. From 239 articles, only five studies (describing use of augmentative communication, manual and power mobility, supported standing and orthotic devices) met inclusion criteria. Results are presented alongside a case report of a 5-year-old boy (treated with Nusinersen since 7 months-of-age) who uses a variety of devices to enhance his activity and participation in family life. While reclined and tilted sitting positions as well as power mobility were previously considered for children with SMA-1, this child has progressed to supported upright standing, self-propelling a lightweight manual wheelchair indoors, communicating using multiple methods and taking steps in a dynamic mobility device. Power mobility was introduced in a switch-adapted cart at 11 months and he was independently exploring indoors and outside in his power wheelchair before 20 months. Research evidence is limited, but alongside the case report highlights the importance of a comprehensive and proactive approach to enhancing function, fun and participation with family and friends through adaptive equipment for children with significant and life-limiting disabilities.

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 93%

Enhancing Function, Fun and Participation with Assistive Devices, Adaptive Positioning, and Augmented Mobility for Young Children with Infantile-Onset Spinal Muscular Atrophy: A Scoping Review and Illustrative Case Report

Livingstone

Paleg²

2021

Disabilities

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“…The ALP includes eight phases from novice (ALP 1) to expert (ALP 8). It has evidence of face and content validity (Nilsson and Durkin, 2014) as well as good inter-rater reliability (ICC 2,1 0.83 (Gefen et al., 2020).…”

Section: Methodsmentioning

confidence: 99%

Exploring young children’s activity and participation change following 6 months’ power mobility experience

Livingstone

Field

2020

British Journal of Occupational Therapy

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Introduction This pre-post study explored the effect of children’s 6 months’ experience in one of four early power mobility devices. Method Satisfaction with parent-selected goal achievement was measured using the wheelchair outcome measure for young people and compared with the assessment of learning powered mobility use, as well as device expectation fulfilment ratings. Results Forty-six children with mobility limitations, aged 13–68 months (mean 40.40; SD 15.60) participated. The most common condition was cerebral palsy ( n = 33; 71.74%). The Wilcoxon signed rank test measured the positive change in goal achievement ( z = 4.90; P<0.001; r = 0.51). Fair to good statistically significant Spearman’s correlations were observed between power mobility skill and goal achievement, as well as parent and therapist device expectation scores ( rs = 0.48, 0.46 and 0.66, respectively; P<0.001). Parent and therapist ratings did not differ significantly. No statistically significant associations were found between goal achievement and child (age, diagnosis, abilities) or environmental factors (device, access method, loan length). Conclusion Children at all phases of power mobility skill, using various devices and access methods, can demonstrate activity and participation change following power mobility experience. This study adds validity evidence supporting the use of the wheelchair outcome measure for young people with young children by parent-proxy rating.

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“…PMP has been used in research for children with CP up to the age of 18 years (Gefen et al, 2019a) and shows good-to-excellent interrater reliability (0.87) and excellent intrarater reliability (0.97) (Furumasu et al, 1996). It is the most frequently cited measure in pediatric powered mobility studies (Field & Livingstone, 2018), has been translated into Hebrew, and has good-to-excellent validity and intrarater reliability (intraclass correlation coefficients of 0.97-0.98) (Gefen et al, 2020).…”

Section: Toolsmentioning

confidence: 99%

“…The ALP uses an ordinal scale of 1-8 with 8 as the highest score and is suitable from age 12 months on (Nilsson, 2007;Nilsson & Durkin, 2014). The ALP and its Hebrew translation have good interrater reliability (0.83), and convergent validity with the PMP (r s = 0.89) (Gefen et al, 2020).…”

Section: Toolsmentioning

confidence: 99%

Evaluating a Therapeutic Powered Mobility Camp for Children with Severe Cerebral Palsy

Rosenberg¹,

Maeir²,

Gilboa³

2021

Can J Occup Ther

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Background. Children and youth with severe cerebral palsy (CP) have limited independent mobility, which affects opportunities for overall development. Purpose. To examine the effectiveness of Power Fun, a therapeutic powered mobility summer camp. Methods. A quasi-experimental, repeated-measure design was used, with participants acting as their own control. Twenty-four participants with severe CP (aged 7–20 years) attended Power Fun for three weeks, five days/week. Assessments of powered mobility skills and functional mobility goals were conducted three weeks before the camp (T1), at baseline (T2), postintervention (T3), and at three-week follow-up (T4). Findings. An analysis of variance results indicated significant improvements in powered mobility skills ( F(1,22) = 56.61, p < 0.001, η2p = 0.74) and functional mobility goals ( F(1,58) = 80.17, p < 0.001, η2p = 0.74), with 70% of goals achieved postintervention. A descriptive analysis revealed three learning profiles. Implications. This study provides initial evidence supporting the effectiveness of Power Fun as an intervention promoting powered mobility for children with severe CP, across a range of abilities.

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Reliability and validity of pediatric powered mobility outcome measures

Cited by 15 publications

References 20 publications

Enhancing Function, Fun and Participation with Assistive Devices, Adaptive Positioning, and Augmented Mobility for Young Children with Infantile-Onset Spinal Muscular Atrophy: A Scoping Review and Illustrative Case Report

Enhancing Function, Fun and Participation with Assistive Devices, Adaptive Positioning, and Augmented Mobility for Young Children with Infantile-Onset Spinal Muscular Atrophy: A Scoping Review and Illustrative Case Report

Exploring young children’s activity and participation change following 6 months’ power mobility experience

Evaluating a Therapeutic Powered Mobility Camp for Children with Severe Cerebral Palsy

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