Reliability and validity of the Arabic version of the PedsQL&amp;lt;sup&amp;gt;TM&amp;lt;/sup&amp;gt; 4.0 generic ore scales and PedsQL&amp;lt;sup&amp;gt;TM&amp;lt;/sup&amp;gt; 3.0 diabetes module

Abdul-Rasoul, Majedah; AlOtaibi, Fatemah; Al-Mahdi, Maria; Alkandari, Hessa

doi:10.4236/jdm.2012.23047

Cited by 24 publications

(33 citation statements)

References 18 publications

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“…This was similar to the results of Abdul-Rasoul et al [19] and Boo et al [20]. Concerning gender, female gender was associated with higher CDI score.…”

Section: Particularssupporting

confidence: 91%

Quality of Life in Children with Type I Diabetes Mellitus (T1D) in Minia Governorate: Relationship with Mood and Family Attitudes

Ali¹,

Abdelhakm²,

Abdelhameed³

2017

J Diabetes Metab

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Introduction: Children with T1D experience behavioral difficulties and lower social competency compared with healthy children. Quality of life is considered to be a significant indicator of disease prognosis. Aim:To evaluate the health related quality of life of children with T1D, and how much it could be affected by their mood and family attitudes and to study the relationship between these variables and the metabolic control of the diabetic children.Methods: 72 children with T1D were included and subjected to; history taking, clinical examination, application of Peds QL (Diabetes Module, Version 3), Childhood Depression inventory Scale (CDI),Parent Stress Index(PSI) questionnaire and HbA1c%. Another 72 children apparently healthy, non-diabetic, age and sex matched and siblings of the diabetic patients were included as a control group. They were subjected to Childhood Depression inventory Scale (CDI), Parent Stress Index (PSI) questionnaire.Results: Diabetic patients had significant higher CDI Score and total PSI score than the control group. There were significant positive fair correlations between the age, weight and BMI of diabetic children with the child PedsQL, the parent PedsQL and CDI total scores. Concerning glycemic control, there were significant positive fair correlations between CDI total score with frequency of DKA attacks and HbA1c%. Using the PSI domains, poorly controlled diabetic patients had significant higher parental distress, parent/child dysfunctional interactions and higher PSI total score compared to good controlled patients. Using CDI domains, poorly controlled diabetic patients had significantly more negative self-esteem than good controlled patients. There was a significant positive moderate relationship between CDI total score and PSI score. Finally, there were significant negative weak correlations between PSI score and PedsQL (child and parental) i.e. the higher the parental stress, the lower the quality of life of the diabetic child (reported by both child and parent).Conclusion: diabetic children, especially the poorly controlled ones, are significantly suffering from symptoms of depression which causing stress for their parents and this has significant impact on their quality of life and glycemic control.

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“…This was similar to the results of Abdul-Rasoul et al [19] and Boo et al [20]. Concerning gender, female gender was associated with higher CDI score.…”

Section: Particularssupporting

confidence: 91%

Quality of Life in Children with Type I Diabetes Mellitus (T1D) in Minia Governorate: Relationship with Mood and Family Attitudes

Ali¹,

Abdelhakm²,

Abdelhameed³

2017

J Diabetes Metab

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“…A standard HRQoL diabetes specific questionnaire for children with T1D (PedsQL DM™ version 3.0, Arabic translation) was used: their simultaneous glycosylated hemoglobin (HbA1c) results were recorded. 13 The questionnaire included 28 items. Questions were categorized under 5 domains.…”

Section: Methodsmentioning

confidence: 99%

Quality of Life and Glycemic Control in Saudi Children with Type 1 Diabetes at Different Developmental Age Groups

Babiker

Aqeel

Marie

et al. 2021

Clin Med Insights Endocrinol Diabetes

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Background: Children with type 1 diabetes (T1D) at different stages of development have age-specific needs, which can influence their perception of quality of life (QoL). In our study, we aimed to emphasize these age-specific needs and assess the perception of QoL in Saudi children with T1D, as well as their parents correlating QoL scores with children’s glycemic control. Methods: This is a cross-sectional study in which children with T1D and their parents from 2 tertiary institutes in Saudi Arabia have answered a standard diabetes-specific QoL questionnaire (PedsQL™ 3.0 diabetes module, translated in Arabic). We also reported glycated hemoglobin (HbA1c) results for these children within a month of completing the questionnaire. The QoL total aggregate and domain scores for self (children) and proxy (parents’) reports were compared and correlated with children’s HbA1c. Results: A sample was 288 self and proxy reports from 144 children with T1D of 3 age groups: 5 to 7 years (7%), 8 to 12 years (49%), and 13 to 18 years (44%), and their parents. QoL differed significantly between self and proxy reports in the total aggregate and domain scores ( P-values range from .02 to <.001). The impact on QoL was significantly higher in female patients ( P = .043). Insulin pump users had better HbA1c ( P = .007), and HbA1c level was worse in those who intended to fast at Ramadan ( P = .005). Conclusion: Children with T1D at different developmental age groups perceive QoL differently than their parents. Adjusting management as per age-specific challenges could potentially improve these children’s QoL and glycemic control.

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“…The Pediatric Quality of Life Inventory (PedsQL™) 3.0 Diabetes Module, a multi-dimensional, diabetes-specific instrument that assesses children and adolescents (2–18 years), with both child and parent reports, was used to assess HRQoL [ 6 , 7 , 8 , 9 ]. This 28-item multidimensional instrument consists of 5 scales: (1) diabetes symptoms (11 items), (2) treatment barriers (4 items), (3) treatment adherence (7 items), (4) worry (3 items), and (5) communication (3 items) [ 8 ].…”

Section: Methodsmentioning

confidence: 99%

“…The scoring system is similar to that of the diabetes module [ 7 ]. Both instruments were translated into Arabic and showed good internal consistency reliability and constant validity [ 8 ].…”

Section: Methodsmentioning

confidence: 99%

Quality of Life of Children and Adolescents with Type 1 Diabetes in Kuwait

et al. 2013

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Objectives: To evaluate the health-related quality of life (HRQoL) of children and adolescents with type 1 diabetes (T1DM) in Kuwait using the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scale and PedsQL 3.0 Diabetes Module, and to identify the risk factors associated with unsatisfactory QoL and their effects on metabolic control. Subjects and Methods: A total of 436 patients (2-18 years) with T1DM (>6 months) and 389 healthy controls, with the parents of both groups, completed the Arabic Generic Core Scale. Those with T1DM also completed the Arabic Diabetes Module. Results: The mean total score of the PedsQL Diabetes Module was 70.2 ± 9.8 reported by children and 59.9 ± 11.1 reported by parents (higher scores indicate better QoL). Young age and long duration of diabetes were associated with poor QoL (p < 0.001). Boys had better total scores than girls in most age groups (70.3 ± 9.3 vs. 52.3 ± 7.2, p < 0.001); however, girls did better than boys regarding treatment barriers and adherence (71.3 ± 7.8 vs. 68.1 ± 6.2, p < 0.005). Higher HbA1c values were associated with lower QoL scores (31.1 ± 5.1 at HbA1c of 15% vs. 82.5 ± 6.1 at HbA1c of 6%, p < 0.0001). Conclusion: HRQoL of children and adolescents with T1DM was consistently poorer than controls. Parents consistently reported poorer QoL scores than their children. We recommend that more support should be provided for the care of children with diabetes in Kuwait.

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Reliability and validity of the Arabic version of the PedsQL<sup>TM</sup> 4.0 generic ore scales and PedsQL<sup>TM</sup> 3.0 diabetes module

Cited by 24 publications

References 18 publications

Quality of Life in Children with Type I Diabetes Mellitus (T1D) in Minia Governorate: Relationship with Mood and Family Attitudes

Quality of Life in Children with Type I Diabetes Mellitus (T1D) in Minia Governorate: Relationship with Mood and Family Attitudes

Quality of Life and Glycemic Control in Saudi Children with Type 1 Diabetes at Different Developmental Age Groups

Quality of Life of Children and Adolescents with Type 1 Diabetes in Kuwait

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