Reliability of the North Star Ambulatory Assessment in a multicentric setting

Mazzone, Elena; Messina, Sonia; Vasco, Gessica; Main, Marion; Eagle, Michelle; D’Amico, Adele; Doglio, L.; Politano, Luisa; Cavallaro, Fabio; Frosini, Silvia; Bello, Luca; Magri, Francesca; Corlatti, Alice; Zucchini, Elisabetta; Brancalion, B.; Rossi, Francesca; Ferretti, M.; Motta, M.G.; Cecio, M.R.; Berardinelli, Angela; Alfieri, Paolo; Mongini, Tiziana; Pini, Antonella; Astrea, Guja; Battini, Roberta; Comi, Giacomo P.; Pegoraro, Elena; Morandi, Lucia; Pane, Marika; Angelini, C.; Bruno, Claudio; Villanova, Marcello; Vita, Giuseppe; Donati, Maria Alice; Bertini, Enrico; Mercuri, Eugenio

doi:10.1016/j.nmd.2009.06.368

Cited by 189 publications

(143 citation statements)

References 17 publications

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“…It was graded on a three point (0-1-2) scale and the maximum score was 40 (Scott et al, 1982). The scale was designed by Scott et al, and is widely used for the evaluation of motor functions in DMD (Smith et al, 1991;Scott and Mawson, 2006;Mazzone et al, 2009).…”

Section: Methodsmentioning

confidence: 99%

Reliability of balance tests in children with Duchenne muscular dystrophy

Aras¹,

Aras²,

Ayse³

2011

Sci. Res. Essays

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The first aim of the study was to investigate the test-retest reliability of functional balance tests in children with Duchenne muscular dystrophy (DMD) and the second aim was to examine the relation between balance tests and motor functions in children with DMD. Timed up and go test (TUG) and functional reach test (FRT) were used for the evaluation of balance. Hammersmith motor ability scale (HMAS) was used to assess motor functions. Test-retest reliability was determined by using intra-class correlation coefficient (ICC). Spearman correlation coefficient was used to assess the relation between balance tests and HMAS. Both TUG and FRT had good test-retest reliability. ICC score for TUG was 0.86 (95%, CI=0.69 to 0.94) and 0.96 (95%, CI=0.92 to 0.98) for FRT. A significant negative correlation was found between TUG and HMAS with a correlation coefficient of r ho = -0.69, p<0.01. A significant positive correlation was found between FRT and HMAS with a correlation coefficient of r ho = 0.47, p<0.05. Our results provide evidence that, FRT and TUG are reliable measures and may be used to monitor change over time, particularly following interventions that aim to improve motor functions in children with DMD.

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Section: Methodsmentioning

confidence: 99%

Reliability of balance tests in children with Duchenne muscular dystrophy

Aras¹,

Aras²,

Ayse³

2011

Sci. Res. Essays

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“…Details of the training for the physiotherapists involved in the study and of the interobserver reliability for NSAA among the centers have already been reported [7][8][9][10][11].…”

Section: Nsaamentioning

confidence: 99%

Revised North Star ambulatory assessment for young boys with Duchenne muscular dystrophy

Coratti

Messina

Ricotti

et al. 2016

Neuromuscular Disorders

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The advent of therapeutic approaches for Duchenne muscular dystrophy (DMD) has highlighted the need to identify reliable outcome measures for young boys with DMD. The aim of this study was to develop a revised version of the North Star Ambulatory Assessment (NSAA) suitable for boys between the age of 3 and 5 years by identifying age appropriate items and revising the scoring system accordingly. Using the scale in 171 controls between the age of 2.9 and 4.8 years, we identified items that were appropriate at different age points. An item was defined as age appropriate if it was completed, achieving a full score, by at least 85% of the typically developing boys at that age. At 3 years (±3months) there were only 8 items that were age appropriate, at 3 years and 6 months there were 13 items while by the age of 4 years all 17 items were appropriate. A revised version of the scale was developed with items ordered according to the age when they could be reliably performed. The application of the revised version of the scale to data collected in young DMD boys showed that very few of the DMD boys were able to complete with a full score all the age appropriate items. In conclusion, our study suggests that a revised version of the NSAA can be used in boys from the age of 3 years to obtain information on how young DMD boys acquire new abilities and how this correlates with their peers.

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“…There is a variety of test materials to evaluate the functional level of the patients. Some are disease specific assessment techniques such as the Hammersmith Motor Ability Score (3,4), which is more suitable in strong non-ambulant patients (5), and the North Star Ambulatory Assessment (6), which is specifically designed for ambulant DMD boys to address the functional changes (7). Some are designed for all types of NMDs regardless of the ambulatory levels of the patients, such as the Brooke Upper Extremity Functional Rating Scale (8) and the Vignos Functional Rating Scale (9), to assess the functional level of upper extremity and the ambulation level of subjects with NMDs, respectively.…”

Section: Introductionmentioning

confidence: 99%