Reliability, validity and relevance of needs assessment instruments for informal dementia caregivers

Kipfer, Stephanie; Pihet, Sandrine

doi:10.11124/jbisrir-2017-003976

Cited by 14 publications

(22 citation statements)

References 44 publications

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“…To the best of our knowledge, the Carers' Needs Assessment for Dementia (CNA-D) [10] is the only scale psychometrically robust [11] recommended for research purposes for planning local services [12]. This is in accordance with the suggestions of Van Haaster et al [9] and, in line with literature [13], involves the perspective of both carers and experts for a more comprehensive assessment of unmet needs of caregivers.…”

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confidence: 55%

The Carers’ Needs Assessment for Dementia (CNA-D): a validation study in the Italian population

et al. 2021

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Background Dementia has devastating consequences for families with important physical, psychological, social, and financial effects. Evaluation of caregiver’s needs may be an important step to reduce the burden of family caregivers of dementia patients. An Austrian scale, the Carers’ Needs Assessment for Dementia, is now available for measuring the caregiver’s needs. The aim of our study was to evaluate the psychometric properties of the Italian version of the CNA-D (iCNA-D). Methods A sample of 214 voluntary caregivers of dementia patients was recruited at the Department of Neuroscience, University of Turin (Italy). All participants were administered the iCNA-D. Validity and reliability of the instrument were evaluated using Beck Depression Inventory (BDI), Beck Anxiety Inventory (BAI), Symptom Checklist-90 (SCL-90), and the Italian version of Zarit Burden Interview (I-ZBI). Results The most common unmet need reported for the iCNA-D was “counseling and emotional support” (31.5%). This item demonstrates adequate reliability with moderate internal consistency for all “summary scores” of iCNA-D (α ≥ 0.75) and split-half correlation of more than 0.80 for two of them. We also found positive correlations in two out of three “summary scores” of iCNA-D and in the overall outcomes of BDI, BAI, SCL-90, and I-ZBI. Conclusions The iCNA-D could be a valid and reliable tool for a comprehensive assessment of needs and possible social supports proposed to relatives who take care of patients with dementia. Better understanding of family caregivers’ needs could improve planning of local services and reduce caregivers’ perception of distress and burden.

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confidence: 55%

The Carers’ Needs Assessment for Dementia (CNA-D): a validation study in the Italian population

et al. 2021

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“…The process followed a systematic approach to developing participant-reported outcome measures (PROMs). Its psychometric properties were found to be superior to a number of other caregiver needs assessments in a recent systematic review (Kipfer and Pihet, 2020). PBH-LCI, and MYLOH, its slightly briefer revision renamed after further testing and cultural tailoring with African-American and Latinx caregivers (Sadak et al, 2018), were conceptualized as a way to assess, and ultimately enhance, caregiver "activation" for health care of people with dementia (Sadak et al, 2016).…”

Section: Cross-sector Collaboration In Developing Caregiver Needs Assessment Toolsmentioning

confidence: 99%

Assessing caregiver needs

Borson

2021

Int. Psychogeriatr.

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“…9 Several reviews have contributed to our understandings of the needs of care partners [14][15][16] and the needs assessment tools available. 14,17 However, their restricted aims and inclusion criteria have led to a patchwork understanding of these needs. To our knowledge, a broad overview of the literature, including qualitative and quantitative reviews, has not yet been undertaken.…”

Section: Introductionmentioning

confidence: 99%

Care partner needs of people with neurodegenerative disorders: What are the needs, and how well do the current assessment tools capture these needs? A systematic meta‐review

Kinchin

Edwards

Adrion

et al. 2022

Int J Geriat Psychiatry

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Objectives The burden on care partners, particularly once dementia emerges, is among the greatest of all caregiving groups. This meta‐review aimed to (1) synthesis evidence on the self‐reported needs of care partners supporting people living with neurodegenerative disorders; (2) compare the needs according to care partner and care recipient characteristics; and (3) determine the face validity of existing care partner needs assessment tools. Methods We conducted a systematic review of reviews involving a thematic synthesis of care partner needs and differences in needs according to demographic and other characteristics. We then conducted a gap analysis by identifying the themes of needs from existing needs assessment tools specific to dementia and cross‐matching them with the needs derived from the thematic synthesis. Results Drawing on 17 published reviews, the identified range of needs fell into four key themes: (1) knowledge and information, (2) physical, social and emotional support, (3) care partner self‐care, and (4) care recipient needs. Needs may differ according to disease trajectory, relationship to the care recipient, and the demographic characteristics of the care partner and recipient. The ‘captured needs’ range between 8% and 66% across all the included needs assessment tools. Conclusions Current tools do not fully or adequately capture the self‐identified needs of care partners of people living with neurodegenerative disorders. Given the high burden on care partners, which has been further exacerbated by the COVID‐19 (SARS CoV‐2) pandemic, the needs assessment tools should align with the self‐reported needs of care partners throughout the caregiving trajectory to better understand unmet needs and target supportive interventions.

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Reliability, validity and relevance of needs assessment instruments for informal dementia caregivers

Cited by 14 publications

References 44 publications

The Carers’ Needs Assessment for Dementia (CNA-D): a validation study in the Italian population

The Carers’ Needs Assessment for Dementia (CNA-D): a validation study in the Italian population

Assessing caregiver needs

Care partner needs of people with neurodegenerative disorders: What are the needs, and how well do the current assessment tools capture these needs? A systematic meta‐review

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