RELIEF: A Digital Health Tool for the Remote Self-Reporting of Symptoms in Patients with Cancer to Address Palliative Care Needs and Minimize Emergency Department Visits

Bhargava, Ravi; Keating, Bonnie; Isenberg, Sarina R.; Subramaniam, Saranjah; Wegier, Pete; Chasen, Martin

doi:10.3390/curroncol28060363

Cited by 18 publications

(28 citation statements)

References 12 publications

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“…This participatory design and co-creation mode is also considered central to ensuring equity in digital health intervention ( 124 , 125 ). Bhargava et al ( 126 ) confirmed the possibility of cost reduction through digital technology introducing a digital remote symptoms self-reporting application. The economic saving was over 62,000 dollars in a pilot study with 13 patients affected by cancer and receiving palliative care ( 126 ).…”

Section: Discussionmentioning

confidence: 98%

Integration of art and technology in personalized radiation oncology care: Experiences, evidence, and perspectives

Casà

Dinapoli

Marconi

et al. 2023

Front. Public Health

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Cancer diagnoses expose patients to traumatic stress, sudden changes in daily life, changes in the body and autonomy, with even long-term consequences, and in some cases, to come to terms with the end-of-life. Furthermore, rising survival rates underline that the need for interventions for emotional wellbeing is in growing demand by patients and survivors. Cancer patients frequently have compliance problems, difficulties during treatment, stress, or challenges in implementing healthy behaviors. This scenario was highlighted during the COVID-19 emergency. These issues often do not reach the clinical attention of dedicated professionals and could also become a source of stress or burnout for professionals. So, these consequences are evident on individual, interpersonal, and health system levels. Oncology services have increasingly sought to provide value-based health care, considering resources invested, with implications for service delivery and related financing mechanisms. Value-based health care can improve patient outcomes, often revealed by patient outcome measures while seeking balance with economical budgets. The paper aims to show the Gemelli Advanced Radiation Therapy (ART) experience of personalizing the patients' care pathway through interventions based on technologies and art, the personalized approach to cancer patients and their role as “co-stars” in treatment care. The paper describes the vision, experiences, and evidence that have guided clinical choices involving patients and professionals in a co-constructed therapeutic pathway. We will explore this approach by describing: the various initiatives already implemented and prospects, with particular attention to the economic sustainability of the paths proposed to patients; the several pathways of personalized care, both from the patient's and healthcare professional perspective, that put the person's experience at the Gemelli ART Center. The patient's satisfaction with the treatment and economic outcomes have been considered. The experiences and future perspectives described in the manuscript will focus on the value of people's experiences and patient satisfaction indicators, patients, staff, and the healthcare organization.

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Section: Discussionmentioning

confidence: 98%

Integration of art and technology in personalized radiation oncology care: Experiences, evidence, and perspectives

Casà

Dinapoli

Marconi

et al. 2023

Front. Public Health

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“…K was 0.89 with excellent agreement. Thirteen studies were included, of which nine were quantitative [47][48][49][50][51][52][53][54] (one was a protocol used to evaluate new software [55]), two were qualitative [56,57] and two had a mixed-method design [58,59]. The search and decision-making process is described using the PRISMA flow diagram [43] in Fig.…”

Section: Study Selectionmentioning

confidence: 99%

“…Two studies reported the use of smartphones [55,57], and two used computers [58,59]. Finally, in two studies, the e-PROMS were usable on any device [47,50].…”

Section: Study Characteristicsmentioning

confidence: 99%

Electronic patient-reported outcomes (e-PROMs) in palliative cancer care: a scoping review

Consolo

Castellini

Cilluffo

et al. 2022

J Patient Rep Outcomes

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Background In palliative oncology settings, electronic patient-reported outcome (PRO) assessment can play an important role in supporting clinical activities for clinicians and patients. This scoping review aims to map the technological innovation of electronic patient-reported outcome measures (e-PROMs) in cancer palliative care and how PRO data collected through e-PROMs can influence the monitoring and management of symptoms and enable better communication between health professionals and patients. Methods A scoping review study was designed according to the Arksey and O'Malley framework. Medline, Embase, Web of Science, SCOPUS, PsycINFO and CINAHL and gray literature sources were consulted. The inclusion criteria were people over 18 years old receiving palliative and/or end-of-life care using e-PROMs. Results Thirteen primary studies were included: nine quantitative studies, two qualitative studies, and two mixed-method studies. The recently developed software that supports e-PROMs allows patients to receive feedback on their symptoms, helps clinicians prioritize care needs and monitors patients’ conditions as their symptoms change. Electronic PRO data prompt difficult, end-of-life communication between clinicians and patients to better organize care in the last phase of life. Conclusion This work shows that electronic PRO data assessment provides valuable tools for patients’ well-being and the management of symptoms; only one study reported conflicting results. However, with studies lacking on how clinicians can use these tools to improve communication with patients, more research is needed.

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“…Availability of the digital health device for the reporting of the symptoms in patients with cancer to attend palliative care needs results in the reduction of the number of emergency department visits and thereby reduced health care costs (Bhargava et al, 2021). There is promising evidence to use mobile health apps to provide expanded and enhanced health care services to individuals and communities, taking advantage of the growing usage of mobile phones among diverse populations (Källander et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

Improving symptom assessment and management in the community through capacity building of primary palliative care: A study protocol of exploratory research

et al. 2022

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Aim: To determine the effectiveness of capacity building program on palliative care (PC) in enhancing the capacity of the primary health care workers in need assessment and symptom management of cancer patients. Background: In India, less than one percent of people living with cancer have access to palliative care since most are from low- and middle-income groups. Accredited social health activist (ASHA) and primary health care workers are grassroots workers who are the first contact with family members and are seldom aware of PC in India. It is essential to train them to give practical and efficient care to needy people. Design: A quasi-experimental design with follow-up will be conducted using an evaluative approach. Methods: The study population consists of 1440 Primary Health Care Workers (staff nurses, ANMs, and ASHA workers) of three taluks of Udupi District, Karnataka State, India. Training on PC will be provided for ASHA workers for one day and ANM/Staff nurses for three days. After their training, they are expected to demonstrate the gain in knowledge & skill in providing PC for cancer patients by identifying and implementing PC services using a mobile app at the primary healthcare level. Discussion: Palliative home care can give comfort and reduce patients' financial burden, and this training may help to improve the quality of life of needy patients. Impact: If this palliative care training program succeeds, it can be integrated into the healthcare continuum, making it an essential component of primary healthcare delivery to achieve universal health coverage. Moreover, home-based PC supports patients who want to die at home even though it reduces hospital stay costs. Trial registration: CTRI/2020/04/024792.

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RELIEF: A Digital Health Tool for the Remote Self-Reporting of Symptoms in Patients with Cancer to Address Palliative Care Needs and Minimize Emergency Department Visits

Cited by 18 publications

References 12 publications

Integration of art and technology in personalized radiation oncology care: Experiences, evidence, and perspectives

Integration of art and technology in personalized radiation oncology care: Experiences, evidence, and perspectives

Electronic patient-reported outcomes (e-PROMs) in palliative cancer care: a scoping review

Improving symptom assessment and management in the community through capacity building of primary palliative care: A study protocol of exploratory research

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