Renegotiation of identity in young adults with cancer: A longitudinal narrative study

Pearce, Shirley; Whelan, Jeremy; Kelly, Daniel

doi:10.1016/j.ijnurstu.2019.103465

Cited by 12 publications

(4 citation statements)

References 36 publications

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“…Further, results illuminated that clinically meaningful CRCI affects young adults’ views of themselves. This is not surprising as cancer influences young adults’ self-evaluations and identify [ 59 ]. Current findings add that CRCI can leave young adults feeling less intelligent and threaten their sense of self, which can in turn hinder their vocational aspirations and success [ 60 ].…”

Section: Discussionmentioning

confidence: 99%

Young Adults’ Lived Experiences with Cancer-Related Cognitive Impairment: An Exploratory Qualitative Study

Sharma

Brunet

2023

Current Oncology

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Cancer-related cognitive impairment (CRCI; e.g., disrupted memory, executive functioning, and information processing) affects many young adults, causing significant distress, reducing quality of life (QoL), and thwarting their ability to engage in professional, recreational, and social experiences. The purpose of this exploratory qualitative study was to investigate young adults’ lived experiences with CRCI, and any strategies (including physical activity) they use to self-manage this burdensome side effect. Sixteen young adults (Mage = 30.8 ± 6.0 years; 87.5% female; Myears since diagnosis = 3.2 ± 3) who reported clinically meaningful CRCI whilst completing an online survey were interviewed virtually. Four themes comprising 13 sub-themes were identified through an inductive thematic analysis: (1) descriptions and interpretations of the CRCI phenomenon, (2) effects of CRCI on day-to-day and QoL, (3) cognitive–behavioural self-management strategies, and (4) recommendations for improving care. Findings suggest CRCI is detrimental to young adults’ QoL and must be addressed more systematically in practice. Results also illuminate the promise of PA in coping with CRCI, but research is needed to confirm this association, test how and why this may occur, and determine optimal PA prescriptions for young adults to self-manage their CRCI.

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Section: Discussionmentioning

confidence: 99%

Young Adults’ Lived Experiences with Cancer-Related Cognitive Impairment: An Exploratory Qualitative Study

Sharma

Brunet

2023

Current Oncology

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“…For patients with hematologic tumours, the factors that hindered their decision‐making included (1) negative emotions and states; (2) the complexity of disease treatment and lack of professional knowledge leading to an inability to make appropriate decisions, which is consistent with a previous study (Tariman, Doorenbos, Schepp, Becker, & Berry, 2014); and (3) patients' personal characteristics, such as personality, culture and education level, which have an important impact on the decision‐making (Fabi et al, 2020; Tariman, Doorenbos, Schepp, Singhal, & Berry, 2014). During the period of illness, patients often need to change their identity and constantly negotiate in the face of the reality of the situation, and there is a long‐term correlation between the renegotiation of identity and the ‘cancer period’ experience (Pearce et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

Decision‐making trade‐offs: A classic grounded theory study of Chinese acute leukaemia patients and their family caregivers across the trajectory of illness

Wang,

Wu,

2023

Journal of Clinical Nursing

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Aim and ObjectivesTo identify the main concern of patients with acute leukaemia and their family caregivers in the process of coping with the disease and to determine how patients and their family caregivers address these concerns on an ongoing basis.BackgroundAcute leukaemia is a progressive disease that may lead to physical problems and mental stress in patients. It also affects the psychological well‐being and quality of life of family caregivers. Nevertheless, few studies explore the behavioural pattern across the trajectories of illness in Chinese patients with acute leukaemia and their family caregivers.DesignGrounded theory.MethodsTheoretical sampling was performed to collect 14 sets of secondary data from Bilibili platform, literature, articles from WeChat official account, press releases and documentary. A total of 29 participants were selected to participate in semistructured interviews from the haematology department of a tertiary care hospital in Fuzhou, Fujian Province from January 2021 to November 2021. Data collection and analysis were conducted in a synchronous iterative manner until theoretical saturation was reached. Data analysis included open coding, selective coding and constant comparison, et al. The CCOREQ checklist was utilised.ResultsThis study discovered the main concern (i.e. seeking survival) and main behavioural pattern of how patients with acute leukaemia and their family caregivers addressed this issue. Three decision‐making strategies, ‘responding’ ‘accommodating’ and ‘resisting’ also emerged.ConclusionsThis study explored the behavioural pattern of patients with acute leukaemia and their family caregivers in the process of coping with disease. The study found that the main concern of patients with acute leukaemia and their family caregivers, and provided a theoretical basis for disease management and nursing interventions for them in the future.Relevance to Clinical PracticeThe findings of this study contribute to nursing knowledge, practice in the field of patients' participation in decision‐making.Patient or Public ContributionDue to the characteristics of grounded theory (no presupposition of research questions), the interviews in this study mainly focus on theory generation. Participants were not asked to assess the burden of the intervention and the time required to participate in the study, as interviews were conducted for theory generation. This study may assist patients and family caregivers in obtaining better understand and adapt to changes across the trajectory of illness, as well as to promote public destigmatisation of acute leukaemia and reforms in family‐hospital‐community diversified care.

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“…(19) No contexto investigado, foi destacado o período em que a pessoa vivencia a doença, pois, de acordo com a idade e o diagnóstico, a renegociação com a identidade masculina sofre mudanças. (20) Foi evidenciado entre as narrativas deste estudo que o homem penectomizado busca componentes que legitimam o status de hegemonia, mesmo quando não há elementos que ratifiquem sua identidade masculina, como o pênis e suas representações. Os participantes narraram sentirem-se mais vulneráveis após a penectomia, visto que agora apresentam dificuldade de manter suas relações sociais e sexuais.…”

Section: Discussionunclassified

Masculinidades e rupturas após a penectomia

Conceição¹,

Sinski²,

Araújo³

et al. 2022

Acta Paulista De Enfermagem

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Conflitos de interesse: nada a declarar. ResumoObjetivo: Analisar os significados das masculinidades durante a vivência do câncer peniano e seus tratamentos.Métodos: Abordagem qualitativa de pesquisa amparada em referencial teórico da antropologia médica e das masculinidades, com o emprego do método narrativo. Foram entrevistados em profundidade 18 homens com neoplasia peniana em um hospital referência em uro-oncologia do estado de São Paulo. Cada participante foi entrevistado com roteiro de investigação, em média três vezes, sendo as entrevistas audiogravadas, transcritas e analisadas conforme a análise temática indutiva.Resultados: Seis participantes realizaram a penectomia parcial e 12 total. Em relação ao estado civil, participaram dois viúvos, dois solteiros, três divorciados e 11 casados, com média de idade de 54 anos. A extirpação do pênis promoveu mudanças significativas na forma como os homens performavam suas masculinidades, sobretudo a hegemônica. Portanto, essa experiência lhes permitiu reinterpretar suas condições de saúde na tentativa de identificar outros elementos hegemônicos que sustentassem suas imagens masculinas. Para alguns foi possível representar um homem inteiro, porém outros se consideram agora meio-homens.Conclusão: O adoecimento rompeu com o fluxo biográfico dos participantes, pois antes do câncer peniano a hegemonia os representava como masculinos, entretanto, após a penectomia, eles perdem um órgão que socialmente traz atributos como força, poder, trabalho e virilidade, situação que lhes trouxe a necessidade de reinterpretar o ser masculino em suas culturas. A enfermagem, para promover o cuidado integral ao homem, deve considerar que as masculinidades interferem no processo saúde e doença.

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Renegotiation of identity in young adults with cancer: A longitudinal narrative study

Cited by 12 publications

References 36 publications

Young Adults’ Lived Experiences with Cancer-Related Cognitive Impairment: An Exploratory Qualitative Study

Young Adults’ Lived Experiences with Cancer-Related Cognitive Impairment: An Exploratory Qualitative Study

Decision‐making trade‐offs: A classic grounded theory study of Chinese acute leukaemia patients and their family caregivers across the trajectory of illness

Masculinidades e rupturas após a penectomia

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