Reporting and conducting patient journey mapping research in healthcare: A scoping review

Davies, Ellen; Bulto, Lemma Negesa Bulto; Walsh, Alison; Pollock, Danielle; Langton, Vikki; Laing, Robert E; Graham, Amy; Arnold‐Chamney, Melissa; Kelly, Janet

doi:10.1111/jan.15479

Cited by 45 publications

(35 citation statements)

References 123 publications

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“…Currently many needs in personal health journeys are overlooked or not understood in a health system designed for episodic care. Personal journeys through health and illness across services uniquely take place in a local biopsychosocial and service context 10–12 due to unpredictable/irregular needs, 13–16 end of life care, 17 and greatly influenced by the locally dominant social determinants 12,17 . The prevailing focus of health care from a top down fragmented process‐driven activity should shift to a user‐driven journey of the individual whose health is at stake and whose recovery must respect their complex socio‐cultural contexts 18 …”

Section: Reframing Clinical Care As Enabling Individual Health Journe...mentioning

confidence: 99%

From theory to practice: The pragmatic value of applying systems thinking and complexity sciences in healthcare

Sturmberg,

Martin

2024

Evaluation Clinical Practice

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Section: Reframing Clinical Care As Enabling Individual Health Journe...mentioning

confidence: 99%

From theory to practice: The pragmatic value of applying systems thinking and complexity sciences in healthcare

Sturmberg,

Martin

2024

Evaluation Clinical Practice

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“…The majority of the 26 studies additionally advocated for the inclusion of insights from people with lived experience and service providers in the journey mapping process. 5 Correspondingly, this study aimed to gain insights into the current experience of telepractice-delivered clinical services for people with a disability and their families with a secondary aim to explore whether empowering people with lived experience and clinicians as co-designers to analyse data and to compile a journey map would provide useful insights to guide a telepractice service redesign.…”

Section: Introductionmentioning

confidence: 99%

“…Journey mapping provides the opportunity to identify touchpoints or potential pain points within their experience to highlight areas for improved service delivery. 5 The current study was based at a disability support service provider in Perth, Australia, providing services predominantly funded by the National Disability Insurance Scheme (NDIS). The NDIS is an Australian federal government-funded programme, providing personalised funding plans to people with significant or permanent disability to access support via a goal-based model.…”

Section: Introductionmentioning

confidence: 99%

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Co‐designing a telepractice journey map with disability customers and clinicians: Partnering with users to understand challenges from their perspective

Benz,

Scott‐Jeffs,

Revitt

et al. 2023

Health Expectations

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IntroductionTelepractice has the potential to align with the directive to reduce inequalities by United Nations Sustainable Development Goal 10. Telepractice additionally addresses a national digital health strategic plan for accessible digitally enabled models of care. To plan improvements, it is essential to understand the experience of telepractice for people with disability, which may be achieved through an approach such as journey mapping. The current article provides both a disability‐specific case study and a methodological guide for the inclusion of customers and clinicians in the meaningful redevelopment of services. The Perth, Australia‐based case study aimed to gain insights into the experience of telepractice for people with disability. The methodological aim describes using co‐design to produce a journey map in collaboration with customers and clinicians, for potential replication in a wide range of health and social care contexts.MethodInterview transcripts gathered from a cohort of customer participants (n = 17) were used to inform the journey map. A group of customers (n = 5) and clinicians plus one manager (n = 5) distributed the findings onto a customer experience journey map during a co‐design workshop. The journey map describes the emotional experience and actions taken, along five phases of a timeline through telepractice service interactions: (1) before, (2) selecting telepractice, (3) telepractice preparation, (4) during telepractice sessions and (5) after.ResultsA journey map visualisation of customer experiences was produced that identified strengths of telepractice service delivery (flexibility) while noting challenges (with technology) as opportunities for improvement. The consensus of participants was the desire to have access to telepractice currently and in the future, in addition to in‐person delivery.ConclusionThese findings are valuable in the context of advocating for the incorporation of customers and clinicians through co‐design workshops in the content analysis and creation of a journey map that is representative of the lived experience of accessing telepractice services.Patient or Public ContributionThe paper forms part of a larger co‐design process that included customer participants throughout the design and planning of the project, inclusion of a peer researcher and the co‐designers in the workshops, journey map and this article production.

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“…[24][25][26] As patient journeys are mapped, patterns, barriers, and gaps in healthcare delivery are identified from a patient-centered perspective. 20 Likewise, challenges that exist due to the gaps in knowledge about screening, diagnoses, and management can be better visualized through emerging themes on the journey map. 27 Overall, the utilization of patient journey maps is a great approach to supporting shared decision-making, decreasing fragmented patient care, and encouraging patient empowerment that fosters positive patient outcomes.…”

Section: Introductionmentioning

confidence: 99%

Patient Journey Map: Metal Hypersensitivity

Lagura,

Dordunoo,

Mallidou

et al. 2023

Journal of Patient Experience

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In this study, we highlight patients’ experiences with metal hypersensitivity (MH) after receiving implantable medical devices (IMDs). We aim to identify gaps in clinical care and improve outcomes for individuals who have or may be sensitive to metals. Secondary data analysis from a previous interpretative phenomenological qualitative study was utilized. Using patient journey maps, we explored the experiences of 8 individuals from outpatient settings who received IMD and have first-hand experience with MH. We documented their journey from MH symptom recognition to diagnosis and subsequent IMD management. The results reveal that the time frames from device implantation to the treatment of MH varied from 17 to 228 months. The longest phase on the patient journey maps was the symptom recognition phase, which refers to the time between symptom emergence and MH diagnosis. Participants also required extensive healthcare utilization following their initial surgery. These findings emphasize that MH should be considered in differential diagnoses for patients with IMD. Early screening and detection of MH can enhance patient safety, alleviate distress, and reduce unnecessary healthcare utilization.

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Reporting and conducting patient journey mapping research in healthcare: A scoping review

Abstract: Aim: To identify how patient journey mapping is being undertaken and reported.Design: A scoping review of the literature was undertaken using JBI guidance.

Cited by 45 publications

References 123 publications

From theory to practice: The pragmatic value of applying systems thinking and complexity sciences in healthcare

From theory to practice: The pragmatic value of applying systems thinking and complexity sciences in healthcare

Co‐designing a telepractice journey map with disability customers and clinicians: Partnering with users to understand challenges from their perspective

Patient Journey Map: Metal Hypersensitivity

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