Reporting guideline for priority setting of health research (REPRISE)

Abstract

BackgroundResearch priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for influencing the research agenda. This study aims to develop a reporting guideline for priority setting of health research.MethodsWe searched electronic databases and relevant websites for sources (frameworks, guidelines, or models for conducting, appraising, reporting or evaluating health research priority setting, and reviews (including systematic reviews)), and primary studies of research priority setting to July 2019. We inductively developed a list of reporting items and piloted the preliminary guideline with a diverse range of 30 priority setting studies from the records retrieved.ResultsFrom 21,556 records, we included 26 sources for the candidate REPRISE framework and 455 primary research studies. The REporting guideline for PRIority SEtting of health research (REPRISE) has 31 reporting items that cover 10 domains: context and scope, governance and team, framework for priority setting, stakeholders/participants, identification and collection of priorities, prioritization of research topics, output, evaluation and feedback, translation and implementation, and funding and conflict of interest. Each reporting item includes a descriptor and examples.ConclusionsThe REPRISE guideline can facilitate comprehensive reporting of studies of research priority setting. Improved transparency in research priority setting may strengthen the acceptability and implementation of the research priorities identified, so that efforts and funding are invested in generating evidence that is of importance to all stakeholders.Trial registrationNot applicable.

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland

“…On a special note, the priority of palliative care at home was integrated as part of phase III community-based services, not as a stand-alone research priority need. The process of research priority setting was complex due to multiple engagement phases, however the use of participatory approach underpinned by PPI principles enabled us to identify, address and integrate the diverse stakeholders values and perspectives 33 throughout the process.…”

“…Since there is a significant variation in the use of research priority-setting methodology worldwide, there is no gold standard or best practice for evaluating the process of research priority setting 35 . For this research priority setting exercise we didn’t follow any checklist as part of the project design and engagement process; however, we came across REPRISE checklist and guidelines 33 and tried to refer this guide to facilitate comprehensive and transparent reporting of health research priority-setting exercises.…”

Top 10 research priorities for people living with pulmonary fibrosis, their caregivers, healthcare professionals and researchers

“…Results were reported using the REporting guideline for PRIority SEtting of health research (REPRISE) guidelines. 11 (online supplemental file 1)…”

Identifying integrated health services and social care research priorities in kidney disease in Wales: research prioritisation exercise

“…The complete research priority setting exercise was reported using the REPRISE checklist and guidelines. 25 Patient and public involvement Patients, family members and the wider social care sector were involved in every aspect of the priority setting exercise. We had input at a strategic level from two patient representatives on the WKRU executive board who supported the idea of an All Wales priority setting exercise in health services and social care.…”