Research Ethics Education for Community-Engaged Research: A Review and Research Agenda

Anderson, Emily E.; Solomon, Stephanie; Heitman, Elizabeth; DuBois, James M.; Fisher, Celia B.; Kost, Rhonda G.; Lawless, Mary Ellen; Ramsey, Cornelia; Jones, Bonnie; Ammerman, Alice; Ross, Lainie Friedman

doi:10.1525/jer.2012.7.2.3

Cited by 105 publications

(128 citation statements)

References 57 publications

(83 reference statements)

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“…Dr. Toftle must also anticipate that in a single task force, members lower in the medical hierarchy would remain at risk of testimonial injustice. To counter this possible injustice, she might require that all task force members undergo interprofessional or community-based participatory training, such as that offered at the authors' institution [11,12] and has been advocated as a way of enhancing research capacity [11][12][13]. Such training might also reduce biases that lead to unfair exclusion of some voices.…”

Section: Next Steps For Design Decision Makingmentioning

confidence: 99%

What Critical Ethical Values Guide Strategic Planning Processes in Health Care Organizations?

Kucmanic¹,

Sheon

2017

AMA Journal of Ethics

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This case explores a fictitious hospital's use of co-creation to make a decision about redesign of inpatient units as a first step in incorporating stakeholder input into creation of governing policies. We apply a "procedural fairness" framework to reveal that conditions required for an ethical decision about space redesign were not met by using clinician and patient focus groups to obtain stakeholder input. In this article, we identify epistemic injustices resulting from this process that could undermine confidence in leadership decisions. Suggestions are offered for incorporating stakeholder input going forward that address prior shortcomings. The result should be conditions that are perceived as procedurally fair and decisions that engender confidence in institutional leadership.

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Section: Next Steps For Design Decision Makingmentioning

confidence: 99%

What Critical Ethical Values Guide Strategic Planning Processes in Health Care Organizations?

Kucmanic¹,

Sheon

2017

AMA Journal of Ethics

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“…CBPR is rooted in the assumption that given support, training and encouragement, community co-researchers can be empowered to engage productively in research priority setting and in research processes (Anderson et al, 2012). Involving community co-researchers in research is a step towards the democratisation of research as CBPR can demystify both therapy and research by engaging nontherapists and non-traditional researchers in debate and action.…”

Section: Why Consider Cbpr For Therapy?mentioning

confidence: 99%

Community-based participatory research in counselling and psychotherapy

Spong

Waters

2015

European Journal of Psychotherapy & Counselling

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Over the last 20 years, there has been an increased interest in communitybased participatory research (CBPR) across a range of disciplines. This approach to research focuses on the empowerment of those for whom the research is relevant by ensuring that they or their representatives have the opportunity for full involvement in developing and undertaking studies, and in disseminating the research findings. However, there is little evidence within counselling and psychotherapy of a substantial engagement with research that includes clients, potential clients and their communities as full partners in the research process. This paper describes CBPR and critically explores its potential for developing knowledge in counselling and psychotherapy.Innerhalb der letzten zwanzig Jahre ist das Interesse an partizipativer Forschung beständig gewachsen -und das disziplinübergreifend. Dieser Ansatz verbindet mit seiner Forschung immer auch eine gewisse Befähigung eben jener, die sie zum Objekt haben. Das soll vor allem durch die vollständige Miteinbeziehung der betreffenden Menschen oder ihrer Vertreter in Entwicklung, Durchführung sowie anschließende Verbreitung der Forschungsergebnisse gewährleistet werden. Jedoch gibt es, etwa für die Beratung oder Psychotherapie, bislang wenig Hinweise dafür, dass (mögli-che) Klienten oder ihr Umfeld auch tatsächlich und wesentlich am Forschungsprozess beteiligt werden. Der vorliegende Aufsatz greift den partizipativen Forschungsansatz auf und setzt sich kritisch mit ihm und seinen Potenzialen für Beratung und Psychotherapie auseinander.En los últimos veinte años ha habido un aumento en el interés en investigaciones participativas basadas en la comunidad, en un gran número de disciplinas. Este método de investigación se focaliza en potentizar a aquéllos para quien la investigación es relevante, asegurándoles que ellos o sus representantes tienen la oportunidad para involucrarse completamente en desarrollar estudios y en divulgar los resultados de las investigaciones. Sin embargo, existe poca evidencia en psicoterapia y en orientación psicológica, de un compromiso substancial con investigaciones que incluya clientes, clientes potenciales y sus comunidades como participantes completos en el proceso de investigación. Este artículo describe investigaciones participativas basadas en la comunidad y explora críticamente su potencial para desarrollar el conocimiento en psicoterapia y en orientación psicológica.Palabras clave: orientación psicológica; investigación participativa comunal; investigación participativa basada en la comunidad; clínica de investigación en orientación psicológica; psicoterapia Negli ultimi 20 anni è molto cresciuto l'interesse per la ricerca partecipativa basata sulla comunità in un'ampia gamma di discipline. Questo approccio alla ricerca si focalizza sul potenziamento di coloro per i quali la ricerca è rilevante, garantendo che essi stessi, o i loro rappresentanti, possano essere pienamente coinvolti nello sviluppo, nell'avvio di studi e nella diffusione dei risultati dell...

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“…Identify and develop a working relationship with youthoriented community health, social, and legal services to maximize the probability that disclosures, if necessary, will adequately protect a participant or others from harm. Seek parent and youth perspectives on expectations regarding the investigator's protective role and risks and benefits of alternative ethical procedures including: maintaining confidentiality, referring participants to available youth services, or reporting information to appropriate adults (Anderson et al, 2012;Fisher, 2002;Flicker & Guta, 2008;Spencer, 2011). 5.…”

Section: Steps For Determining Risk-disclosure Proceduresmentioning

confidence: 99%