Research on Family Health and Children and Youth With Special Health Care Needs

Kuhlthau, Karen; Ames, Stefanie; Ware, Allysa; Hoover, Clarissa; Wells, Nora; Shelton, Charlene

doi:10.1016/j.acap.2021.07.019

Cited by 10 publications

(3 citation statements)

References 37 publications

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“…31,32 Just as financial and food security are important resources for AMC health, parent and family health is a powerful resource and warrants attention. 29,33 Considering the impact of social determinants on transition outcomes, our findings address gaps in the evidence about the impact of financial stability on transition. Namely, lower socioeconomic status among AMC was negatively associated with their provider actively managing their transition to adult healthcare.…”

Section: Discussionmentioning

confidence: 74%

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Factors Associated With Transitions to Adult Care Among Adolescents and Young Adults With Medical Complexity

Mooney-Doyle,

Ventura Castellon,

Lindley

2023

Am J Hosp Palliat Care

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Introduction: Thanks to advances in healthcare and technology, adolescents with medical complexity (AMC) and life-threatening conditions are living longer lives and may be expected to transition to adult health care. Yet, current systems and policies of transition care may not reflect their needs, those of their family, or the impact of social determinants of health. The goal of this study was to describe the relationship between social determinants of health and high-quality transition care. Methods: Retrospective cohort study of the 2019-2020 National Survey of Children’s Health. The main outcome variable was any support for transition to adult health care. Independent variables were based on a social determinants of health framework. Weighted logistic regression was used to evaluate the association between social determinants and any support for transition to adult health care. Results: Final weighted sample included 444,915 AMC. AMC were distributed across income levels, most commonly lived in the South, and in supportive, resilient communities. More than 50% experienced adverse childhood events and less than 50% had adequate insurance. Less than one third received any transition support from providers; those who did reported time alone with the provider or active management. Social determinants related to missed days of school, community support/family context, and poverty were associated with both receipt and absence of transition care. Conclusion: AMC and their families navigate complex environments and associated stressors. Social determinants of health, particularly economic, community/social, and healthcare exert significant and nuanced influence. Such impacts should be incorporated into transition care.

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Section: Discussionmentioning

confidence: 74%

“…31,32 Just as financial and food security are important resources for AMC health, parent and family health is a powerful resource and warrants attention. 29,33…”

Section: Discussionmentioning

confidence: 99%

Factors Associated With Transitions to Adult Care Among Adolescents and Young Adults With Medical Complexity

Mooney-Doyle,

Ventura Castellon,

Lindley

2023

Am J Hosp Palliat Care

View full text Add to dashboard Cite

show abstract

“…Based on the statistics of the Welfare Organization, 29 to 35 thousand children are annually born with disabilities in Iran [6]. Children with disabilities and their families form a unique group that is different from healthy children [7]. Evidence shows that the physical and mental needs of these children and the time and energy required to care for them are unique challenges for the mothers [8,9].…”

Section: Introductionmentioning

confidence: 99%