Research priorities in mental health, Part 2: an evaluation of the current research effort against stakeholders' priorities

Griffiths, Kathleen M; Jorm, Anthony F; Christensen, Helen; Medway, Jo; Dear, Keith

doi:10.1046/j.1440-1614.2001.01024.x

Cited by 43 publications

(67 citation statements)

References 13 publications

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“…Loss was not specifically identified in the studies, with the exception of O'Brien who identified 'loss of cultural identity' as a theme [3]. However, evidence of pervasive loss across all areas that surrounded the conceptualization of mental health was consistent across all studies.…”

Section: Lossmentioning

confidence: 85%

Indigenous Australians’ Understandings Regarding Mental Health and Disorders

Ypinazar

Margolis

Haswell‐Elkins

et al. 2007

Aust N Z J Psychiatry

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The purpose of the present paper was to determine what is currently documented about Indigenous Australians' understandings of mental health and mental disorders through a meta-synthesis of peer-reviewed qualitative empirical research. The following databases were electronically searched (1995-April 2006): AOA-FT and AIATSIS, Blackwell Synergy, CINAHL and Pre CINHAL, Health source: nursing/academic edition, Medline, Proquest health and medical complete, PsycInfo, Science Direct, Synergy and HealthInfoNet. Eligible studies were those written in English and published in peer-reviewed journals, empirical studies that considered Indigenous people's understandings of mental health and provided details on methodology. Five articles from four qualitative studies met these criteria. Meta-ethnography was used to identify common themes emerging from the original studies. Reciprocal translation was used to synthesize the findings to provide new interpretations extending beyond those presented in the original studies. An overarching theme emerged from the synthesis: the dynamic interconnectedness between the multi-factorial components of life circumstances. Reciprocal translations and synthesis regarding Indigenous understandings of mental health and illness resulted in five themes: (i) culture and spirituality; (ii) family and community kinships; (iii) historical, social and economic factors; (iv) fear and education; and (v) loss. The application of a meta-synthesis to these qualitative studies provided a deeper insight into Indigenous people's understandings of mental health and illness. The importance of understanding Indigenous descriptions and perceptions of mental health issues is crucial to enable two-way understandings between Indigenous people's constructs of wellness and Western biomedical diagnostic labels and treatment pathways for mental disorders and mental health problems.

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Section: Lossmentioning

confidence: 85%

Indigenous Australians’ Understandings Regarding Mental Health and Disorders

Ypinazar

Margolis

Haswell‐Elkins

et al. 2007

Aust N Z J Psychiatry

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“…A theme that came across strongly in this group of people with colitis was that identification of the cause of ulcerative colitis was very important because then the disease could be prevented, cured or treated better. Prevention was also highly rated by consumers of Australian mental health services [10]. A theme that is of direct relevance to clinicians dealing with patients with colitis was the range of symptoms that they attributed to their colitis and which they thought were important research topics.…”

Section: Discussionmentioning

confidence: 99%

“…Literature searches of Medline, CINAHL and PsychInfo and the National Research Register using the keywords 'patients views', 'consumers', 'users priorities', 'users preferences', 'research' and 'involvement' found few primary studies that reported patient views on research topics or their research priorities and none that examined the views of people with inflammatory bowel disease. In the disease areas studied so far, the research priorities of patients have been found to be broad and, where they have been directly compared, they have been found to differ from that of health professionals [7][8][9][10]. For example, in the area of maternity care, the UK National Childbirth Trust initiative [8] showed that consumers prioritized five burning issues including information provision, attitudes and training of midwives, and the withholding of food and drink in labour.…”

Section: Introductionmentioning

confidence: 99%

The identification of topics for research that are important to people with ulcerative colitis

Welfare¹,

Colligan

Molyneux

et al. 2006

European Journal of Gastroenterology & Hepatology

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“…Several authors have written persuasively of the importance of gathering and prioritising patients' research questions so that future research assesses the things that matter to patients. 130,131 The James Lind Alliance (JLA) was established in 2004 to encourage patients, carers and clinicians to work together to identify and prioritise shared health-care uncertainties, arguing that medical consensus can be flawed and that research into clinical practice and NHS services should identify and address the uncertainties and investigate the outcomes that are of most practical importance to patients, their carers and clinicians. Research priority themes emerging from the deliberations of JLA partnerships to 2012 (across asthma, incontinence, vitiligo, eczema, stroke, prostate cancer, schizophrenia, aspects of balance and type 1 diabetes) emphasise the assessment of treatments in terms of long-term effects (wanted and unwanted) and safety and adverse effects.…”

Section: Introductionmentioning

confidence: 99%

Wounds research for patient benefit: a 5-year programme of research

Cullum

Buckley

Dumville

et al. 2016

Programme Grants Appl Res

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BackgroundComplex wounds are those that heal by secondary intention and include lower-limb ulcers, pressure ulcers and some surgical wounds. The care of people with complex wounds is costly, with care mainly being delivered by community nurses. There is a lack of current, high-quality data regarding the numbers and types of people affected, care received and outcomes achieved.ObjectivesTo (1) assess how high-quality data about complex wounds can be captured effectively for use in both service planning and research while ensuring integration with current clinical data collection systems and minimal impact on staff time; (2) investigate whether or not a clinical register of people with complex wounds could give valid estimates of treatment effects, thus reducing dependence on large-scale randomised controlled trials (RCTs); (3) identify the most important research questions and outcomes for people with complex wounds from the perspectives of patients, carers and health-care professionals; (4) evaluate the potential contributions to decision-making of individual patient data meta-analysis and mixed treatment comparison meta-analysis; and (5) complete and update systematic reviews in topic areas of high priority.MethodsTo meet objectives 1 and 2 we conducted a prevalence survey and developed and piloted a longitudinal disease register. A consultative, deliberative method and in-depth interviews were undertaken to address objective 3. To address objectives 4 and 5 we conducted systematic reviews including mixed treatment comparison meta-analysis.ResultsFrom the prevalence survey we estimated the point prevalence of all complex wounds to be 1.47 per 1000 people (95% confidence interval 1.38 to 1.56 per 1000 people). Pressure ulcers and venous leg ulcers were the most common type of complex wound. A total of 195 people with a complex wound were recruited to a complex wounds register pilot. We established the feasibility of correctly identifying, extracting and transferring routine NHS data into the register; however, participant recruitment, data collection and tracking individual wounds in people with multiple wounds were challenging. Most patients and health professionals regarded healing of the wound as the primary treatment goal. Patients were greatly troubled by the social consequences of having a complex wound. Complex wounds are frequently a consequence of, and are themselves, a long-term condition but treatment is usually focused on healing the wound. Consultative, deliberative research agenda setting on pressure ulcer prevention and treatment with patients, carers and clinicians yielded 960 treatment uncertainties and a top 12 list of research priorities. Of 167 RCTs of complex wound treatments in a systematic review of study quality, 41% did not specify a primary outcome and the overall quality of the conduct and reporting of the research was poor. Mixed-treatment comparison meta-analysis in areas of high priority identified that matrix hydrocolloid dressings had the highest probability (70%) of being the most effective dressing for diabetic foot ulcers, whereas a hyaluronan fleece dressing had the highest probability (35%) of being the most effective dressing for venous ulcers; however, the quality of this evidence was low and uncertainty is high.ConclusionsComplex wounds are common and costly with a poor evidence base for many frequent clinical decisions. There is little routine clinical data collection in community nursing. A prospective complex wounds register has the potential to both assist clinical decision-making and provide important research evidence but would be challenging to implement without investment in information technology in NHS community services. Future work should focus on developing insights into typical wound healing trajectories, identifying factors that are prognostic for healing and assessing the cost-effectiveness of selected wound treatments.FundingThe National Institute for Health Research Programme Grants for Applied Research programme.

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Research priorities in mental health, Part 2: an evaluation of the current research effort against stakeholders' priorities

Abstract: It is of concern that committees that evaluate research are guided by different values from consumers and carers in setting priorities. Nevertheless, there is consensus across stakeholder groups that a number of areas should be a high priority.

Cited by 43 publications

References 13 publications

Indigenous Australians’ Understandings Regarding Mental Health and Disorders

Indigenous Australians’ Understandings Regarding Mental Health and Disorders

The identification of topics for research that are important to people with ulcerative colitis

Wounds research for patient benefit: a 5-year programme of research

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