2023
DOI: 10.1186/s40900-023-00431-8
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Researchers’ experiences with patient engagement in health research: a scoping review and thematic synthesis

Abstract: Context Implicating patients in research is gaining popularity around the world and is now the reference of many funding agencies. Understanding these partnerships is necessary to grasp this new reality. The experiences of researchers who have involved patient-partners (PPs) in health research are important for a better understanding of these practices. Objective This study aimed to identify and analyze the existing qualitative scientific literatur… Show more

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Cited by 8 publications
(4 citation statements)
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“…Building quality, reciprocal partnerships can further help to mitigate potential power tensions [ 23 , 40 ]. In practice, this will be achieved through active listening and strengthening of young people’s voices [ 41 ].…”
Section: Methodsmentioning
confidence: 99%
“…Building quality, reciprocal partnerships can further help to mitigate potential power tensions [ 23 , 40 ]. In practice, this will be achieved through active listening and strengthening of young people’s voices [ 41 ].…”
Section: Methodsmentioning
confidence: 99%
“…Patient experts and researchers increasingly recognize that patients and community representatives should be successfully involved in every step of the research process ( 25 ). Such inclusion ensures that research addresses nonstigmatizing topics that are of the highest benefit to community-specific health needs ( 26 ).…”
Section: Research Topic and Authorshipmentioning
confidence: 99%
“…Lay summaries (LSs) are a critical knowledge translation strategy to communicate healthcare research evidence to patient and public partners (PPPs) [ 1 , 2 ]. By bridging gaps between research evidence and patient and public comprehension, LSs can facilitate more meaningful conversations about healthcare research and its implications, potentially resulting in more informed healthcare decision-making [ 3 , 4 ]. As defined by the National Institute for Health Research (NIHR) a lay summary is “a research project or a research proposal summary that has been written for members of the public, rather than researchers or professionals” [ 5 ].…”
Section: Introductionmentioning
confidence: 99%
“…The significance of involving PPPs in the development, implementation, and dissemination of health-related evidence is increasingly being acknowledged, particularly in the realm of knowledge translation strategies [ 4 , 12 , 13 ]. Despite growing interest in LS guidance, a wide range of guidance documents are dispersed across many health and healthcare sectors with uncertainty on the optimal LS characteristics and processes for writing LSs [ 6 – 10 ].…”
Section: Introductionmentioning
confidence: 99%