Resilience in Later Life: Responding to Criticisms and Applying New Knowledge to the Experience of Dementia

Windle, Gill

doi:10.1007/978-3-030-57089-7_3

Cited by 4 publications

(4 citation statements)

References 43 publications

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“…Building carers' individual resilience cannot be achieved without practical support (Henwood et al, 2017) and should include a focus on healthcare and political macro-systems (Teahan et al, 2018), particularly as the COVID-19 pandemic has highlighted the problems carers experience when support systems are eroded. It seems likely, however, that individual approaches to resilience may persist, under the guise of personal responsibility and active citizenship, diverting attention from underfunding of social care and day care services (Windle, 2021). Our study suggests that carers may be unable to continue indefinitely without such supports in place.…”

Section: Discussionmentioning

confidence: 76%

“…Further expanding on a transactional approach, and informed by Ecological Systems Theory (Bronfenbrenner, 1994), Windle and Bennett (2012) emphasise the importance of assets and resources for carer resilience; how, in the face of potential adversity, individuals draw on a range of personal, social and community or societal resources (e.g. psychological and social support, and health and social services) which become "the resilience reserve" for positive adaptation (Windle, 2021). Nonetheless, others have argued that a "prevailing fixation on individual resilience" has persisted (McKenna et al, 2021:32).…”

Section: Introductionmentioning

confidence: 99%

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‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Stapley

Pentecost

Collins

et al. 2024

International Journal of Care and Caring

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Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study is to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes describe the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.

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Section: Discussionmentioning

confidence: 76%

Section: Introductionmentioning

confidence: 99%

‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Stapley

Pentecost

Collins

et al. 2024

International Journal of Care and Caring

View full text Add to dashboard Cite

show abstract

“…Building carers' individual resilience cannot be achieved in the absence of practical support (Henwood, Larkin and Milne, 2017) nor should it exclude a focus on health and political macro-systems (Teahan et al, 2018), particularly as the COVID-19 pandemic has further highlighted the problems for carers when such systems are eroded. However, individual approaches to resilience may persist under the guise of personal responsibility and active citizenship to divert attention from underfunding of services (Windle, 2021) such as social care and day care; although, as our study has suggested, it is uncertain how carers can be expected to go on inde nitely without such supports in place. Consequently, there may be a subtext to resilience approaches, not dissimilar to the 'positive thinking' in cancer rhetoric during the 1990s (De Raeve, 2003; Wilkinson and Kitzinger, 2000), wherein resilience may be forced as a moral imperative or "expected norm" (Windle, 2021, pp.42).…”

Section: Discussionmentioning

confidence: 84%

“…Informed by Ecological Systems Theory (Bronfenbrenner, 1994), a transactional process approach to caregiver resilience has been discussed (Windle & Bennett, 2012) where, in face of potential adversity, individuals are situated in interaction with a range of personal, social and community or societal resources (e.g. psychological, social support, and health and social services) which become "the resilience reserve" for positive adaptation (Windle, 2021). Nonetheless, McKenna et al (2021) have argued that a "prevailing xation on individual resilience" (pp.29) has persisted; i.e.…”

Section: Introductionmentioning

confidence: 99%

'Caring beyond capacity' during the coronavirus pandemic: the experiences of family caregivers of people with dementia from the IDEAL cohort

Stapley

Pentecost

Collins

et al. 2022

Preprint

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Some carers of people with dementia have reported increased caring demands and carer stress during the COVID-19 pandemic. Carers’ experiences during this time may also have implications for resilience. As part of the INCLUDE component of the IDEAL cohort study, the overall aim of this subtle realist qualitative study was to explore family carer experiences of caring for someone with dementia one year into the COVID-19 pandemic in England, and to consider the study findings in relation to resilience frameworks in dementia caregiving. Seven family carers of people living with mild-to-moderate dementia were interviewed, and themes derived using framework analysis. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role and caring in isolation from family and professional support. Findings provide evidence that trait resilience approaches fail to account for important aspects of carers’ experiences, highlighting the range of contextual factors which influence experiences of the caregiving role, lending support to transactional resilience frameworks. More importantly than building individual resilience, timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.

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Resilience in Brazilian’s Older Persons with Visual Impairment: A Marginal Effects Approach

Olivares-Tirado,

Zanga

2024

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Background: Resilience is essential for healthy ageing in a society where people live longer and face increased individual adversity risks. This study investigated the association between visual impairment and resilience in Brazilians aged 60 and older. We explore personal, sociodemographic, and economic factors that influence the impact of visual impairment on the psychological and social support aspects of resilience outcomes. Resilience was operationally defined at an individual level as an outcome through self-report measures, expressing the preservation of psychological dimensions such as motivation, emotional well-being, and social support in the presence of visual impairment. Method: Data from the Brazilian National Health Survey (2019), a population-based, cross-sectional study using a Partial Proportional Odds Model and a marginal effect at the means to make the results more interpretable. Participants included 21,699 older adults with an average age of 69.5 years; 55% were women; 35% exhibited partial or permanent visual impairment, and 53% were considered resilient. Results: As the severity of visual impairment increases, the likelihood of resilience in older adults decreases for both men and women. Resilience increases with age, regardless of the severity of the disorder. Older men were more resilient than women in all categories of visual impairment. Regardless of the severity of the disorder, unscholarly participants show greater resilience. Participants who rated better health status had better resilience levels. Conclusions: This study suggests that, beyond the positive association with some sociodemographic factors, resilience is strongly related to cultural factors and self-perceived health status among older Brazilians.

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Resilience in Later Life: Responding to Criticisms and Applying New Knowledge to the Experience of Dementia

Cited by 4 publications

References 43 publications

‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

'Caring beyond capacity' during the coronavirus pandemic: the experiences of family caregivers of people with dementia from the IDEAL cohort

Resilience in Brazilian’s Older Persons with Visual Impairment: A Marginal Effects Approach

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