Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan‐European nursing research project

Hanson, Elizabeth; Tetley, Josie; Clarke, Amanda

doi:10.1046/j.1365-2648.1999.01215.x

Cited by 47 publications

(55 citation statements)

References 38 publications

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“…Similarly, while the carers in this study did not command good health and had responsibility for relatives with many co-morbidities which required a great deal of physical and emotional support, their main concern was in maintaining their relative's safety and well-being when accessing any form of respite care (Ageing & Disability Department, NSW Health 1999). To achieve positive outcomes, it is critical that respite services are well equipped with more skilled and trained staff (field workers) who can deliver the quality of care while the care recipients are in respite care (Cox 1997;Hanson, Tetley & Clarke 1999). This requires service providers to offer better training for their staff to cope with complex care needs of clients, in particular when providing in home respite as indicated by the study participants.…”

Section: Discussionmentioning

confidence: 99%

“…A nationwide survey and consultation with various stakeholders of respite care including carers, care-recipients, respite service providers, and government bodies revealed the need for increased flexibility and availability of community based respite to accommodate individualised needs (Rhys Hearn et al 1996). In view of these findings the Commonwealth allocated almost $73 There is abundant literature on the subject of respite care for families at a state and national level (Brodaty & Gresham 1992;Hanson, Tetley & Clarke 1999;Ashworth & Baker 2000;Chappel, Reid & Dow 2001;Cox 1997;Smyer & Chang 1999), particularly for those caring for a person with a dementing or other neurodegenerative illness (Murphy 1999). Research has identified informal carers' needs and respite service availability and that service utilisation is neither uniform (Leong, Madjar & Fiveash 2001), nor meeting the demands of all groups (Braithwaite 1998;Zarit, Gaugler & Jarrott 1999).…”

Section: Supporting Literaturementioning

confidence: 99%

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Respite services for older persons and their family carers in southern Sydney

Witt¹,

Chenoweth

Jeon³

2004

Collegian

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This localised study focuses on the availability; suitability and utilization of respite care services for families caring for older relatives in southern Sydney, NSW, an issue identified by the first author in the course of her employment as a community nurse. Respite care services were examined from the perspective of family carers (N=18), referring health professionals (N=18), respite referral services and respite care providers (N=9). The data was obtained from semi-structured in-depth interviews, surveys, and focus group discussions. Apart from the respite referral services all participants identified access to and utilization of respite care were constrained by actual and perceived limitations in service availability, referral processes, service flexibility and quality of care outcomes. Recommendations for improving access include re-evaluation of the centralised referral system, establishing more effective communication processes between all three groups and other health staff, and introducing focused aged care education for respite care staff.

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Section: Discussionmentioning

confidence: 99%

Section: Supporting Literaturementioning

confidence: 99%

Respite services for older persons and their family carers in southern Sydney

Witt¹,

Chenoweth

Jeon³

2004

Collegian

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“…Different theories are defined in publications: they do not meet caregivers' expectations or requirements (63), families are convinced that they provide more stress than relief (64-66), they produce a sense of guilt towards patients (64).…”

Section: Balneotherapy: a New Respite Organization For Both Alzheimermentioning

confidence: 99%

Balneotherapy, prevention of cognitive decline and care the Alzheimer patient and his family: Outcome of a multidisciplinary workgroup

Secher

Soto

Gillette

et al. 2009

The Journal of nutrition, health and aging

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According to the latest forecasts of the INSEE - Institut National de la Statistique et des Etudes Economiques (National Statistics and Economic Studies Institute), ageing of the French population will increase between 2005 and 2050: whereas 20.8% of the population living in continental France reached the age of 60 years or more in 2005, this proportion would be of 30.6% in 2035 and 31.9% in 2050. In 2050, 22.3 million persons will have reached the age of 60 years or more compared to 12.6 million in 2005, increasing by 80% in a 45-year period. In line with the actual age pyramid, ageing is unavoidable, as those who will reach 60 years of age in 2050 are already born (in 1989 or before). This expansion will be most important between 2006 and 2035, when the numerous "baby-boom" generations born between 1946 and 1975, will reach these ages. In future years, lifespan improvement will only emphasize this increase. Even if life expectancy stabilizes at the 2005 level, the number of seniors reaching 60 years or more would still increase to 50% between 2005 and 2050. This issue is identical in all countries of the European Union. Ageing is a major risk factor for dementia that will considerably worsen in the next years, if no curative therapies are found. Today, 25 million persons in the world suffer from Alzheimer's disease (AD). In France, it is estimated that 860,000 persons are affected and that 225,000 news cases are annually diagnosed. After 75 years of age, more than 20% of women and 13% of men are concerned. Forecasts for the coming years are frightening. Considering ageing of the population, the number of Alzheimer's disease cases should raise to 1.3 million in 2020 (20 patients for 1000 inhabitants) ant 2.1 million in 2040 (30 patients for 1000 inhabitants).

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“…172,179,185 Carers in these studies expressed a need for adequate financial support and information about what allowances they were entitled to, as many did not received allowances through poor knowledge. However, there was also a reluctance to divulge financial information, which acted as a barrier to seeking services.…”

Section: Costmentioning

confidence: 99%

“…14 Respite care can be provided in a number of different ways. These include care as an inpatient of a care home or hospice, typically for 1 or 2 weeks, or adult day care (ADC) or in-home or sitting services.…”

Section: Definition Of Respite Carementioning

confidence: 99%

Systematic review of respite care in the frail elderly

Shaw

McNamara²,

Abrams³

et al. 2009

Health Technol Assess

106

152

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Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan‐European nursing research project

Cited by 47 publications

References 38 publications

Respite services for older persons and their family carers in southern Sydney

Respite services for older persons and their family carers in southern Sydney

Balneotherapy, prevention of cognitive decline and care the Alzheimer patient and his family: Outcome of a multidisciplinary workgroup

Systematic review of respite care in the frail elderly

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