Respite reconsidered

Chappell, Neena L.; Reid, Raymond; Dow, Elizabeth H.

doi:10.1016/s0890-4065(00)00026-8

Cited by 49 publications

(7 citation statements)

References 20 publications

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“…This study supports previous research suggesting there are many forms of respite, beyond simply carers having a physical break from the person they support (e.g. Chappell et al, 2001), and that respite can be experienced by the person with dementia and professional carers, such as in shared respite (Burnside et al, 2017). For example, family carers can experience 'role engulfment', in which the number of caregiving responsibilities leaves little time for other activities and a so there is a loss of personal identities other than 'carer' (Eifert et al, 2015).…”

Section: Discussionsupporting

confidence: 90%

A conceptual model of the impact of including carers in museum programmes for people with dementia

et al. 2022

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Background Research has highlighted a need for more theoretical work in arts interventions, including the role of the dyad. This study aimed to test theories from a literature review on the impact of including carers in museum programmes for people with dementia, and develop a model which can be used in other programmes to consider the impact of including carers more broadly. Methods Using a realist evaluation approach, theory was developed through interviews and participant-observation at six museums in the UK. Findings The impacts of including carers fell into seven broad areas – caring responsibility, session function, controlling access, preventing engagement, comparisons and losses, long-term impact of in-the-moment activities, and reducing social isolation and opening up the museum. Conclusions Including carers may have both unanticipated benefits and negative consequences, and greater attention is needed on how both carers and people with dementia can be supported in shared sessions. Carers should be viewed as participants of programmes, and can even be the main beneficiaries, even where the programme is ostensibly ‘for’ the person with dementia – it’s not simply that carers are the enablers of, or barriers to, the impacts on the person with dementia.

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Section: Discussionsupporting

confidence: 90%

A conceptual model of the impact of including carers in museum programmes for people with dementia

et al. 2022

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“…These activities included running errands, tending to relationships within the caregiver's own family, or preparing meals for later use. The kinds of relief they got from caregiving were usually short term in duration, similar to Chappell, Reid, and Dow's (2001) notion of stolen moments as one form of respite from care responsibilities. For example, a wife caring for her husband remarked that she used the time to go get items that were not in the house: I can go and buy my groceries or do something in the time that they're here where I would ordinarily not be able to leave because I don't leave him alone for more than 15 or 20 minutes.…”

Section: Respitementioning

confidence: 88%

What Quality Paid Home Care Means to Family Caregivers

Piercy

Dunkley

2004

J Appl Gerontol

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The authors investigate the meanings of paid home care for family caregivers to frail older adults, comparing and contrasting what good and poor quality home care means to their caregiving efforts. Semistructured interviews were conducted with caregivers and were analyzed qualitatively, using McCracken's (1988) five-step method for analysis of long interviews. Data from two studies were combined because of similarities in sample characteristics and interview questions and because data from the second study included both positive and negative experiences with home care providers. The authors find that caregivers perceived that good-quality paid home care facilitated enhanced quality of life for care recipients and improved perceptions of their performances as caregivers. When paid home care was of poor quality, caregivers felt more stress and increased their monitoring of providers. Caregiver circumstances, as well as care recipient needs, should be considered in making decisions about who receives formal home care services.

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“…Surprisingly, much of the research on the benefits of respite has concluded that respite is either not very or only moderately effective in reducing caregiving burden or in improving caregivers' morale and satisfaction (Chappell, Reid, & Dow, 2001;Kirwin, 1991;Theis, Moss, & Pearson, 1994). One recent study found that caregivers were most satisfied with respite when they used the time to do things that they wanted or planned to do (Lund, Utz, Caserta, Wright, 2009).…”

Section: The Benefits Of Respitementioning

confidence: 99%

The Benefits of Respite Time-Use

et al. 2011

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This study uses data from semistructured interviews and time-log diaries to explore both desired and actual time-use among employed (n = 26) and nonemployed caregivers (n = 22). We found that employed caregivers were generally more satisfied with respite time-use than nonemployed caregivers. Employed caregivers were also more likely to do activities they had desired to do, suggesting they may have clearer expectations about what they could accomplish during respite. Although most employed caregivers considered employment to be a valuable and desired form of respite, lack of free time outside of work and caregiving was stressful. Similarly, nonemployed caregivers expressed a desire to do activities they wanted to do, rather than only those related to caregiving and household maintenance. These results suggest that both employed and nonemployed caregivers might benefit from better respite time-use. Practice and policy suggestions that might enhance caregivers' use of respite time are provided.

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Respite reconsidered

Cited by 49 publications

References 20 publications

A conceptual model of the impact of including carers in museum programmes for people with dementia

A conceptual model of the impact of including carers in museum programmes for people with dementia

What Quality Paid Home Care Means to Family Caregivers

The Benefits of Respite Time-Use

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