Response to Bharadwaj et al., Challenges of Promoting Uniformity in Programs within a Health Care System (DOI: 10.1089/jpm.2019.0404)

Rogers, Maggie; Kamal, Arif H.; Rodgers, Philip T.; Meier, Diane E.; Pantilat, Steven Z.

doi:10.1089/jpm.2020.0094

Cited by 2 publications

(1 citation statement)

References 2 publications

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“…Recently, the Palliative Care Quality Collaborative (PCQC) was created as the first coordinated organization-and patientlevel quality registry for specialty palliative care. 6 The PCQC integrated the efforts of several national palliative care Registries, including the National Palliative Care Registry (NPCR), the Palliative Care Quality Network (PCQN), and the Global Palliative Care Quality Alliance (GPCQA). Guided by the American Academy of Hospice and Palliative Medicine (AAHPM) with support from the Gordon and Betty Moore Foundation and Cambia Health Foundation, the PCQC was created to be the unified ''front door'' for collaborative quality measurement and improvement activities in the field.…”

Section: Introductionmentioning

confidence: 99%

Specialty Palliative Care in COVID-19: Early Experiences from the Palliative Care Quality Collaborative

Kamal¹,

Thienprayoon

Aldridge

et al. 2021

Journal of Palliative Medicine

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Background: The COVID-19 pandemic has spurred unprecedented need for specialty palliative care. The Palliative Care Quality Collaborative (PCQC) provides unique infrastructure for rapid data collection and analysis. Objectives: To capture and describe real-time, real-world experiences of specialty palliative care professionals caring for patients with COVID-19 through a rapid reporting tool and registry. Setting: Palliative care clinicians consulted for patients either positive for COVID-19, under investigation for COVID-19, or recovered from COVID-19. Design: The PCQC created a 13-item COVID-19 case report form (CRF), modeled after the PCQC core dataset for specialty palliative care quality measurement. Twelve items offered discrete answer choices and one was open-ended. The CRF was publicized widely (e.g., social media, e-mail list serves) and completed through a link on the PCQC website. Results: Three hundred six reports (298 adult, 8 pediatric) were submitted between April 6, 2020 and October 7, 2020. The majority of patients (83%) were 50 years or older; 25% were 80 or older, and 78% were COVID-19 positive. Male gender identity was significantly more prevalent than female (58% vs. 40%, p < 0.002). The most common comorbidity was cardiovascular disease (23%). Of adult hospital-based patients, 69% were full code before palliative care consultation versus 28% after ( p < 0.05). All pediatric patients were full code before and after palliative care consult. Qualitative themes were strained communication with patients, family visitation challenges, communication barriers between clinicians and families, rapid changes in palliative care medical management, community care options difficult to find, lack of testing in community-based settings, and guardianship and legal challenges. Conclusion: Preliminary data from the first 306 patients reported to the PCQC COVID-19 Registry describe palliative care use concentrated among older and higher risk patients and challenges to the provision of palliative care during this pandemic.

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Section: Introductionmentioning

confidence: 99%

Specialty Palliative Care in COVID-19: Early Experiences from the Palliative Care Quality Collaborative

Kamal¹,

Thienprayoon

Aldridge

et al. 2021

Journal of Palliative Medicine

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Pediatric Palliative Care Programs in US Hospitals

et al. 2021

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BACKGROUND AND OBJECTIVES: Pediatric palliative care (PPC) is integral to the care of children living with serious illnesses. Despite the growth in the number of established palliative care programs over the past decade, little is known about the current operational features of PPC programs across the country. METHODS:The National Palliative Care Registry collects annualized data on palliative care programs' structures, processes, and staffing. Using data from the 2018 registry survey, we report on the operational features of inpatient PPC programs across the United States.RESULTS: Fifty-four inpatient PPC programs submitted data about their operations. Programs reported a median of 3.8 full-time equivalent staff per 10 000 hospital admissions (range 0.7-12.1) across the core interdisciplinary team, yet few (37%) met the minimum standards of practice for staffing. Programs provided more annual consults if they were longer-standing, had more interdisciplinary full-time equivalent staff, offered 24/7 availability for patients and families, or were at larger hospitals. The majority of programs reported concern for burnout (63%) and an inability to meet clinical demand with available staffing (60%). CONCLUSIONS:There is considerable variability in PPC program operations and structure in hospitals. This study affirms the need for updated program standards and guidelines, as well as research that describes how different care delivery models impact outcomes for patients, families, staff, and health care systems. Future studies that further define the clinical demand, workload, and sustainability challenges of PPC programs are necessary to foster the provision of high-quality PPC and maintain a vital clinical workforce.

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Response to Bharadwaj et al., Challenges of Promoting Uniformity in Programs within a Health Care System (DOI: 10.1089/jpm.2019.0404)

Cited by 2 publications

References 2 publications

Specialty Palliative Care in COVID-19: Early Experiences from the Palliative Care Quality Collaborative

Specialty Palliative Care in COVID-19: Early Experiences from the Palliative Care Quality Collaborative

Pediatric Palliative Care Programs in US Hospitals

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