Responsiveness of Goal Attainment Scaling in comparison to two standardized measures in outcome evaluation of children with cerebral palsy

Steenbeek, Duco; Gorter, Jan Willem; Ketelaar, Marjolijn; Galama, Krys; Lindeman, Eline

doi:10.1177/0269215511407220

Cited by 99 publications

(81 citation statements)

References 39 publications

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“…11 A limitation of this study is the lack of standardization of the goal-setting process, and the use of evaluative measures such as using the Canadian Occupational Performance Measure (COPM) or Goal Attainment Scale (GAS). 12 Nevertheless, the parents' support of repeat injections suggests that they felt that the injections were beneficial. Of note is the fact that parents reported improvements in areas not identified as goals at the time of injection.…”

Section: Discussionmentioning

confidence: 99%

Botulinum Toxin Type A in Children and Adolescents With Severe Cerebral Palsy

et al. 2013

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This retrospective cohort study reviewed set goals and their outcomes of children and adolescents with severe cerebral palsy who received botulinum toxin A in 2008 and 2009. Sixty children (36 male, mean age 9 years) were included. They received on average 4 (range 1-7) treatments, with the dosage varying between 20 and 400 units per treatment (3-21 U/kg/body weight). Mild transient side effects were reported in 12 of 242 treatments with botulinum toxin A. Treatment goals were related to lower limb function (82%), range of motion (68%), positioning (33%), upper limb function (33%), and facilitating ease of care in dressing (30%), toileting, and diapering (22%). The treatment goals were reached in 60% to 85% by report of the parent and child dyad. Our findings suggest that botulinum toxin A should be considered as a treatment option in patients with cerebral palsy within Gross Motor Function Classification System levels IV and V.

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Section: Discussionmentioning

confidence: 99%

Botulinum Toxin Type A in Children and Adolescents With Severe Cerebral Palsy

et al. 2013

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“…Inter-rater reliability Good to excellent ICC 0.82 (95% CI 73-91) Children with CP GMFCS I-V [63] Excellent inter and intra-rater reliability in children with CP at a range of GMFCS levels ICC = 0.96 (95% CI 93-97 and 94-98, respectively) [64] Content validity established for use with children with CP at a range of GMFCS levels [64] Convergent validity with COPM for children with hemiplegic CP [59] Responsive to change in activity goals in children CP at all GMFCS levels [65] Likert scale GAS more sensitive than weighted GAS goals or COPM in hemiplegic CP [59]. Responsive to change in gross motor goals at a range of GMFCS levels [64] Excellent for GMFCS IV and V Adequate for GMFCS IV and V Adequate for GMFCS IV and V QUEST 2.…”

Section: Internal Consistencymentioning

confidence: 99%

Measuring Outcomes for Children with Cerebral Palsy Who Use Gait Trainers

Livingstone

Paleg

2016

Technologies

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Gait trainers are walking devices that provide additional trunk and pelvic support. The primary population of children using gait trainers includes children with cerebral palsy (CP) functioning at Gross Motor Function Classification System (GMFCS) levels IV and V. A recent systematic review found that evidence supporting the effectiveness of gait trainer interventions for children was primarily descriptive and insufficient to draw firm conclusions. A major limitation identified was the lack of valid, sensitive and reliable tools for measuring change in body structure and function, activity and participation outcomes. Twelve different clinical tools were identified in the systematic review and in this paper we review and discuss the evidence supporting their reliability, validity and clinical utility for use with children using gait trainers. We also describe seven additional clinical measurement tools that may be useful with this intervention and population. The Pediatric Evaluation of Disability Inventory (PEDI) rated highest across all areas at this time. Individualized outcome measures, such as the Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling and measuring user satisfaction with tools, such as the Quebec User Evaluation of Satisfaction with assistive Technology, show potential for gait trainer outcomes research. Spatiotemporal measures appear to be less useful than functional measures with this intervention and population. All tools would benefit from further development for use with children with CP functioning at GMFCS levels IV and V.

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“…When predefining and grading the goals at T2, the current level of eye-gaze technology usage was set to −2 on the five-point scale from −2 (much less than expected) to +2 (much more than expected) with 0 (expected), +1 (more than expected), and +2 as successful levels. GAS has shown good responsiveness in detecting clinically relevant change [15,16].…”

Section: Assessmentsmentioning

confidence: 99%

Eye-Gaze Control Technology as Early Intervention for a Non-Verbal Young Child with High Spinal Cord Injury: A Case Report

et al. 2018

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Assistive technology (AT) can be used as early intervention in order to reduce activity limitations in play and communication. This longitudinal case study examines eye-gaze control technology as early intervention for a young child with high spinal cord injury without the ability to make sounds. The young child was followed by repeated measures concerning performance and communication from baseline at 9 months to 26 months, and finalized at 36 months by field observations in the home setting. The results showed eye-gaze performance and frequency of use of eye-gaze control technology increased over time. Goals set at 15 months concerning learning and using the AT; naming objects and interactions with family was successfully completed at 26 months. Communicative functions regarding obtaining objects and social interaction increased from unintentional actions to purposeful choices and interactions. At 36 months, the toddler was partly independent in eye gazing, used all activities provided, and made independent choices. In conclusion, the results show that a 9-month-old child with profound motor disabilities can benefit from eye-gaze control technology in order to gradually perform activities, socially interact with family members, and make choices.

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Responsiveness of Goal Attainment Scaling in comparison to two standardized measures in outcome evaluation of children with cerebral palsy

Cited by 99 publications

References 39 publications

Botulinum Toxin Type A in Children and Adolescents With Severe Cerebral Palsy

Botulinum Toxin Type A in Children and Adolescents With Severe Cerebral Palsy

Measuring Outcomes for Children with Cerebral Palsy Who Use Gait Trainers

Eye-Gaze Control Technology as Early Intervention for a Non-Verbal Young Child with High Spinal Cord Injury: A Case Report

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