Restraint interventions in people with moderate to profound intellectual disabilities: Perspectives of support staff and family members

Embregts, P.J.C.M.; Negenman, Annemarieke A.; Habraken, Jolanda M.; Boer, M.E. de; Frederiks, B.J.M.; Hertogh, Cees M.P.M.

doi:10.1111/jar.12519

Cited by 15 publications

(9 citation statements)

References 35 publications

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“…The repeated use of some restrictive measures shown in these results suggests that staff are not provided with support and advice to reduce or replace them with less restrictive approaches (see Deveau & Leitch, 2018). The results also indicate that when staff use a measure frequently, then it is not perceived as restrictive, also suggested recently by Embregts et al (2019).…”

Section: Discussionsupporting

confidence: 83%

The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden

Björne

Deveau

McGill

et al. 2021

Policy Practice Intel Disabi

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Background: Community services for Swedish people with intellectual disability (ID) are intended to support self-determination and integrity. Legislation does not allow the use of restrictive or coercive measures.Aim: The aim of this study is to identify the extent of, rationale for, and strategies staff believe would reduce the use of restrictive measures in group homes and daily activities services for people with ID.Method: A survey was sent to all staff in group homes and daily activities in one large Swedish municipality. The survey comprised four Likert style questions and one free text question, addressing the type of and reasons for restrictive measures, and how much staff value their replacement. A total of 250 surveys were completed.Results: A third of staff reported that some restrictive measures were used daily or weekly, primarily to protect and support service users. Adequate numbers of staff, better service design, and training were considered necessary for change.Conclusion: Staff report structural reasons, such as staffing, resources time, lack of training, and supervision for using restrictive measures. Staff see reducing the use of restrictive measures as requiring structural changes with engagement from the whole organization.

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Section: Discussionsupporting

confidence: 83%

The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden

Björne

Deveau

McGill

et al. 2021

Policy Practice Intel Disabi

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“…In an attempt to reduce these challenging behaviours, the support staff in the present study often requested additional restrictive interventions. Given that restrictive interventions can induce negative emotions in both the service user and support staff, including feelings of insecurity and anxiety (Heyvaert et al, 2014 ), it is essential to make a well‐informed decision, which takes all perspectives into account, including that of the person with the intellectual disability (Embregts et al, 2019 ). This is especially the case in the current crisis in which exploring and understanding both the causes of service users' behaviour and the subsequent impact of the preventive measures on them are crucial for jointly making a well‐informed decision.…”

Section: Discussionmentioning

confidence: 99%

The experiences of psychologists working with people with intellectual disabilities during the COVID‐19 crisis

Embregts

Tournier

Frielink

2021

Research Intellect Disabil

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Background The aim of this study was to explore the experiences of psychologists working with people with intellectual disabilities during the initial stage of the COVID‐19 lockdown in the Netherlands. Method Five psychologists, who were affiliated with three intellectual disability services, participated in this descriptive qualitative study. Overall, they recorded 22 audio messages during the period under examination, which were analysed using thematic analysis. Results Three themes were identified: (a) Working from home; (b) Adapting to the new reality; and (c) Advising and coaching support staff. Conclusions This study provides critical insights into the experiences of psychologists working with people with intellectual disabilities during the initial stage of the COVID‐19 lockdown. These insights can help policymakers and practitioners to prepare for either a potential second wave of COVID‐19 or a future pandemic.

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“…The environment of people with extensive support needs mainly consists of parents and healthcare professionals. Embregts et al [43] showed that both parents and professionals are capable of taking the perspective of people with severe intellectual disabilities. However, De Geus-Neelen et al [44] indicated that parents in this population evaluated their child's self-determination more positively than support workers did.…”

Section: Implications For Practicementioning

confidence: 99%

Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives

et al. 2022

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Background: The fulfilment of basic psychological needs (BPNs) is seen as an integral part of human self-determination, subjective wellbeing, and overall quality of life. However, the meaning of these psychological constructs for individuals with the most extensive support needs remains elusive. Methods: Primary relatives of nine people diagnosed with severe or profound intellectual and multiple disabilities were interviewed about their perceptions of autonomy, competence, and relatedness regarding their family member with complex care needs, and about the ways in which they tried to support their family member in fulfilling specific BPNs. The interview analysis followed a grounded theory with the sensitizing concepts approach. Results: The relatives assigned important meaning to the BPNs, providing insights into their subtle nature, their implicit drivers, and how they were experienced. The relatives also identified serious challenges in detecting, clarifying, and creating opportunities for BPNs. Conclusions: The themes in the relatives’ perspectives can be summarized into a conceptual framework that may contribute to better mutual understanding between people with complex care needs, their relatives, and healthcare providers.

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Restraint interventions in people with moderate to profound intellectual disabilities: Perspectives of support staff and family members

Abstract: These results indicate that support staff and family members can take into account the perspective of people with moderate to profound ID in the evaluation and consideration of involuntary care.

Cited by 15 publications

References 35 publications

The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden

The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden

The experiences of psychologists working with people with intellectual disabilities during the COVID‐19 crisis

Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives

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