Rethinking Imbalances of Power Through Health Communication

Cooke‐Jackson, Angela; Spieldenner, Andrew; Hudak, Nicole; Ben, Crystal

doi:10.4324/9781003043379-43

Cited by 4 publications

(2 citation statements)

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“…Beneath the medical narrative of the hysterical female patient lies far more sinister and permeating histories of abuse and stereotyping for women of color, compounded further by patients’ intersecting identities (e.g., race/ethnicity, socioeconomic status; Pryma, 2017; Thompson et al, 2022). Future research on AD would benefit from further exploring (see Williams, 2016) the intersecting role of identity(ies) and social determinants of health on patient narratives and the MVBs assigned to their illness experiences (see Cardwell, 2023; Cooke-Jackson et al, 2022).…”

Section: Discussionmentioning

confidence: 99%

“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S.

Gunning,

Koenig Kellas

2023

Emerging Adulthood

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The onset of autoimmune disease (AD) in emerging adulthood is a disruptive illness experience that is difficult to make sense of. Compounded by hegemonic ideologies, including the master illness narrative of restitution and stereotype of the hysterical female patient, women with AD struggle with narrative coherency. Guided by the retrospective storytelling heuristic of communicated narrative sense-making theory (CNSM), the present study investigates the meanings, values, and beliefs found in emerging adult women’s narratives of AD onset and diagnosis. Using qualitative in-depth interviews, findings identify how young women experiencing disruptive chronic illness at a formative age make sense and meaning of their experience, highlighting the role of identity (re)construction and resistance to dominant narratives. Framed as lessons learned, themes include rediscovering trust in self, separating self from illness, creating and committing to new normals, challenging assumptions about illness, and recognizing privilege and disparities in care. Theoretical and practical implications are discussed.

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Section: Discussionmentioning

confidence: 99%

“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S.

Gunning,

Koenig Kellas

2023

Emerging Adulthood

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“…Disparities in diagnosis and care are a result of whose bodies and health are prioritized within our medical system; “some disparities are the result of oppressive frameworks like racism, and others are the product of capitalism” (Cooke-Jackson et al, 2022, p. 523). African American, Latino/a/x, and American Indian/Alaskan Native women have not historically had the same access to medical treatment, insurance, and care as white women, resulting in disparities in disease, diagnosis, and treatment (Cooke-Jackson et al, 2022). For instance, SLE afflicts Black and Hispanic and Latino/a/x women at nearly three times the rate of non-Hispanic white women, and often manifests as a more severe form of disease with a significantly higher mortality rate (Wallace & Hahn, 2013; Yen & Singh, 2018).…”

Section: Discussionmentioning

confidence: 99%

“But you don’t look sick:” Memorable messages of emerging adulthood autoimmune disease

Gunning

2022

Journal of Social and Personal Relationships

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Background: Experiencing the onset of autoimmune disease in emerging adulthood is disruptive and difficult to make sense of because youth and illness are not expected to co-exist. As a result, emerging adults with autoimmune disease are susceptible to messages that discredit and deny their health experiences. Though communication research has explored dismissive and disenfranchising communication in the face of chronic illness, a need for how to disrupt and replace this harmful or inadequate messaging remains. Purpose: Building upon prior memorable messages research that centers the call “I wish,” asking individuals not only about messages received but messages desired, the present study identifies harmful and helpful memorable messages in the face of autoimmune disease onset and diagnosis. Research Design: Guided by Cooke-Jackson & Rubinsky’s (2021) theory of memorable messages and call for research on message disruption, the present study explores the messages 25 assigned female at birth (AFAB) individuals with autoimmune disease received during their illness journeys using individual, semi-structured interviews. Results: Findings reveal messages of dismissal, blame, and presumed psychosis (e.g., “it’s all in your head,” “but you look healthy”) as characterizing the diagnostic journey. Participants identify messages of belief, support, and interest (e.g., “I believe you,” “you are not alone,” “help me understand”) as being helpful while navigating their disease. Conclusion: Findings illuminate how family members, friends, health care providers, intimate partners, and relational others can effectively support emerging adults navigating a difficult and disruptive health experience. Limitations and future directions are discussed.

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A Critical Quantitative Approach to Intersectionality: Interrogating Race and Class in the Context of Female Chronic Pain

Tucker,

Gunning,

Hintz

et al. 2024

Communication Studies

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Rethinking Imbalances of Power Through Health Communication

Cited by 4 publications

References 0 publications

“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S.

“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S.

“But you don’t look sick:” Memorable messages of emerging adulthood autoimmune disease

A Critical Quantitative Approach to Intersectionality: Interrogating Race and Class in the Context of Female Chronic Pain

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