Returning to a changed ordinary life - families' lived experience after completing a child's cancer treatment

Björk, Maria; Nordström, Berit; Wiebe, Thomas; Hallström, Inger

doi:10.1111/j.1365-2354.2009.01159.x

Cited by 42 publications

(66 citation statements)

References 16 publications

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“…In the longitudinal research project, the families were interviewed when the child was diagnosed with cancer (Björk, Wiebe & Hallström, 2005) during treatment (Björk, Wiebe & Hallström, 2009) right after treatment was completed (Björk, Nordström, Wiebe & Hallström, 2011) and seven years after the child's diagnosis (Sundler, Hallström, Hammarlund & Björk, 2013). During the time of the longitudinal research project some children in the included families died.…”

Section: Designmentioning

confidence: 99%

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Björk

Sundler

Hallström

et al. 2016

European Journal of Oncology Nursing

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Link to publication Citation for published version (APA): Björk, M., Sundler, A. J., Hallström, I., & Hammarlund, K. (2016). Like being covered in a wet and dark blanketParents' lived experiences of losing a child to cancer. European Journal of Oncology Nursing, 25, 40-45. DOI: 10.1016/j.ejon.2016 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Conclusion: There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.

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Section: Designmentioning

confidence: 99%

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Björk

Sundler

Hallström

et al. 2016

European Journal of Oncology Nursing

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“…The family's lived experience during the childhood cancer trajectory has been described by Björk et al, (2011) and Björk et al, (2005Björk et al, ( , 2009) and this study is a continuation of that longitudinal research project. At the time of diagnosis the family's lived experience was described as breaking their lifeworld and striving to survive (Björk et al, 2005).…”

Section: Introductionmentioning

confidence: 99%

“…The family's lived experience during treatment was looked on as an everyday struggle where the family focused on the sick child (Björk et al, 2009). Lastly, when treatment was completed they experienced a return to a changed ordinary life in which they tried to incorporate the trying and contradictory experience they had got from the cancer trajectory (Björk et al, 2011). To date, longitudinal studies exploring the family's experience of having a child who has survived childhood cancer are sparse.…”

Section: Introductionmentioning

confidence: 99%

“…When a child is diagnosed with cancer the entire family is affected over a long time period (Björk, Nordström, Wiebe, & Hallström, 2011;Björk, Wiebe, & Hallström, 2005Woodgate & Degner, 2003). During the child's cancer trajectory the family experienced that their lifeworld changed.…”

Section: Introductionmentioning

confidence: 99%

“…Their own family became even more important and to be able to handle the situation, they needed support from family, friends and other close people. They also needed to have a good relation to the professionals (Björk, et al, 2011;Björk et al, 2005Björk et al, , 2009). As more children survive cancer today, it becomes important to generate knowledge about family situations and their needs after the treatment trajectory.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Living an Everyday Life Through a Child’s Cancer Trajectory

Sundler

Hallström

Hammarlund

et al. 2013

J Pediatr Oncol Nurs

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The aim of this study was to illuminate the lived experiences of families where a child had survived 7 years from a diagnosis of childhood cancer. This article describes one part of an inductive and longitudinal research project that included 17 families. Four families whose child was diagnosed with cancer 7 years previously were interviewed using a hermeneutical phenomenological approach. The families lived experience was described in one essential theme, “Living an everyday life through the child’s cancer trajectory,” further illuminated in 3 related themes: “Leaving the disease behind yet feeling its presence,” “Being the same yet always different,” and “Feeling stronger yet vulnerable.” The results suggest that family members feel vulnerable even if a long period of time has passed since completion of treatment. To varied degrees they still may need support. When moving forward in life, the family members are helped if they can reconcile their memories and experiences derived from the childhood cancer trajectory.

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Well siblings of children with chronic illness: A synthesis research study

Havill

Fleming

Knafl

2019

Research in Nursing & Health

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Well siblings of chronically ill children experience family disruptions that profoundly affect them. Previous research focusing on well siblings’ experiences has often produced inconsistent findings, likely the result of varying study designs and samples. The purposes of this synthesis research study were twofold: (a) to assess the applicability of existing grounded theory of sibling response to a child's cancer to a wider range of childhood conditions; and (b) to refine the existing theory to reflect the experiences of the broader sample. Data for the synthesis came from a National Institute of Nursing Research‐funded mixed‐methods synthesis examining the intersection of childhood chronic illness and family life. The current analysis was based on well sibling results extracted from 78 research reports published between 2000 and 2014. An existing grounded theory, Creating a Tenuous Balance (CTB), was discovered at the outset of analysis and used as the primary framework for coding and synthesizing results. The focus of most studies was siblings’ responses to 14 chronic conditions, with cancer being the most often studied. Results reflected siblings’ perspectives of their experiences as well as perspectives of parents and the ill child. The analysis substantiated all four patterns of sibling behavior included in CTB, with the patterns of adapting to changes in personal and family life, and handling strong emotions being especially challenging aspects of the sibling experience. Moreover, the results expanded several aspects of CTB. The analysis provided evidence of the applicability of the theory to a varied group of chronic conditions and enabled us to identify important areas for developing interventions to support siblings.

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Returning to a changed ordinary life - families' lived experience after completing a child's cancer treatment

Cited by 42 publications

References 16 publications

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Living an Everyday Life Through a Child’s Cancer Trajectory

Well siblings of children with chronic illness: A synthesis research study

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