Review of Community-Engaged Research in Pediatric Diabetes

Abstract

Studies were focused on African American, Hispanic, and Native American youth. Most studies aimed to develop and evaluate preventive interventions for type 2 diabetes. Across studies, the community partners and organizations that collaborated with researchers were diverse (e.g., youth, schools). In most studies, community partners participated in developing behavioral, psychosocial, or public health interventions, and/or participant recruitment. Fewer studies reported intensive involvement in other aspects of the research (e.g., grant writing, publication). The findings suggested that CER is a feasible approach for engaging community partners in the development of interventions and participant recruitment in studies focused on diabetes among minority youth.

Achieving Equity in Diabetes Research: Borrowing From the Field of Quality Improvement Using a Practical Framework and Improvement Tools

“…Research teams should aim beyond diverse participation and incorporate diverse patient voices and leadership in research efforts wherever possible. This effort supports more meaningful research with sustainable results and impact ( 27 , 28 ), especially in racially/ethnically minoritized groups and in the lesbian, gay, bisexual, and transsexual community. The National Institutes of Health and National Institute of Diabetes and Digestive and Kidney Diseases have also strongly encouraged incorporation of stakeholder groups in research ( 29 ) and have set up new initiatives that provide funding to recruit underserved minorities on clinical research staff ( 30 ).…”

Optimizing Recruitment of Black Adolescents into Behavioral Research: A Multi-Center Study

“…BIPOC adolescents with T1D are at even higher risk for suboptimal diabetes-related health outcomes than White youth (Redondo et al, 2018;Semenkovich et al, 2019;Willi et al, 2015). Despite this, clinical trials focusing on the development of effective behavioral interventions to promote optimal illness management among BIPOC adolescents with T1D are lacking (Butler et al, 2018;Morone, 2019). The few that have been done were predominantly pilot trials with relatively small samples (Ellis et al, 2019).…”

Qualitative analysis of stakeholder perspectives on engaging Latinx patients in kidney-related research

“…To sustain partnerships, stakeholders also recommended that research teams maintain personal communication with community partners and demonstrate reciprocity (by volunteering or participating in community events); this is consistent with previous recommendations in the literature [ 21 , 36 ]. Importantly, it is well documented that CBPR has informed many successful interventions among Latinx research participants with varying chronic diseases [ 21 , 29 , 36 – 40 ].…”