Review of Occupational Therapy Research in the Practice Area of Children and Youth

Bendixen, Roxanna; Kreider, Consuelo M.

doi:10.5014/ajot.2011.000976

Cited by 26 publications

(23 citation statements)

References 52 publications

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“…This requires that families are provided with information on community-based opportunities, and the strategies and environmental modifications available to allow their children to participate. This also requires addressing participation when measuring outcomes [ 27 ].…”

Section: Resultsmentioning

confidence: 99%

Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy

Bendixen

Lott

Senesac

et al. 2014

Disability and Rehabilitation

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Purpose While most studies of Duchenne muscular dystrophy (DMD) have focused on physical impairment, there is a need to explore how impairment impacts real life experiences in order to provide intervention strategies focused on participation. Objectives were: 1) to investigate the domains of participation in a sample of boys with Duchenne muscular dystrophy; 2) to compare a younger (<10 years) and older (≥10 years) group of boys with DMD with regard to participation; 3) to investigate strength and timed functional tests in a sample of boys with Duchenne muscular dystrophy; 4) to compare a younger (<10 years) and older (≥10 years) group of boys with DMD with regard to strength and timed functional tests; and 5) to explore associations between participation and strength and timed functional tests for our DMD cohorts. Methods This cross-sectional study included sixty boys with DMD (mean 9.3 years ±0.3). Boys completed strength testing, timed functional tests, the Children’s Assessment of Participation and Enjoyment and the ACTIVLIM. Independent samples t-tests were used to test for differences in all measures between our younger and older cohorts; Spearman’s (rank) correlation was used to assess relationships between participation and strength and time functional tests. Results Significant differences were found between our younger and older boys with DMD in the areas of recreational (p≤0.01), social (p≤0.001), and skill-based activities (p≤0.05), as well as with whom and where the activities were performed (p≤0.05 and 0.001, respectively). Older boys with DMD report lower levels of participation in these areas, as well as less engagement in activities with individuals other than family members and less participation outside of the home. Lower levels of strength and slower rates of functional performance correlate with participation in fewer physical activities for our younger cohort and fewer physical and social activities for our older cohort. Conclusions Strength and function relate to the variability and type of activities in which boys with DMD participate. A key finding is the significant decline in social activities and community-based engagement as the boys with DMD age. The ultimate goal of an intervention is for our children to be as actively engaged in life as they desire. This requires addressing participation when measuring outcomes in order to more fully understand limitations and provide appropriate strategies for continued participation for boys and their families.

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Section: Resultsmentioning

confidence: 99%

Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy

Bendixen

Lott

Senesac

et al. 2014

Disability and Rehabilitation

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“…Performing everyday activities is a basic human need (Law et al 2005), a key element for wellbeing and an important determinant of health for children of all ages (Asbjornslett and Hemmingsson2008;Bendixen and Kreider 2011;Law et al 2005). Performing activities is the most important part of participation (Eriksson and Granlund 2004).…”

Section: Introductionmentioning

confidence: 99%

The Perspectives and Values of Children with a Mitochondrial Disorder with Regard to Everyday Activities

et al. 2019

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Engagement for children with mitochondrial disorder is not self evident. To develop personalised and value-based care for this population, we require knowledge about their perspectives and values with regards to everyday activities. To gain insight into children's perspective on activities by (1) asking what activities they perform, (2) how they perform them, (3) how they experience these activities and (4) their wants and needs. Seven semistructured content analyzed interviews. The interviews identified a variety of activities. The overarching themes on wants/needs were 'I want to meet up with others whenever I want to','I want to be able to…', 'I don't want to…' and 'Dream'. These themes were interconnected to thirteen other themes that captured how children experience and perform activities, for example, 'Because I can decide by myself', 'Because I can do it on my own' and 'It is more fun to do things with other people'. The activities children performed represent regular childhood activities. The identified themes fit with the three aspects of the self-determination theory: autonomy, competence and relatedness. This study exposed the broad child perspective and should provide better understanding of children's choices in their participation in everyday activities.

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“…Despite considerable theoretical development of what is meant by occupation-centered practice (Townsend & Polatajko, 2007), the call for effective occupationcentered interventions continues (Bendixen & Kreider, 2011). Our study examined the effectiveness of OPC in improving children's and parents' occupational performance and parents' self-competence.…”

mentioning

confidence: 99%

Effectiveness of Occupational Performance Coaching in Improving Children's and Mothers' Performance and Mothers' Self-Competence

Graham

Rodger

Ziviani

2012

American Journal of Occupational Therapy

105

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Review of Occupational Therapy Research in the Practice Area of Children and Youth

Cited by 26 publications

References 52 publications

Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy

Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy

The Perspectives and Values of Children with a Mitochondrial Disorder with Regard to Everyday Activities

Effectiveness of Occupational Performance Coaching in Improving Children's and Mothers' Performance and Mothers' Self-Competence

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