Review Strategies to Recruit and Retain Rural Patient Participating Self-management Behavioral Trials

Young, Lufei; Barnason, Susan; Do, Van

doi:10.4148/1936-0487.1070

Cited by 24 publications

(22 citation statements)

References 25 publications

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“…However, our study did have more female participants than have been reported in other studies. During recruitment, we found women more willing than men to participate in the study [ 15 , 25 , 26 ]. Field notes indicated women were more likely to believe SM had positive effects on their sustained independence and HF symptom relief, felt more isolated and more often sought social interactions with the research team, and had greater interest in learning SM strategies.…”

Section: Discussionmentioning

confidence: 99%

Effects of a home-based activation intervention on self-management adherence and readmission in rural heart failure patients: the PATCH randomized controlled trial

Young

Hertzog

Barnason

2016

BMC Cardiovasc Disord

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171

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BackgroundHeart failure (HF) patients discharged from rural hospitals have higher 30-day readmission rates. Self-management (SM) reduces readmissions, but adherence to SM guidelines is low in the rural HF population. We tested a home-based intervention to enhance patient activation and lead to improved SM adherence.MethodsIn this two-group, repeated measures randomized control trial, the main outcomes were patient reported and clinical outcomes associated with SM adherence, and all-cause readmission at 30, 90 and 180 days.ResultsThe study included 100 HF patients discharged from a rural critical access hospital. The intervention group received a 12-week SM training and coaching program delivered by telephone and tailored on subjects’ activation levels. At α = .10, the PATCH intervention showed significantly greater improvement compared to usual care in patient-reported SM adherence: weighing themselves, following a low-sodium diet, taking prescribed medication, and exercising daily (all p < .0005) at 3 and 6 months after discharge. In contrast, groups did not differ in physical activity assessed by actigraphy or in clinical biomarkers. Contrary to expectation, the 30-day readmission rate was significantly higher (p = .088) in the intervention group (19.6 %) than in the control group (6.1 %), with no differences at 90 or 180 days.ConclusionIt is feasible to conduct a randomized controlled trial in HF patients discharged from rural critical access hospitals. Significantly higher patient-reported SM adherence was not accompanied by lower clinical biomarkers or readmission rates. Further research is needed to understand mechanisms that influence outcomes and healthcare utilization in this population.Trial registrationClinical Trial Registration Information: ClinicalTrials.gov; NCT01964053.

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Section: Discussionmentioning

confidence: 99%

Effects of a home-based activation intervention on self-management adherence and readmission in rural heart failure patients: the PATCH randomized controlled trial

Young

Hertzog

Barnason

2016

BMC Cardiovasc Disord

Self Cite

171

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“…This may help ensure that the study sample reflects the national sociodemographic and clinical characteristics. Vulnerable individuals from minorities and rural areas may be engaged in HPR through community-based formal and informal organizations and stakeholders, such as places of worship, religion study groups, community centers, and through community leaders, chiefs, and elders [ 20 ]. This strategy has rarely been used in population-based or clinical HPR but has been widely used in community-based participatory research.…”

Section: Challenges and Potential Solutionsmentioning

confidence: 99%

Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond

et al. 2021

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The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no “one size fits all” solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future.

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“…Similarly, 94% of young adults aged 18 to 29 years and 65% of adults in rural communities own a smartphone [20]. Adoption of web-based surveys for data collection is likely to appeal to young people, who grew up with computers and use them in virtually all aspects of their lives, while reducing transportation and other costs that serve as barriers to engaging in traditional clinical trials [21][22][23][24]. With respect to retaining young people in longitudinal studies, there was no clear recommendation on incentives to maximize retention, as previous studies had identified multiple means, including increasing participant payments, conducting sweepstakes, providing bonuses, and sending reminder postcards [25][26][27][28].…”

Section: Introductionmentioning

confidence: 99%

Recruiting and Retaining Youth and Young Adults in the Policy and Communication Evaluation (PACE) Vermont Study: Randomized Controlled Trial of Participant Compensation (Preprint)

Villanti¹,

Vallencourt²,

West³

et al. 2020

Preprint

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BACKGROUND The standard approach for evaluating the effects of population-level substance use prevention efforts on youth and young adult perceptions and behaviors has been to compare outcomes across states using national surveillance data. Novel surveillance methods that follow individuals over shorter time intervals and capture awareness of substance use prevention policy and communication efforts may provide a stronger basis for their evaluation than annual cross-sectional studies. OBJECTIVE This study aimed to identify a combination of strategies to recruit a sample of youth and young adults sufficiently representative of the Vermont population and determine how best to retain a web-based panel of youth and young adults over a 6-month period. METHODS Eligible participants were Vermont residents aged 12 to 25 years who were willing to complete three 10 to 15-minute web-based surveys over a 6-month period. Recruitment was conducted via the following three main mechanisms: (1) web-based recruitment (paid and unpaid), (2) community-based recruitment through partners, and (3) participant referrals via a personalized link. Upon completion of the baseline survey, participants were randomly assigned to one of the following three retention incentive conditions: (1) guaranteed incentive (US $10), (2) lottery incentive (US $50 weekly lottery drawing), and (3) preferred method (guaranteed or lottery). Analyses examined cost per survey start by recruitment source, distribution of demographic characteristics across incentive conditions, and retention by study condition at 3-month and 6-month follow-ups. RESULTS Over a 10-week period in 2019, we recruited 480 eligible youth (aged 12-17 years) and 1037 eligible young adults (aged 18-25 years) to the Policy and Communication Evaluation (PACE) Vermont Study. Facebook and Instagram advertising produced the greatest number of survey starts (n=2013), followed by posts to a state-wide web-based neighborhood forum (n=822) and Google advertisements (n=749). Retention was 78.11% (1185/1517) at 3 months and 72.18% (1095/1517) at 6 months. Retention was equivalent across all incentive study conditions at both waves, despite a strong stated preference among study participants for the guaranteed payment at baseline. Youth had greater retention than young adults at both waves (wave 2: 395/480, 82.3% vs 790/1037, 76.18%; wave 3: 366/480, 76.3% vs 729/1037, 70.30%). Substance use prevalence in this cohort was similar to national and state-level surveillance estimates for young adults, but was lower than state-level surveillance estimates for youth. Most participants retained at wave 3 provided positive qualitative feedback on their experience. CONCLUSIONS Our study supports the feasibility of recruiting a web-based cohort of youth and young adults with representation across an entire state to evaluate substance use prevention efforts. Findings suggest that a guaranteed payment immediately upon survey completion coupled with a bonus for completing all survey waves and weekly survey reminders may facilitate retention in a cohort of youth and young adults.

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Review Strategies to Recruit and Retain Rural Patient Participating Self-management Behavioral Trials

Cited by 24 publications

References 25 publications

Effects of a home-based activation intervention on self-management adherence and readmission in rural heart failure patients: the PATCH randomized controlled trial

Effects of a home-based activation intervention on self-management adherence and readmission in rural heart failure patients: the PATCH randomized controlled trial

Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond

Recruiting and Retaining Youth and Young Adults in the Policy and Communication Evaluation (PACE) Vermont Study: Randomized Controlled Trial of Participant Compensation (Preprint)

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