Risk factors and quality of life of patients with high diabetes-related distress in primary care: a cross-sectional, multicenter study

Lim, Sze Mian; Siaw, Melanie Yee Lee; Tsou, Keith Yu Kei; Kng, Kwee Keng; Lee, Joyce Yu‐Chia

doi:10.1007/s11136-018-1994-1

Cited by 10 publications

(7 citation statements)

References 34 publications

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“…High diabetes-related distress was more common among younger patients and patients with poorer glycemic control. High diabetes-related distress was associated with poorer quality of life and early screening and management of DRD is recommended 30. Consequently, the medical and nursing support for diabetic patients needs to be strengthened.…”

Section: Discussionmentioning

confidence: 99%

<p>A survey on glycemic control rate of type 2 diabetes mellitus with different therapies and patients’ satisfaction in China</p>

Dong¹,

Huang²,

Liu³

et al. 2019

PPA

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Aim To compare the blood glucose control of patients with type 2 diabetes mellitus (T2DM) with different treatment methods, oral hypoglycemic agents (OHA) monotherapy, insulin injection and combined therapy (OHA + insulin injection) and evaluate their satisfaction with the medical care. Methods A total of 1512 T2DM patients were assessed, to compare the effects of different treatment methods on glycemic control in T2DM patients, the influencing factors of patients’ satisfaction with medical care measures and their relationship with glycemic control. Fasting plasma glucose (FPG), 2 hrs postprandial plasma glucose (2hPG) and HbA1c were measured as the standard of the glycemic control. Satisfaction was defined using the simplified version of DAWN of chronic disease care patient scale (PACIC - DSF). Results In this study, the FPG compliance rate, 2hPG compliance rate and HbA1c compliance rate were 25.5%, 22.7% and 19.5%, respectively. The differences in the glycemic control compliance rates of different treatment methods were not statistically significant. The total score of PACIC - DSF was 34.54±11.65( p >0.05), and the influencing factors included fast blood glucose (FBG) and 2hPG, 2hPG and PACIC - DSF were negatively correlated. Conclusions The T2DM glycemic control rate in China is currently low. From the score of the PACIC - DSF, there is no significant difference in general satisfaction with medical care measures in different treatments. What is more, education level, occupation and exercise of patients with type 2 diabetes had influence on PACIC - DSF score. Different treatment methods have no influence on the glycemic control of patients with T2DM. FPG value and the 2hPG value are negative correlation with the satisfaction of patients in medical care measures.

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Section: Discussionmentioning

confidence: 99%

<p>A survey on glycemic control rate of type 2 diabetes mellitus with different therapies and patients’ satisfaction in China</p>

Dong¹,

Huang²,

Liu³

et al. 2019

PPA

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“…Diabetes-related distress reflects the person’s emotional response to the burden of living with a largely self-managed chronic disease and its complications 2 . Diabetes-related distress in people with type 2 diabetes is a prominent condition with an overall prevalence of 36%, associated with female gender and comorbid depression 3 and a poorer quality of life 4 . Some studies confirmed that elevated diabetes-related distress was experienced by 20–30% of people with T1DM, suggesting a widespread clinical problem in this population as well 5 .…”

Section: Introductionmentioning

confidence: 99%

Prevalence and predictors of diabetes-related distress in adults with type 1 diabetes

Grulovic

Kuzman

Baretić

2022

Sci Rep

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Type 1 diabetes (T1DM) is a chronic disease requiring lifelong insulin therapy and rigorous self-management. As it negatively impacts the affected individuals’ quality of life, it may eventually lead to diabetes-related distress. This study evaluated the prevalence and identified the predictors of diabetes-related distress in a representative sample of adults with T1DM treated at secondary and tertiary levels in Croatia. A multicenter, cross-sectional study was conducted in adults with T1DM in Croatia (N = 100). Data were collected between January 2018 and December 2018 from medical records and interviews during a single clinical visit, when participants completed a 20-item Problem Area in Diabetes (PAID) Questionnaire. The proportion of participants with a total PAID score ≥ 40 indicating high diabetes-related distress was calculated, and binary logistic regression was run to determine predictors. High diabetes-related distress was found in 36% of participants, with a mean PAID total score of 31.9 (21.1). The predictors of diabetes-related distress were higher HbA1c level (OR = 1.491, p = 0.037, CI = 1.025–2.169) and the presence of microvascular complications (OR = 4.611, p = 0.005; 95%CI 1.546–13.754). Worrying about the future and chronic complications and feeling guilty when off-track with diabetes management were identified as items that contribute the most to distress. Diabetes-related distress is a frequent condition in adults with T1DM in Croatia. Special attention should be given to patients with suboptimal glycemic control and microvascular complications. Given the high prevalence and impact of psychosocial problems in diabetes, psychological care should be integrated into routine care for adults with type 1 diabetes.

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“…Patients with diabetes are often under significant psychological distress because of strict adherence to medications, changes in their daily activities, patterns such as diet and exercise, and fear of long-term macrovascular and microvascular complications, which will undermine their QoL [48]. Diabetes-related distress is defined as patients' concerns about the self-management of diabetes, perception of support, emotional burden, and access to quality healthcare [49], and is associated with poorer glycemic control and QoL [50][51][52]. This life experience of the individual with diabetes needs to be measured to provide strategies to cope with diabetes-related distress and properly achieve patientcentered care [53].…”

Section: Discussionmentioning

confidence: 99%

“…Diabetes-related distress is defined as patients’ concerns about the self-management of diabetes, perception of support, emotional burden, and access to quality healthcare [ 49 ], and is associated with poorer glycemic control and QoL [ 50 – 52 ]. This life experience of the individual with diabetes needs to be measured to provide strategies to cope with diabetes-related distress and properly achieve patient-centered care [ 53 ].…”

Section: Discussionmentioning

confidence: 99%

Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments

Martín-Delgado

Guilabert

Mira

2021

Patient

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Background Diabetes mellitus is a global public health concern, with over 463 million people living with this chronic disease. Pathology complexity, management difficulty, and limited participation in care has resulted in healthcare systems seeking new strategies to engage people living with diabetes. Patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) were developed to address the gap between the healthcare system expectation and patient preference. Objective This study aimed to review the existing literature on PREMs and PROMs specific to type 1 and 2 diabetes, and report the dimensions report the dimensions they have measured. Methods A scoping review was conducted from January 1985 to March 2020 of six databases, MEDLINE, EMBASE, PsycINFO, CINHAL, Scopus, and BiblioPro, to identify PREM and PROM instruments specific for type 1 and 2 diabetes. Results Overall, 34 instruments were identified, 32 PROMs and two PREMs. The most common instrument included outcomes related to quality of life at 44% (n = 15), followed by satisfaction (whether with treatment, device, and healthy habits) at 26% (n = 9). Furthermore, instruments regarding personal well-being accounted for 15% (n = 5). For instruments that measure experiences of persons with diabetes, there were two scales of symptoms, and one related to the attitude patients have toward the disease. Conclusions Diabetes-specific validated instruments mainly focus on quality of life, education, and treatment, and sometimes overlap each other, in their subscales and assessment dimensions. Constructs such as cultural and religious beliefs, leisure, and work life may need more attention. There appears to be a gap in instruments to measure experiences of individuals who "live with diabetes" and seek to lead a "normal life." Key Points for Decision MakersDisease-specific instruments are tailored to patient needs, avoiding irrelevancies from other generic measures.

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Risk factors and quality of life of patients with high diabetes-related distress in primary care: a cross-sectional, multicenter study

Abstract: High DRD was more common among younger patients and patients with poorer glycemic control. High DRD was associated with poorer quality of life and early screening and management of DRD is recommended.

Cited by 10 publications

References 34 publications

<p>A survey on glycemic control rate of type 2 diabetes mellitus with different therapies and patients’ satisfaction in China</p>

<p>A survey on glycemic control rate of type 2 diabetes mellitus with different therapies and patients’ satisfaction in China</p>

Prevalence and predictors of diabetes-related distress in adults with type 1 diabetes

Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments

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