Risk Factors for Developing Prolonged Grief During Bereavement in Family Carers of Cancer Patients in Palliative Care: A Longitudinal Study

Thomas, Kristina; Hudson, Peter; Trauer, Tom; Remedios, Cheryl; Clarke, David M.

doi:10.1016/j.jpainsymman.2013.05.022

Cited by 119 publications

(164 citation statements)

References 39 publications

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“…O instrumento já foi validado para a população portuguesa (Delalibera, Coelho, & Barbosa, 2011) e italiana (De Luca et al, 2015) e tem sido utilizado em vários estudos com enlutados (Hudson, Thomas, Trauer, Remedios, & Clarke, 2011;Thomas, Hudson, Trauer, Remedios, & Clarke, 2014;Wiese et al, 2010). Nas validações encontradas, a estrutura fatorial do instrumento manteve-se igual ao questionário original e apresentou elevados valores de consistência interna (versão portuguesa 0,932, versão italiana 0,93).…”

Section: Introductionunclassified

Adaptação e validação brasileira do instrumento de avaliação do luto prolongado – PG-13

Delalibera

Franco

et al. 2017

Psicologia - Teoria E Prática

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Resumo: O luto pode ser definido como um conjunto de reações emocionais, físicas, comportamentais e sociais que surgem como resposta a uma perda significativa. O objetivo do estudo foi traduzir, adaptar e validar para a população brasileira o instrumento de avaliação do luto prolongado PG-13. A amostra foi constituída por 115 familiares enlutados que preencheram um questionário on-line. Desses familiares, 76,5% eram do sexo feminino, 50,4% casados, idade média de 41,32 anos, e com tempo médio de luto de 29,29 meses. A incidência de luto prolongado foi de 10,43%. Todos os itens do modelo reestruturado do PG-13 apresentaram pesos fatoriais superiores a 0,5, eram estatisticamente significativos e com confiabilidades individuais adequadas. A consistência interna foi de 0,940 e a validade convergente avaliada pela VEM foi de 0,593. É possível concluir que o PG-13 apresenta confiabilidade individual, de construto e validade convergente, podendo assim contribuir para o diagnóstico do luto prolongado.Palavras-chave: estudos de validação; psicometria; luto; luto prolongado; PG-13. ADAPTATION AND VALIDATION FOR THE BRAZILIAN POPULATION TO ASSESS-MENT INSTRUMENT PROLONGED GRIEF DISORDER -PG-13Abstract: Grief may be defined as a set of emotional, physical, behavioral, and social reactions that appear in response to a significant loss. The study aims at translating, adapting and validating, for the Brazilian population, the assessment tool of prolonged grief PG-13. The sample consisted of 115 bereaved family members who completed a questionnaire online. Of these families, 76,5% were female, 50,4% were married, mean age of 41,32 years and a mean time of grief 29,29 months. The incidence of prolonged grief was 10,43%. All items on the restructured model PG-13 showed higher factor weights 0,5, they were statistically significant and had appropriate individual reliabilities. The Cronbach's alpha was 0,940 and the convergent validity assessed by VEM was 0,593. Therefore, we conclude that the PG-13 has individual and construct reliability and convergent validity that could also contribute to the diagnosis of prolonged grief.

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Section: Introductionunclassified

Adaptação e validação brasileira do instrumento de avaliação do luto prolongado – PG-13

Delalibera

Franco

et al. 2017

Psicologia - Teoria E Prática

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“…Caregivers who experience high levels of emotional distress and/or stressful events during the patient’s cancer may be particularly vulnerable to intense emotional distress during bereavement (Kapari et al, 2010; Tomarken et al, 2008). Finally, lack of emotional preparedness for the death (Barry et al, 2002; Lobb et al, 2010) and low social support (Kurtz et al, 1997; Thomas et al, 2014) can place caregivers at greater risk.…”

Section: Risk Factorsmentioning

confidence: 99%

Development of the Bereavement Risk Inventory and Screening Questionnaire (BRISQ): Item generation and expert panel feedback

et al. 2016

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Objectives Following the loss of a loved one to cancer, a significant subset of bereaved family members are at heightened risk for mental and physical health problems; however, often these family members “fall through the cracks” in the healthcare system. A brief, clinically useful self-report bereavement risk screening tool could facilitate more effective identification of family members in need of psychosocial support before and after a cancer loss. Thus, the purpose of this study was to develop and refine the Bereavement Risk Inventory and Screening Questionnaire (BRISQ), a self-report bereavement screening tool, and to assess its utility using feedback from bereavement experts. Methods Quantitative and qualitative feedback from a panel of 15 clinical and research experts in bereavement was obtained through an online survey to identify the most clinically useful items and understand expert opinion on bereavement screening. Results The qualitative and quantitative feedback was synthesized, resulting in a 22% reduction of the item pool. While there was a general consensus between experts on the most clinically useful risk factors for bereavement-related mental health challenges and on the utility of screening, they also offered feedback on language and formatting that guided substantial revisions to the BRISQ. Significance of Results These findings were used to refine the BRISQ in preparation for a second study to obtain family member feedback on the measure. By incorporating both expert and family member feedback, the intention is to create a screening tool that represents top clinical and research knowledge in bereavement in a way that effectively addresses barriers to care.

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“…Approximately 10 % of bereaved individuals will go on to develop complicated grief, a prolonged expression of grief symptoms which can lead to increased risk of physical illness, poorer quality of life, depression and suicidality [9, 10]. Risk factors for complicated grief are not often studied, and the effect of education on mental health following bereavement has produced conflicting results [11, 12]. In addition, most of the associated studies have focused only on subgroups of the population [13].…”

Section: Introductionmentioning

confidence: 99%

Education as a predictor of antidepressant and anxiolytic medication use after bereavement: a population-based record linkage study

et al. 2016

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PurposeEducational attainment has been shown to be positively associated with mental health and a potential buffer to stressful events. One stressful life event likely to affect everyone in their lifetime is bereavement. This paper assesses the effect of educational attainment on mental health post-bereavement.MethodsBy utilising large administrative datasets, linking Census returns to death records and prescribed medication data, we analysed the bereavement exposure of 208,332 individuals aged 25–74 years. Two-level multi-level logistic regression models were constructed to determine the likelihood of antidepressant medication use (a proxy of mental ill health) post-bereavement given level of educational attainment.ResultsIndividuals who are bereaved have greater antidepressant use than those who are not bereaved, with over a quarter (26.5 %) of those bereaved by suicide in receipt of antidepressant medication compared to just 12.4 % of those not bereaved. Within individuals bereaved by a sudden death, those with a university degree or higher qualifications are 73 % less likely to be in receipt of antidepressant medication compared to those with no qualifications, after full adjustment for demographic, socio-economic and area factors (OR 0.27, 95 % CI 0.09,0.75). Higher educational attainment and no qualifications have an equivalent effect for those bereaved by suicide.ConclusionsEducation may protect against poor mental health, as measured by the use of antidepressant medication, post-bereavement, except in those bereaved by suicide. This is likely due to the improved cognitive, personal and psychological skills gained from time spent in education.Electronic supplementary materialThe online version of this article (doi:10.1007/s11136-016-1440-1) contains supplementary material, which is available to authorized users.

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Risk Factors for Developing Prolonged Grief During Bereavement in Family Carers of Cancer Patients in Palliative Care: A Longitudinal Study

Abstract: Screening family carers on entry to palliative care seems to be the most effective way of identifying who has a higher risk of developing PG. We recommend screening carers six months after the death of their relative to identify most carers with PG.

Cited by 119 publications

References 39 publications

Adaptação e validação brasileira do instrumento de avaliação do luto prolongado – PG-13

Adaptação e validação brasileira do instrumento de avaliação do luto prolongado – PG-13

Development of the Bereavement Risk Inventory and Screening Questionnaire (BRISQ): Item generation and expert panel feedback

Education as a predictor of antidepressant and anxiolytic medication use after bereavement: a population-based record linkage study

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