Risk Factors for Potentially Harmful Informal Caregiver Behavior

Beach, Scott R.; Schulz, Richard; Williamson, Gail M.; Miller, L. Stephen; Weiner, Myron; Lance, Charles E.

doi:10.1111/j.1532-5415.2005.53111.x

Cited by 300 publications

(253 citation statements)

References 16 publications

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“…HRQOL refers to the physical and mental aspects of health (Testa & Simonson, 1996), which directly correlates with the caregiver's health, and also impacts on the quality of care they provide to children with ASD and their resultant rehabilitation (Beach et al, 2005). Therefore, it is important to identify the predictors of HRQOL and provide effective interventions to caregivers of children with ASD.…”

Section: Accepted M Manuscriptmentioning

confidence: 99%

Predictors of Health-Related Quality of Life in Chinese Caregivers of Children With Autism Spectrum Disorders: A Cross-Sectional Study

Zhao

Turner

et al. 2014

Archives of Psychiatric Nursing

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The purpose of this study was to identify the predictors of health-related quality of life (HRQOL) among caregivers of children with autism spectrum disorders (ASD) in China. Two hundred and seventy-three caregivers were surveyed using questionnaires on HRQOL, family functioning, coping style, social support, and caregiver burden. Besides socio-demographic characteristics of children with ASD and their caregivers, results demonstrate that family functioning, coping style, social support, caregiver burden are predictors of HRQOL in caregivers of children with ASD, and these predictors correlated with each other.These results indicate that comprehensive intervention, which focuses on improving caregivers' coping strategies, social support (especially from family members and friends) and family functioning, and on releasing caregiver burden, should be provided to caregivers of children with ASD.Keywords: autism spectrum disorder, caregivers, quality of life Studies show that caring for a child with an ASD can be challenging and substantially affects caregivers' health-related quality of life (HRQOL) (Khanna et al., 2011; Kheir et al, 2012; Yamada et al., 2012). HRQOL refers to the physical and mental aspects of health (Testa & Simonson, 1996), which directly correlates with the caregiver's health, and also impacts on the quality of care they provide to children with ASD and their resultant rehabilitation (Beach et al., 2005). Therefore, it is important to identify the predictors of HRQOL and provide effective interventions to caregivers of children with ASD. A C C E P T E D M A N U S C R I P T ACCEPTED MANUSCRIPTPredictorsIn terms of predictors of HRQOL, studies conducted in the USA indicate that coping skills (Zablotsky, Bradshaw & Stuart., 2013), social support (Zablotsky, Bradshaw & Stuart.,2013 ), (Yang & Kleinman, 2008). These cultural concerns can have an adverse effect on the informal support caregivers need. In China, autism rehabilitation centres are mostly privately operated. Previous studies have found that teachers in these autism rehabilitation centres have limited knowledge and several misconceptions regarding autism spectrum disorders (Yang, Guo & Qian, 2012; Zhang, Li, Mao, Wang & Geng, 2012). These may cause lack of formal support among caregivers, because teachers in these autism rehabilitation centres are caregivers' main source of formal support. Several studies reported that parents of children with ASD exhibited lower mental health (Liu et al., 2006) and poorer quality of life (Xie, Liu & Zhang, 2012; Zhou et al., 2010), and were more likely to develop depression and anxiety compared with parents of children with typical development (Guo, Li & Zou, 2006). Researchers have found that caregivers of children with ASD and general population only have limitedknowledge about autism spectrum disorders in China (Wang et al., 2013; Wang, Huang, Xiao, Xie, and Chen, 2009 Methods Study Design and Data CollectionThis is a cross-sectional study, conducted in 15 autism centres in Hunan Provi...

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Section: Accepted M Manuscriptmentioning

confidence: 99%

Predictors of Health-Related Quality of Life in Chinese Caregivers of Children With Autism Spectrum Disorders: A Cross-Sectional Study

Zhao

Turner

et al. 2014

Archives of Psychiatric Nursing

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“…The difference between the two groups was statistically significant. In Mohammed Ali Heidari Gorji and Zinnatossadat Bouzar study, Beach SR and Schulz R study, 25 there were more mild and moderate depression among cancer caregivers. But in our study, equal prevalence of mild and severe depression among cancer caregivers was noted.…”

Section: Discussionmentioning

confidence: 99%

A Comparative Study of Severity of Depression Among Caregivers of Patients Suffering From Dementia and Cancer

Punithavathi¹,

W.J²,

R³

et al. 2017

jemds

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BACKGROUNDDue to declining global fertility transition and mortality rates, population ageing is a public health challenge. Dementia contributes to a significant proportion of DALY. People with dementia require high level of long-term care and causes burden to the caregivers, both physically and mentally and more prone to depression. The other leading cause of morbidity and mortality in the world is cancer. Because of advancement in palliative care treatment, long-term care is needed for the patients producing definite disturbances in the physical and psychological well-being of the caregivers.The aim of the study is to compare the prevalence of depressive symptoms among the caregivers of patients with Dementia and Cancer.

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“…The nature of the caregiving role itself may further contribute to mistreatment. Risk factors for abusive behavior in caregivers include whether they are married to their partners with disabilities, caregiver physical symptoms, and caregivers' clinical depression (Beach et al, 2005). One study found that caregiver resentment strongly predicted potentially harmful behavior (Shaffer et al, 2007), while a related study concluded that the caregiver feeling like a victim and blaming the person with disabilities were salient predictive variables .…”

Section: Factors Associated With Mistreatmentmentioning

confidence: 99%

Views on disclosing mistreatment: A focus group study of differences between people with MS and their caregivers

Shapiro

Wiglesworth

Morrison³

2013

Multiple Sclerosis and Related Disorders

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Both female and male persons with MS are at increased risk for various forms of physical, sexual, and disability-specific abuse. An ongoing study revealed a subset of respondents in which the caregiver acknowledged mistreatment of the person with MS, but that person either denied or minimized mistreatment Methods:In an effort to understand this phenomenon, we conducted 4 focus groups of male caregivers, female caregivers, male persons with MS, and female persons with MS (total n =15). Data were analyzed using qualitative methodology Results: Results included the surprising finding that, despite participants having been identified as recipients or perpetrators of mistreatment, all denied any form of abuse in the focus group setting. We concluded that attitudes toward mistreatment in these discrepant couples varied based on gender. Specifically, male caregivers may disclose abuse as a cry for help, whereas female caregivers may feel such behavior is justified because of the perceived ''provocations'' of the person with MS. Women with MS appeared reluctant to acknowledge abuse because they feared loss of their primary relationship; while men with MS calculated that putting up with a certain amount of mistreatment was worthwhile Conclusion: More attention should be paid in identifying and understanding this subset of persons with MS and their informal caregivers.

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Risk Factors for Potentially Harmful Informal Caregiver Behavior

Cited by 300 publications

References 16 publications

Predictors of Health-Related Quality of Life in Chinese Caregivers of Children With Autism Spectrum Disorders: A Cross-Sectional Study

Predictors of Health-Related Quality of Life in Chinese Caregivers of Children With Autism Spectrum Disorders: A Cross-Sectional Study

A Comparative Study of Severity of Depression Among Caregivers of Patients Suffering From Dementia and Cancer

Views on disclosing mistreatment: A focus group study of differences between people with MS and their caregivers

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