Risk, Resilience, and the Two-Track Model of Dementia Grief Among Spouses of People Living With Cognitive Decline

Manevich, Alexander; Rubin, Simon Shimshon; Katz, Michael; Ben-Hayun, Rachel; Aharon‐Peretz, Judith

doi:10.1177/23337214231171264

Cited by 3 publications

(4 citation statements)

References 66 publications

(82 reference statements)

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“…All of these factors may increase the sense of strain, and may therefore intensify dementia grief. These data are consistent with previous research showing that strain is associated with higher levels of pre-death grief in family caregivers of people with dementia [8,16,34,47].…”

Section: Discussionsupporting

confidence: 92%

“…If this situation persists over the years of caregiving, it may even lead to the isolation of the family caregiver [12,48]. Recent studies [8,17,33] are in line with our data, indicating that social support may act as a buffer on the severity of dementia grief.…”

Section: Discussionsupporting

confidence: 88%

“…Dementia grief is a complex phenomenon that is related to psychosocial and physical variables that can have a negative impact on the quality of life of family caregivers [5,6]. This concept refers to feelings related to the anticipation of future death together with losses (social, professional, emotional, and independence losses) that occur during the experience of caring for people with dementia [4,7,8].…”

Section: Introductionmentioning

confidence: 99%

“…Some studies have reported a relationship between depressive symptoms [4,[13][14][15], strain and overload [8,15,16], and social support [17] in family caregivers with experienced dementia grief. However, few studies have analyzed these variables jointly.…”

Section: Introductionmentioning

confidence: 99%

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Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers

Sánchez-Alcón,

Garrido-Fernández,

Cano-Rojas

et al. 2024

Medicina

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Background and Objectives: Dementia grief in family caregivers of people with dementia refers to grieving prior to the death of the care recipient. It is related to psychosocial risk factors that may have a negative impact on the health of these family caregivers. This study aimed to describe the relationship between depressive symptoms, caregiver strain, and social support with dementia grief in family caregivers of people with dementia. Materials and Methods: A descriptive correlational cross-sectional study was conducted. A total of 250 family caregivers of people with dementia participated. Dementia grief was the main variable, and depressive symptoms, caregiver strain, and social support were assessed. Additionally, socio-demographic data were collected. Descriptive statistics were calculated, and a bivariate correlation analysis and a multiple linear regression analysis were performed for dementia grief. Results: Higher scores for dementia grief were found in women, in family caregivers of patients at advanced stages of dementia, and in family caregivers with a low level of education. High levels of depressive symptoms and caregiver strain and low levels of social support indicated greater intensity of dementia grief. Depressive symptomatology was the variable with the greatest influence on dementia grief. Caregiver strain and social support also related to dementia grief, but to a lesser extent. Conclusions: In family caregivers, depressive symptoms, caregiver strain, and social support are related to the intensity of dementia grief, with a greater influence of depressive symptoms. Moreover, being female, having a low level of education, and caring for a care recipient at an advanced stage of dementia are factors associated with increased dementia grief. Concerning study limitations, the sample was restricted, belonging to a specific region of Spain and to a Provincial Federation of associations. It is necessary to exercise caution in generalizing results due to the sociodemographic and geographical characteristics of the sample.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers

Sánchez-Alcón,

Garrido-Fernández,

Cano-Rojas

et al. 2024

Medicina

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Portuguese Caregivers of Persons With Alzheimer’s Disease in the Context of the COVID-19 Pandemic: A Qualitative Study of the Grieving Process

Brito,

Bernardo,

Leite

et al. 2024

Omega (Westport)

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This study addresses the experiences of informal caregivers caring for elderly family members with Alzheimer’s disease (AD) during the COVID-19 pandemic. The study includes a sample of eight informal caregivers who were evaluated through a semi-structured interview six months after the death of a loved one they cared for. A thematic content analysis was applied to the interviews and yielded two higher-order domains: (1) Experiencing the AD and the death of a family member and (2) The grieving process during the COVID-19 pandemic. The results provide valuable insights into family caregivers' experiences regarding the profound emotional impact of caregiving and grief during the COVID-19 pandemic. Caregivers maintain their identity even after loss, underscoring the enduring impact of caregiving. The identity as a caregiver impacted coping and grief responses, highlighting the need for tailored interventions.

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Disenfranchised Widowhood: The Journey of Dementia Caregivers

Manevich

2024

Topics in Neurocognition [Working Title]

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The chapter will focus on findings from research aimed at studying the impact of caregiving for spouses living with cognitive impairment through the prism of the Two-Track Model of Dementia Grief. This model provides a bifocal approach addressing the nature of the emotional attachment to a loved one living with cognitive impairment, along with a medico-psychiatric perspective related to stress, trauma, and life transitions. In order to examine the research hypotheses, the study was designed to be cross-sectional and included 122 participants recruited among four groups: spouses of individuals currently living with mild to moderate cognitive impairment, spouses of individuals living with advanced-stage dementia, widows and widowers of deceased dementia sufferers, and a control group. Participants completed a battery of self-report questionnaires. Following a presentation of the results on the bio-psycho-social consequences of the informal caregivers’ role and the ongoing emotional connection to the spouse living with dementia, the chapter will highlight various risk factors for maladaptive outcomes concerning the different stages of the disease. In addition, the chapter will discuss the research findings and their theoretical and empirical significance, as well as how these findings can be translated and contribute to clinical practice today.

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Risk, Resilience, and the Two-Track Model of Dementia Grief Among Spouses of People Living With Cognitive Decline

Cited by 3 publications

References 66 publications

Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers

Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers

Portuguese Caregivers of Persons With Alzheimer’s Disease in the Context of the COVID-19 Pandemic: A Qualitative Study of the Grieving Process

Disenfranchised Widowhood: The Journey of Dementia Caregivers

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