Role loss and emotional adjustment in chronic pain

Harris, S.D.; Morley, Stephen; Barton, Stephen

doi:10.1016/s0304-3959(03)00251-3

Cited by 127 publications

(94 citation statements)

References 30 publications

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“…For "multiple losses" Robinson andMcKenna (1998) refer to Powel-Cope (1995), who concluded also that loss precipitated other losses as in other diagnostic groups such as diabetes mellitus (Manderson and Kokanovic 2009), multiple sclerosis (Issaksson and Ahlstr€ om 2008) and chronic pain (Harris et al 2003). Again, our results are in the line of these studies.…”

Section: Discussionsupporting

confidence: 84%

Problems of Adults with a Mitochondrial Disease – The Patients’ Perspective: Focus on Loss

Noorda

Achterberg

Hooft³

et al. 2012

JIMD Reports

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Section: Discussionsupporting

confidence: 84%

Problems of Adults with a Mitochondrial Disease – The Patients’ Perspective: Focus on Loss

Noorda

Achterberg

Hooft³

et al. 2012

JIMD Reports

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“…Those with JHS/EDS-HT report that their ability to socialise and to get out may also be limited by fatigue. This gradual erosion of a social role may impact on a person’s identity and “sense of self”, which further impacts on well-being (Harris, Morley, & Barton, 2003). To mitigate isolation, those with JHS/EDS-HT may be encouraged to join support groups (i.e., patient-led organizations such as the Hypermobility Syndromes Association and Ehlers-Danlos Syndrome, UK (EDS-UK).…”

Section: Togetherness/isolationmentioning

confidence: 99%

A humanisation approach for the management of Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome-Hypermobility Type (JHS/EDS-HT)

Clark

Knight

2017

International Journal of Qualitative Studies on Health and Well

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Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome—Hypermobility Type (JHS/EDS-HT) is a complex and multisystemic condition which significantly impacts on a person’s health and well-being and is challenging for health professionals (HPs) to manage. People with JHS/EDS-HT and HPs recognise the individual nature and the complexities of the condition. There is a requirement to understand the condition within the context of the individual human dimensions of illness and healing. The aim of this paper is to explore the management of this condition using a theoretical model referred to as the Humanisation Framework. It is suggested that using the philosophical dimensions of this framework will empower HPs and those with JHS/EDS-HT to work together to proactively manage this condition. The eight dimensions of the Humanisation Framework facilitate an experiential understanding of the person within their context and environment, providing a constructive adjunct to the evidence-based management of those with JHS/EDS-HT. The humanisation framework was developed for health and social care and uses the philosophy behind well-being and what makes well-being possible. This paper explores how HPs may use aspects of the framework to understand the condition and empower and motivate those with JHS/EDS-HT to be active participants in their own well-being.

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“…There is evidence that chronic illness can alter both situational and dispositional selfconcept. [37,45] Changes to self-concept occur in a dynamic and cyclical fashion after TBI, as the person develops awareness of the consequences of the injury and adapts to new experiences and challenges. [1,38,46] A person's social environment and their interactions with others plays a crucial role within this context.…”

Section: The Impact Of Tbi On Decision Makingmentioning

confidence: 99%

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

Knox

Douglas

Bigby

2016

Disability and Rehabilitation

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Purpose: Although adults who sustain a severe traumatic brain injury (TBI) require support to make decisions in their lives, little is known about their experience of this process. The aim of this study was to explore how participation in decision making contributes to self-conceptualization in adults with severe TBI. Method: We used constructivist grounded theory methods. Data included 20 in-depth interviews with adults with severe TBI. Through a process of constant comparison, analysis involved open and focused coding until clear categories emerged and data saturation was achieved. Results: Self-conceptualization emerged as a complex and multifaceted process, as individuals with TBI aimed to reestablish a sense of autonomy. We describe a recursive relationship in which decision-making participation assists the dynamic construction of self, and self-concept contributes to the experience of making decisions. The role of an individual's social support network in acting as a bridge between participation and self-conceptualization is presented. Conclusions: Findings emphasize that contributing to decisions about one's own goals across a range of life areas can reinforce a positive self-concept. It is vital that supporters understand that participation in decision making provides a pathway to conceptualizing self and aim to maximize the person's participation in the decision-making process. ä IMPLICATIONS FOR REHABILITATIONPrevious research has identified that the experience of sustaining TBI has a significant impact on a person's conceptualization of self. This study identified that decision-making experiences play an important role in the ongoing process of self-conceptualization after injury. Decision-making experiences can reinforce a person's self-concept or lead them to revise (positively or negatively) their sense of self. By maximizing the person's decision-making participation, those around them can support them to develop positive self-attributes and contribute to shaping their future goals. ARTICLE HISTORY

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Role loss and emotional adjustment in chronic pain

Cited by 127 publications

References 30 publications

Problems of Adults with a Mitochondrial Disease – The Patients’ Perspective: Focus on Loss

Problems of Adults with a Mitochondrial Disease – The Patients’ Perspective: Focus on Loss

A humanisation approach for the management of Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome-Hypermobility Type (JHS/EDS-HT)

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

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