Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps—A Mixed-Methods Study

Henkenjohann, Richard

doi:10.3390/ijerph18189553

Cited by 9 publications

(6 citation statements)

References 114 publications

(285 reference statements)

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“…The use of APCO is particularly appealing, as it has shown promise in recent privacy research [43,44] and has also been used to model the influence of individual differences in a privacy context [45,46]. For health-related studies, the use of the health information privacy concern (HIPC) scale is recommended, but researchers are cautioned to model it multidimensionally, as this is the norm [47,48]. Such theoretical aspects were notably absent from review articles focused on mHealth or smart healthcare.…”

Section: Methodology and Theorymentioning

confidence: 99%

Online Privacy Fatigue: A Scoping Review and Research Agenda

et al. 2023

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Online users are responsible for protecting their online privacy themselves: the mantra is custodiat te (protect yourself). Even so, there is a great deal of evidence pointing to the fact that online users generally do not act to preserve the privacy of their personal information, consequently disclosing more than they ought to and unwisely divulging sensitive information. Such self-disclosure has many negative consequences, including the invasion of privacy and identity theft. This often points to a need for more knowledge and awareness but does not explain why even knowledgeable users fail to preserve their privacy. One explanation for this phenomenon may be attributed to online privacy fatigue. Given the importance of online privacy and the lack of integrative online privacy fatigue research, this scoping review aims to provide researchers with an understanding of online privacy fatigue, its antecedents and outcomes, as well as a critical analysis of the methodological approaches used. A scoping review based on the PRISMA-ScR checklist was conducted. Only empirical studies focusing on online privacy were included, with nontechnological studies being excluded. All studies had to be written in English. A search strategy encompassing six electronic databases resulted in eighteen eligible studies, and a backward search of the references resulted in an additional five publications. Of the 23 studies, the majority were quantitative (74%), with fewer than half being theory driven (48%). Privacy fatigue was mainly conceptualized as a loss of control (74% of studies). Five categories of privacy fatigue antecedents were identified: privacy risk, privacy control and management, knowledge and information, individual differences, and privacy policy characteristics. This study highlights the need for greater attention to be paid to the methodological design and theoretical underpinning of future research. Quantitative studies should carefully consider the use of CB-SEM or PLS-SEM, should aim to increase the sample size, and should improve on analytical rigor. In addition, to ensure that the field matures, future studies should be underpinned by established theoretical frameworks. This review reveals a notable absence of privacy fatigue research when modeling the influence of privacy threats and invasions and their relationship with privacy burnout, privacy resignation, and increased self-disclosure. In addition, this review provides insight into theoretical and practical research recommendations that future privacy fatigue researchers should consider going forward.

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Section: Methodology and Theorymentioning

confidence: 99%

Online Privacy Fatigue: A Scoping Review and Research Agenda

et al. 2023

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“…According to the World Health Organization (WHO), more than half of their member states are implementing a national EHR system [3] with the main purpose of ensuring the communication of patient-centered medical data between patients and healthcare institutions [4]. The most evident advantages of EHRs, like an increase in the efficiency in healthcare delivery, reduction of paper-based errors in medical documents, encouragement of patients in health self-monitoring, and overall, in improving the quality of diagnosis and treatments seem promising to also ease the lives of those taking non-institutional care of others by allowing them fast and easy access to the caretakers' relevant data in case they are not yet or no more able to speak for themselves [5][6][7].…”

Section: Introductionmentioning

confidence: 99%

User Personas for a “Better Design” of Nation-Wide EHRs Based on Thorough Expert Evaluation and Field Analysis: Modeling Users as Individuals Plus Family Members for an Enhanced Mapping of Healthcare Situations

Glatz,

Zeiringer,

Harms

et al. 2024

dHealth 2024

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Electronic Health Records (EHRs) are pivotal in prevention, therapy, and care. Their design necessitates the representation of users, activities, context, and technology. Among various participative and ethnographic design methods, user personas are an effective tool for encapsulating users in the design process. Goals and methods: This research focused on the creation of user personas for the design of a nation-wide EHR, specifically the German “elektronische Patientenakte” (ePA). We employed qualitative methods, such as field analysis and expert workshops, to generate, assess, and refine a set of user personas that can cover the complexity of real-life familial care environments. We used an innovative bottom-up approach applying a whole new process for persona generation especially in the context of family management. Results: The research yielded an initial set of five personas that accurately represent fictional user types. Importantly, at least two of these personas encapsulate the unique challenges inherent in family care work. These results provide a foundation for future work, which can utilize these personas for EHR design, as well as for further evaluation and refinement.

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“…But the switch to opt-out is contested. While adopting an opt-out approach to the use of ePAs will increase public participation in an ePA system, there has been criticism that such an approach will be unpopular amongst the public [ 8 , 15 , 16 ].…”

Section: Introductionmentioning

confidence: 99%

Citizen Views on an Opt-Out Approach to National Electronic Health Records in Germany: A Small-Scale Qualitative Study

Papadopoulos,

Struckmann,

von Wyl

et al. 2024

Int J Public Health

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ObjectivesElectronic health records (German: elektronische Patientenakte - ePA) are an important healthcare tool. However, in Germany, current participation remains low for their national ePA. To rectify this, the German government recently adopted an opt-out approach to their national ePA system. The objective of this study is to investigate and provide a brief overview of German public attitudes towards this approach to inform policymakers with evidence-based insights.MethodsFour public focus groups were conducted with 12 German citizens to discuss their opinions on the German governments new opt-out approach to the ePA.ResultsThree major thematic categories were identified (Contributors to Opt-Out Implementation, Barriers to Opt-Out Implementation, and Contingent Factors) to describe citizen views on the opt-out approach for the ePA.ConclusionThe public is generally supportive of an opt-out approach to ePAs in Germany, as they see the benefits ePAs can provide to German society; but they are skeptical on how successful this approach might be due to extant issues that policymakers must be aware of in order to successfully implement an opt-out approach for Germany’s national ePA system.

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Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps—A Mixed-Methods Study

Cited by 9 publications

References 114 publications

Online Privacy Fatigue: A Scoping Review and Research Agenda

Online Privacy Fatigue: A Scoping Review and Research Agenda

User Personas for a “Better Design” of Nation-Wide EHRs Based on Thorough Expert Evaluation and Field Analysis: Modeling Users as Individuals Plus Family Members for an Enhanced Mapping of Healthcare Situations

Citizen Views on an Opt-Out Approach to National Electronic Health Records in Germany: A Small-Scale Qualitative Study

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