Role of patient and public participation in health technology assessment and coverage decisions

Menon, Devidas; Stafinski, Tania

doi:10.1586/erp.10.82

Cited by 78 publications

(96 citation statements)

References 27 publications

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“…healthcare prioritization and health policy analysis [47,48] , resource allocation and redistribution [49,50], services governance [51,52], and health technology assessment (HTA) [53]. On this point, our finding supports, to some extent, those of Chalmers et al, (2014) that addressed the question of the actual use of research results in decision-making [54] .…”

Section: Discussionsupporting

confidence: 82%

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Alami¹,

Gagnon²,

Fortin³

2018

Preprint

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BACKGROUND Decisions regarding telehealth services in Quebec (Canada) have been largely technocratic by nature for the last 15 years, and the involvement of citizen-patients in the development of telehealth services is virtually nonexistent. In view of the societal challenges that telehealth raises, citizen-patient involvement could ensure more balance between evidence from traditional research methodologies and technical experts and the needs and expectations of populations in decisions about telehealth services. OBJECTIVE This study aimed to explore the perception of various stakeholders (decision makers, telehealth program and policy managers, clinicians, researchers, evaluators, and citizen-patients) regarding the involvement of citizen-patients in the development of telehealth services in Quebec. In particular, we explored its potential advantages, added value, obstacles, and challenges it raises for decision making. METHODS We used a qualitative research approach based on semistructured individual interviews, with a total of 29 key actors. Respondents were identified by the contact network method. Interviews were recorded and transcribed verbatim. A pragmatic content thematic analysis was performed. To increase the capacity for interpretation and analysis, we were guided by the principle of data triangulation. RESULTS Citizen-patient involvement in decision making is perceived more as a theoretical idea than as a practical reality in health care organizations or in the health system. There is very little connection between citizen involvement structures or patient and user groups and telehealth leaders. For the respondents, citizen-patient involvement in telehealth could increase the accountability and transparency of decision making and make it more pragmatic within an innovation-driven health system. This involvement could also make citizen-patients ambassadors and promoters of telehealth and improve the quality and organization of health services while ensuring they are more socially relevant. Challenges and constraints that were reported include the ambiguity of the citizen-patient, who should be involved and how, claimant citizen-patient, the risk of professionalization of citizen-patient involvement, and the gap between decision time versus time to involve the citizen-patient. CONCLUSIONS This study provides a basis for future research on the potential of involving citizen-patients in telehealth. There is a great need for research on the issue of citizen-patient involvement as an organizational innovation (in terms of decision-making model). Research on the organizational predisposition and preparation for such a change becomes central. More efforts to synthesize and translate knowledge on public participation in decision making in the health sector, particularly in the field of technology development, are needed.

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Section: Discussionsupporting

confidence: 82%

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Alami¹,

Gagnon²,

Fortin³

2018

Preprint

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“…The most common manifestation of this mechanism relates to the involvement of multiple publics and groups with a special attention to minority groups (Summers and McKeown 1996;Kashefi and Mort 2004;Brackertz and Meredyth 2009;Menon and Stafinski 2011;Griebler and Nowak 2012). These minority groups include those who have a marginalised voice and those who are not usually inclined to participate; that is, 'hard-to-reach' stakeholders.…”

Section: Concept Of the Possible Mechanism Of 'Inclusiveness'mentioning

confidence: 99%

Understanding the factors that make public participation effective in health policy and planning: a realist synthesis

Pagatpatan

Ward

2017

Aust. J. Prim. Health

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Abstract. Although researchers argue for the importance of involving the public in developing health policy, there has been little focus on central research questions -such as what techniques of public participation work, in what circumstances, and why. This paper presents a realist synthesis which identifies and explains the underlying mechanisms and specific contextual factors that lead to effective public participation in health policy and planning. Peer-reviewed, English language literature was searched, which resulted in 77 articles for review and synthesis. This synthesis uncovered the underlying mechanism of 'political commitment' that generates public participation effectiveness. The other three possible underlying mechanisms, namely: 'partnership synergy', 'inclusiveness' and 'deliberativeness', were found to potentially provide further explanation on public participation effectiveness for health policy and planning. The findings of this review provide evidence that can be useful to health practitioners and decision-makers to actively involve the public when drafting public health policies and programs and, more importantly, guide them in deciding which strategies to best employ for which contexts.

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“…The need for a more democratic participation of patients and representatives of society in technology selection and priority-setting criteria definition has been broadly discussed and encouraged in the international scenario 36 .…”

Section: Final Considerationsmentioning

confidence: 99%

Health technology assessment (HTA) organizations: dimensions of the institutional and political framework

Novaes

Soárez

2016

Cad. Saúde Pública

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Health technology assessment (HTA) is consolidated as a scientific and technological practice. The aim of this study is to identify HTA organizations from different settings and analyze their relevant dimensions in terms of effectiveness/impact, in order to address the challenges they face in Brazil. Narrative literature review based on data and websites of HTA organizations. There are well-established activity development processes in all organizations. These activities have specific features in their profile, in the process of technology assessment, decision and implementation of technologies that influence their potential impact on health systems. Agencies share in common the challenges of ranking the technologies to be assessed, and the implementation of their recommendations. Technical and political strengthening of the institutionalization of HTA in Brazil may foster scientific, technological and innovation policies, effectively impacting health policies.

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Role of patient and public participation in health technology assessment and coverage decisions

Cited by 78 publications

References 27 publications

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives (Preprint)

Understanding the factors that make public participation effective in health policy and planning: a realist synthesis

Health technology assessment (HTA) organizations: dimensions of the institutional and political framework

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