Role of Psychologists in Pediatric Congenital Heart Disease

Amin, Kanhai; Patel, Keshav C.

doi:10.1016/j.pcl.2022.05.002

Cited by 2 publications

(2 citation statements)

References 93 publications

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“…Prolonged hospital stay as a neonate as well as social limitations and bullying as a child or adolescent may cause anxiety and depression, which can even be exacerbated when transitioning from paediatric to adult services. In this respect, psychologists may help both patients and their parents and reduce the loss of follow-up [ 61 ].…”

Section: Resultsmentioning

confidence: 99%

Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review

et al. 2023

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The majority of patients born with congenital heart disease (CHD) need lifelong surveillance with serial clinical attendance and examinations. However, loss of follow-up (namely no documented follow-up for 3 years or more) is a recognised common problem since it is often related to remarkable worsening in the health of CHD patients with increased morbidity and mortality. Transitioning from paediatric to adult care has proven to be the most vulnerable point in the care of these subjects. As such, a systematic review was carried out to ask the following questions: What is the percentage of loss of follow-up worldwide? Are there regional fluctuations in the percentage? Is there a link between loss of follow-up and the complexity of CHD? What strategies should be employed to lower the risk of discontinuity in care? The most recent worldwide averaged loss of follow-up is 26.1%, with significant fluctuations across continents and countries. This percentage is even higher (31.9%) when one includes all untraceable patients, presuming that they are not having any cardiac follow-up. The highest discontinuity of care was reported in the USA and in patients with simple CHD. Planning the rules of transition seems to be one of the most reliable tools to minimise the number of CHD patients who are lost in transition. Recalling patients, with general practitioners who are crucial in readdressing half of the lost to follow-up CHD patients to adult CHD specialists, and a good relationship between paediatric cardiologists and the adult CHD team are two other valuable strategies in aiding successful transition.

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Section: Resultsmentioning

confidence: 99%

Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review

et al. 2023

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“…Particularly, improved health literacy in children and adolescents with chronic conditions, which affect 8-25% of children, may have significant impacts on child health during childhood and long-term, as self-care responsibilities are often transferred to the child between the ages of 11 and 15 [9,10]. Notably, enhancements in health literacy have been shown to foster improved patient-provider communication, self-management, and facilitate a smoother transition to adult care for children with chronic kidney disease [11], congenital heart disease [12], spina bifida [13], rheumatic conditions [14], and cancer [15], among others.…”

Section: Introductionmentioning

confidence: 99%

Assessing the Efficacy of Large Language Models in Health Literacy: A Comprehensive Cross-Sectional Study

Amin,

Mayes,

Khosla

et al. 2024

Yale J Biol Med

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Enhanced health literacy in children has been empirically linked to better health outcomes over the long term; however, few interventions have been shown to improve health literacy. In this context, we investigate whether large language models (LLMs) can serve as a medium to improve health literacy in children. We tested pediatric conditions using 26 different prompts in ChatGPT-3.5, ChatGPT-4, Microsoft Bing, and Google Bard (now known as Google Gemini). The primary outcome measurement was the reading grade level (RGL) of output as assessed by Gunning Fog, Flesch-Kincaid Grade Level, Automated Readability Index, and Coleman-Liau indices. Word counts were also assessed. Across all models, output for basic prompts such as "Explain" and "What is (are)," were at, or exceeded, the tenth-grade RGL. When prompts were specified to explain conditions from the first-to twelfth-grade level, we found that LLMs had varying abilities to tailor responses based on grade level. ChatGPT-3.5 provided responses that ranged from the seventh-grade to college freshmen RGL while ChatGPT-4 outputted responses from the tenth-grade to the college senior RGL. Microsoft Bing provided responses from the ninth-to eleventhgrade RGL while Google Bard provided responses from the seventh-to tenth-grade RGL. LLMs face challenges in crafting outputs below a sixth-grade RGL. However, their capability to modify outputs above this threshold, provides a potential mechanism for adolescents to explore, understand, and engage with information regarding their health conditions, spanning from simple to complex terms. Future studies are needed to verify the accuracy and efficacy of these tools.

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Role of Psychologists in Pediatric Congenital Heart Disease

Cited by 2 publications

References 93 publications

Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review

Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review

Assessing the Efficacy of Large Language Models in Health Literacy: A Comprehensive Cross-Sectional Study

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