Role of the Pediatrician in Family-Centered Early Intervention Services

Sandler, Austin; Brazdziunas, D.; Cooley, W. Carl; Pijem, Lilliam Gonzalez de; Hirsch, David J.; Kastner, Theodore A.; Kummer, M. E.; Quint, R. D.; Ruppert, Elizabeth S.; Anderson, Wanda; Crider, Beverly; Burgan, Paul; Garner, Craig B.; McPherson, Merle; Michaud, Laurent; Yeargin‐Allsopp, Marshalyn; Cartwright, J. D.; Johnson, Chris Plauché; Smith, Kylen

doi:10.1542/peds.107.5.1155

Cited by 59 publications

(6 citation statements)

References 13 publications

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“…A “medical home” has been proposed as a mechanism to provide support and coordinate multiple service systems for families of children with ASD (Hyman & Johnson, 2012; Committee on Children with Disabilities, 2001; Murphy & Carbone, 2011). A medical home is defined as health care delivery systems that provide primary medical care in an accessible, continuous, comprehensive, family centered, coordinated, compassionate, and culturally effective way (American Academy of Pediatrics, 2002).…”

Section: Discussionmentioning

confidence: 99%

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Strunk¹,

Pickler²,

McCain³

et al. 2014

Families, Systems, & Health

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Parents of adolescents with autism spectrum disorder (ASD) experience the challenges of navigating the health care system, locating information about ASD, lacking an understanding of prescribed medications, and experiencing minimal social support from health care providers. The purpose of this phenomenological study was to describe the experiences of parents who manage the health needs of an adolescent with ASD. Qualitative interviews were conducted at a university setting with 12 parents of 10 adolescents with ASD residing in Central Virginia. Data were analyzed using Moustakas' method in which the phenomenologist asks the following questions: What are the individual's experiences and in what context did they experience them? This study maximized credibility using 3 strategies: prolonged engagement, peer debriefing, and member checking. "Parents needing assistance" emerged as the essence of the parents' experiences. Four themes representing the essential challenging elements of the parents' experiences included concern with medications, frustrations with health care services, recognizing secondary health issues, and the need for resources and services. Findings of the current study revealed key factors to be considered in the development and delivery of health care for adolescents with ASD. These include creating and planning interventions for parents, sharing information about resources and services, and collaborating with others in the health care field. Additional research, both qualitative and quantitative, is needed to understand how parents and adolescents with ASD experience this transitional period.

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Section: Discussionmentioning

confidence: 99%

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Strunk¹,

Pickler²,

McCain³

et al. 2014

Families, Systems, & Health

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“…27,41–44 This may be especially beneficial for CSHCN with functional limitations because they less frequently receive care in a medical compared to other CSHCN. 45 Within provider–family encounters, pediatricians and other health care professionals may impact participation by directly addressing the health and functional status of CSHCN through the delivery of comprehensive health care and by providing access to community resources.…”

Section: Discussionmentioning

confidence: 99%

Participation of Children with Special Health Care Needs in School and the Community

Houtrow

Jones

Ghandour

et al. 2012

Academic Pediatrics

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Objective Children with special health care needs (CSHCN) are at risk for decreased participation which can negatively impact their lives. The objectives of this study were to document the presence of participation restrictions for CSHCN compared to other children and to determine how personal and environmental factors are associated with participation restrictions for CSHCN. Methods The 2007 National Survey of Children’s Health (NSCH) was analyzed to evaluate two participation outcomes for children aged 6–17 years: school attendance and participation in organized activities, and two participation outcomes for children aged 12–17 years: working for pay and volunteering. Adjusted prevalences of participation restrictions were calculated for children with and without special health care needs. Logistic regression was used to identify factors independently associated with participation restrictions for CSHCN. Results After adjustment for sociodemographic characteristics, a larger proportion of CSHCN (27.9%) reported missing more than 5 days of school than other children (15.1%). In contrast, no differences were found for participation in organized activities, working for pay or volunteering. CSHCN with functional limitations were more likely to experience all four types of participation restrictions compared to other CSHCN and non-CSHCN. For CSHCN, the odds of certain participation restrictions were higher for those with functional limitations, in fair/poor health, with depressed mood, living at or near the federal poverty level and living in homes not headed by two parents. Conclusions CSHCN with functional limitations and those with worse health status are at elevated risk of experiencing participation restrictions than other children. Social disadvantage furthers the likelihood that CSHCN will experience participation restrictions.

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“…Identification of children demonstrating developmental delay who could benefit from early interventions programs is therefore crucial [6][7][8]. Pediatricians have a key role to play in identifying these children [9][10][11]. There are however many factors that may hinder pediatricians' ability to observe and evaluate children's development, including limited time and the physical environment of the medical office [12].…”

Section: Introductionmentioning

confidence: 99%

Preschoolers’ Developmental Profiles and School-Readiness in a Low-Income Canadian City: A Cross-Sectional Survey

Camden

Héguy

Casoli

et al. 2020

IJERPH

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A joint initiative between community and public health stakeholders in a low-income Canadian city was created to describe the developmental profiles of children aged 2-5 years. A two-phase, cross-sectional design was used. Children's development was assessed using an online screening procedure. Those at risk of delays were invited for a school-readiness face-to-face brief assessment. Descriptive and exploratory analyses were conducted. In Phase 1, 223 families were screened; 100 children were at risk of delays (45%); 13% were at risk in ≥3 developmental domains; 26% were at risk in the fine motor domain. Risk of delay was associated with parental concerns, accessing more healthcare professionals, and using fewer public health/community programs. Lower incomes, and not attending day care showed trends towards an increased risk of delay. In Phase 2, 49 children were assessed; 69% were at risk of school-readiness delays; 22% had potential motor delays; 37% were at risk in the social domain. This study found a higher proportion of children at risk of delay than typically reported. Creating community partnerships could help identify all children needing developmental and school-readiness support. More research is needed to ensure these community-based partnerships are integrated into health/community programs responding to children's needs and parental concerns.

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Role of the Pediatrician in Family-Centered Early Intervention Services

Cited by 59 publications

References 13 publications

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Participation of Children with Special Health Care Needs in School and the Community

Preschoolers’ Developmental Profiles and School-Readiness in a Low-Income Canadian City: A Cross-Sectional Survey

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