Rural resilience during COVID-19: the lived experience of North Carolinian rural-dwelling cancer caregivers

Qian, Yiqing; Asad, Sarah; Park, Eliza M.; Mills, Jiona; Kent, Erin E.

doi:10.1007/s00520-023-07840-1

Support Care Cancer

2023

DOI: 10.1007/s00520-023-07840-1

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Rural resilience during COVID-19: the lived experience of North Carolinian rural-dwelling cancer caregivers

Yiqing Qian

Sarah Asad

Eliza M. Park

et al.

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Cited by 4 publications

(1 citation statement)

References 27 publications

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“…Nevertheless, we firmly believe that the initial step lies in acknowledging the invaluable contribution of caregivers toward the successful treatment of their patients. This recognition not only uplifts their morale but also validates their importance and instills a sense of contentment (Qian et al 2023). In our practice, we place a strong emphasis on the acknowledgment and appreciation of caregivers for their exceptional support provided to patients throughout the entire cancer journey.…”

mentioning

confidence: 84%

Unsung heroes in the battle against cancer

Kaul,

Garg

2023

Pall Supp Care

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mentioning

confidence: 84%

Unsung heroes in the battle against cancer

Kaul,

Garg

2023

Pall Supp Care

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Building on and tailoring to: Adapting a cancer caregiver psychoeducational intervention for rural settings

Kent,

Tan,

Nakamura

et al. 2024

Cancer Medicine

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IntroductionRural cancer caregivers experience obstacles in accessing services, obtaining respite, and ensuring their care recipients receive quality care. These challenges warrant opportunities to participate in evidence‐based behavioral intervention trials to fill support gaps. Adaptation to rural settings can facilitate appropriate fit, given higher caregiver service needs and unique challenges. We present findings from the adaptation process of a psychoeducational intervention designed to support cancer caregivers in rural settings.MethodsWe adapted Reblin's CARING intervention, designed for neuro‐oncology, to target caregivers of rural cancer patients across cancer sites. First, we conducted formative work to determine the unmet social and supportive care needs rural cancer caregivers faced. We used the Framework for Reporting Adaptations and Modifications to Evidence‐based Implementation Strategies (FRAME‐IS) to guide the modifications. To conduct the adaptation, we elicited feedback through qualitative interviews of seven caregivers and three cancer hospital staff and thematic analysis to inform intervention modifications. Our qualitative study was guided by the Consolidated Criteria for Reporting Qualitative Research (COREQ).ResultsInterviews revealed that service access was a pressing need, along with financial (e.g., treatment costs, employment challenges) and geographic barriers (e.g., distance to treatment, road conditions). We modified content, training, and context using the FRAME‐IS steps. Changes enhanced fit through the following adaptations: changes to social support domains, session content, interventionist training, resource offerings, screening and recruitment processes, and virtual delivery.DiscussionChallenges to establishing successful psychosocial oncology interventions may be improved through participant‐centered approaches and implementation science. Additional systemic challenges, including lack of systematic documentation of caregivers, persist and may especially disadvantage under‐represented and underserved groups, such as rural dwellers. The enCompass intervention is undergoing ongoing single‐arm pilot of rural cancer patient/caregiver dyads targeting caregiver coping self‐efficacy and patient/caregiver distress (Clinical Trials #NCT05828927).

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North Carolina Caregiver Listening Study: Caregiver Experiences and Perspectives on Services and Supports in an Aging U.S. State

Kent,

Deaton,

Keesee

2024

Journal of Gerontological Social Work

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Rural resilience during COVID-19: the lived experience of North Carolinian rural-dwelling cancer caregivers

Cited by 4 publications

References 27 publications

Unsung heroes in the battle against cancer

Unsung heroes in the battle against cancer

Building on and tailoring to: Adapting a cancer caregiver psychoeducational intervention for rural settings

North Carolina Caregiver Listening Study: Caregiver Experiences and Perspectives on Services and Supports in an Aging U.S. State

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