Russian students’ awareness of and attitudes toward donating to biobanks

Цветкова, Л. А.; Eritsyan, Ksenia; Antonova, N. A.

doi:10.11621/pir.2016.0203

Cited by 10 publications

(15 citation statements)

References 13 publications

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“…The term “biobank” appears to be new to almost half of student respondents from all disciplines whereas only 52.9% of the students stated that they have previous knowledge of the term. This figure is better than the 27% of Saudi healthcare students [ 11 ], the 40% of Egyptian medical students [ 12 ], and the 20% of Russian students [ 13 ] who knew what the term meant. However, it is less than the 83.7% of students of the Italian Padua University who were able to select the right definition from a multiple-choice question [ 14 ].…”

Section: Discussionmentioning

confidence: 91%

Views of university students in Jordan towards Biobanking

et al. 2021

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Background Biobanks are considered primary means+ of supporting contemporary research, in order to deliver personalized and precise diagnostics with public acceptance and participation as a cornerstone for their success. Aims This study aims to assess knowledge, perception, and attitudes towards biomedical research and biobanking among students at the University of Jordan. Methodology An online questionnaire was designed, developed, and piloted. It was divided into 5 sections that included questions related to issues of biomedical research and biobanking as well as factors influencing the decision to participate. Results Responses from 435 students revealed that 52.9% previously heard of biobanks. There was an overwhelming acceptance for participation in biomedical, genetic, and biobanking research. A blood sample was the most preferred for donation. Protection of privacy, informed consent prior to donation, approval of an ethics committee, and trust towards researchers were the most important factors associated with willingness to participate. On the other hand, the vagueness of the type of research performed on the biospecimens and the unavailability of general research results to the donor had a negative connotation. There was no clear agreement on the type of informed consent preferred by students, but to be contacted and informed of research results was preferred by the majority. Students also preferred the disposal of biospecimens and information when deciding to withdraw from participation. Conclusion There is strong enthusiasm among students to participate in biomedical research and biobanking with all rights reserved thus providing hope for a very promising future in Jordan.

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Section: Discussionmentioning

confidence: 91%

Views of university students in Jordan towards Biobanking

et al. 2021

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“…willingness to participate in biobanking among university students in Russia [12]. On the other hand, the survey conducted among students in Italy showed that gender has a signi cant association on participation [13].…”

Section: Discussionmentioning

confidence: 96%

“…The term "biobank" appears to be new to almost half of student respondents from all disciplines where only 52.9% of the students stated that they have a previous knowledge of the term. This gure is better that the 27% Saudi healthcare students [10], the 40% of Egyptian medical students [11], and the 20% of Russian students [12] who knew what the term means. However, it is less than students of the Italian Padua University who a large percentage of them were able to select the right de nition from a multiplechoice question [13].…”

Section: Discussionmentioning

confidence: 96%

“…A large number of students indicated that it was important for them to know what kind of research would be conducted on their samples and this was con rmed by the shift in willingness to participate in biobanking if they do not know this information. The study surveying Russian students [12] showed that the speci c goal of the research had the greatest impact on one's decision to participate. Saudi and Egyptian students also expressed their concern of misuse of their samples to be a major determining factor to their participation [10,11].…”

Section: Discussionmentioning

confidence: 99%

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Views of University Students in Jordan towards Biobanking

Khatib

Jibrin

Al-Majali

et al. 2020

Preprint

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BackgroundBiobanks are considered a primary mean of supporting contemporary research, in order to deliver personalized and precise diagnostics with public acceptance and participation as a corner stone for their success.AimsThis study aims to assess knowledge, perception, and attitudes towards biomedical research and biobanking among students at the University of Jordan.MethodologyAn online questionnaire was designed, developed, and piloted. It was divided into 5 sections that included questions related to issues of biomedical research and biobanking as well as factors influencing decision to participate.ResultsResponses from 435 students revealed that 52.9% previously heard of biobanks. There was overwhelming acceptance for participation in biomedical, genetic, and biobanking research. A blood sample was the most preferred for donation. Protection of privacy, a consent prior to donation, approval of an ethics committee, and trust towards researchers were the most important factors associated with willingness to participate. On the other hand, vagueness of the type of research performed on samples and not receiving research results had a negative connotation. There was no clear agreement on the type of consent preferred by students, but to be contacted and informed of research results was preferred by the majority. Students also preferred disposal of samples and information when deciding to withdraw from participation.ConclusionThere is strong enthusiasm among students to participate in biomedical research and biobanking with all rights reserved thus providing hope for a very promising future in Jordan.

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“…There is still minimal knowledge about Russian biobank donors' motivation and experience [18; 19; 20]. In 2014, a study among Russian University students showed a little awareness regarding biobanks (21%), together with a relatively high level of willingness of the Russian youth to donate to that (74%); a minimal impact of value orientations, and the lack of in uence of socio-demographic variables on the willingness to donate [20]. The predictive factors of willingness to biobank donation, among Russian university students and researchers, were awareness of the biobank, approval of members of their close social environment, donation fees, and the type of biological material requested [21].…”

Section: Introductionmentioning

confidence: 99%

If It Has To Be Done, It Has To Be Done: A Qualitative Study of Clinical Biobank Donation Experience and Motives

Antonova

Eritsyan²

2021

Preprint

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Background The success of biobanking is directly linked to the willingness of people to donate their biological materials for research and storage. Ethical issues related to patient consent are an essential component of the current biobanking agenda. The majority of data available are focused on population-based biobanks in western countries. The donation decision process and its ethical applications in clinical populations and populations in countries with other cultural contexts are very limited. This study aimed to evaluate the decision-making experience of the clinical biobank donors, as well as psychological and social motivators and deterrents of this decision and associated ethical risks. Methods Semi-structured interviews were conducted in two medical institutions, in St Petersburg (Russia), in 2016–2017, among 13 donors of a clinical biobank (pregnant women, cardiac patients, and patients with multiple sclerosis) and three donation organisers — medical specialists involved in recruiting donors for a clinical biobank. Analysis of interview data was based on qualitative content analysis. Results Donors of a clinical biobank express beliefs in the absence of risks associated with the donation. The primary motivators for donating to the biobank were: prosocial, indirect reciprocity (response to or anticipation of an act in kind by a third party), intrinsic motivation (to enhance their self-esteem and satisfying their curiosity about the donation process), and comparability with personal values. A high level of trust in biomedical research and the particular physician can contribute to a favourable decision. The integration of biobank donation decision-making in the process of medical care might prompt patient to donate to biobank without proper consideration. The specific type of therapeutic misconception - the presence of unrealistic hope that donation could provide a direct benefit for a third person in need was discovered. Conclusions Patients recruited to a clinical biobank in Russia have virtually no concerns as to the storage of their biomaterials. The donation decision is mainly motivated by prosocial attitudes and other factors that are similar to the motivating factors of blood donation. The fact of going through inpatient treatment and poor differentiation between donation for other people's benefit and for research purposes can make the process of obtaining consent more ethically problematic.

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Russian students’ awareness of and attitudes toward donating to biobanks

Cited by 10 publications

References 13 publications

Views of university students in Jordan towards Biobanking

Views of university students in Jordan towards Biobanking

Views of University Students in Jordan towards Biobanking

If It Has To Be Done, It Has To Be Done: A Qualitative Study of Clinical Biobank Donation Experience and Motives

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