S.M.A.R.T. Transitions: A Program Evaluation

Cadogan, Kelly; Waldrop, Julee; Maslow, Gary; Chung, RS

doi:10.1016/j.pedhc.2018.02.008

Cited by 11 publications

(3 citation statements)

References 32 publications

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“…The limited HCT support the participants of this study received was commonly limited to health care providers themselves, despite providers' awareness of their difficulty addressing the psychosocial needs of young adults (Peter et al, 2009) and lack of resources and time to coordinate care (Steinway et al, 2017). Clinics specializing in transition care and equipped to provide comprehensive transition services have been effectively utilized to meet the needs of AYAs with childhood-onset chronic conditions (Cadogan, Waldrop, Maslow, & Chung, 2018;Steinway et al, 2017;Woodward et al, 2012). More specifically, transition support clinics utilizing a comprehensive noncategorical approach, providing non-disease specific services, can tailor care to the needs of the individual AYA (Woodward et al, 2012).…”

Section: Discussionmentioning

confidence: 99%

Health Care Transition for Adolescent and Young Adults with Intellectual Disability: Views from the Parents

Franklin

Beyer

Brotkin

et al. 2019

Journal of Pediatric Nursing

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This study explored the health care transition (HCT) experiences of parents of adolescents and young adults (AYAs) with intellectual disability (ID), 18-33 years of age, including barriers and facilitators to the AYA's transition to adulthood within and between the medical, educational, community, and vocational systems. Design and methods: A qualitative descriptive design with semi-structured individual interviews with 16 parent participants was used. Purposive sampling of parents was utilized with variation on race/ethnicity and AYA age, stage in transition, and condition. This study was conducted through a major medical center in the southeast United States. Content analysis was utilized. Results: Three overarching themes represented the factors and essence of supporting AYAs with ID transition to adulthood. Inefficient and siloed systems illuminated barriers families are commonly experiencing within and between the medical, educational, community, and vocational systems. 'Left out here floundering' in adulthood, described the continued inadequacy of resources within each of these systems and parent's having to find available resources themselves. Hope despite uncertainty, included the perceived costs and benefits of their AYA's disability and the value of parent peer support in providing key knowledge of resources, strategies, and perspectives. Conclusions: Our findings illuminate the need for improved infrastructure to provide effective HCT and partnerships to help integrate HCT support within other life course systems. Results support the rationale for noncategorical HCT-focused approach. Practice implications: A parent peer coach-facilitated intervention offers promise for bridging the gap between systems and meeting family needs.

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Section: Discussionmentioning

confidence: 99%

Health Care Transition for Adolescent and Young Adults with Intellectual Disability: Views from the Parents

Franklin

Beyer

Brotkin

et al. 2019

Journal of Pediatric Nursing

View full text Add to dashboard Cite

show abstract

“…Furthermore, we also found negative partner effect between medication management in children and parental social functioning. Parents tend to have low confidence in their children's ability to handle complex information at such a young age (Cadogan et al., 2018). They may feel uncomfortable changing from being decision‐makers to assuming consultative roles (Heath et al., 2017), given that they were accustomed and willing to undertake the task of medication management for their children.…”

Section: Discussionmentioning

confidence: 99%

Influence of transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions

Gong

Zhang

et al. 2021

Journal of Advanced Nursing

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Aim To delineate the impact of perspective of children's transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions. We used Actor–Partner Interdependence Model to identify actor effects (effect of one's own transition readiness on one's own quality of life) and partner effects (effect of one's own transition readiness on the partner's quality of life). Design A multi‐centre cross‐sectional survey. Methods The study was conducted in two paediatric hospitals in China from October 2018‐August 2019. We used a researcher‐designed questionnaire to collect demographic and clinical characteristics. Furthermore, we used four questionnaires assessing transition readiness and quality of life in child and parent respectively to collect data from 370 child–parent dyads. Structural equation modelling was applied to estimate the effect of actor–partner interdependence models. Results The total score of transition readiness had two actor effects on total child and parent quality of life controlling for age (βchildren = 3.335, p = .032 and βparents = 8.952, p < .001), while only one actor effect controlling for gender (βparents = 8.891, p < .001). Specific transition readiness dimensions had different partner effects on different domains of children and parents' quality of life. Moreover, younger children and fathers had a better quality of life. Conclusion Our study verified inherently interpersonal relationship that transition readiness appeared to influence quality of life in child–parent dyads with long‐term conditions. Impact This study was the first to verify mutual influence of transition readiness and quality of life in child–parent dyad using actor–partner interdependence model. Nurses who design the transition promoting programs should consider the effective communication between healthcare provider and child–parent dyads and support parents' involvement to improve shared understanding about managing child's condition, especially for older children and mothers.

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“…Literature on the transition of ASHCN to adult-centered medical homes has addressed the perspectives of patients and caregivers, who reported low confidence in the process and difficulties in locating adult-based providers. [8][9][10][11][12] With regard to dental care, one study found that parents believed that pediatric dentists played an important role in the transition process. [13] Another study evaluating provider perspectives on transitioning reported that both pediatric dentists and general dentists perceive barriers to transitioning including inadequate training, limited availability of general dentists, and low reimbursement.…”

Section: Introductionmentioning

confidence: 99%

Caregivers’ Perspectives on Transitioning Dental Care for Adolescents with Special Healthcare Needs–A Cross-Sectional Study

Canares

Clarke

Caffrey

et al. 2022

International Journal of Dentistry

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Introduction. Few studies have investigated the concerns of caregivers of adolescents with special health-care needs (ASHCN) regarding the barriers and challenges of transitioning from a pediatric to an adult-based dental home. The purpose of this study was to assess these perceptions. Methods. A 23-question survey was administered to guardians of ASHCN who presented to the pediatric dental clinic at the University of Maryland. Question types were either multiple choice, Likert scale responses, or open-ended. A descriptive analysis and Fisher’s exact test were performed. Keywords were evaluated from the open-ended answers. Results. Twenty-seven caregivers completed the survey over a six-month period. Sixty-six percent of caregivers were aware that dental needs change as child ages and thought that transitioning was a logical next step, 78% had concerns about transitional care, and 70% did not have the desire to transition. Fisher’s exact analysis comparing awareness of transition versus the desire to transition was p < 0.10 . Conclusion. Most caregivers were aware of the changing dental needs of ASHCN and believed transitioning was a logical step. Many caregivers lacked readiness and perceived multiple barriers to transitioning. Awareness of the need to transition from pediatric to adult-based dental homes was not correlated with the readiness to transition.

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S.M.A.R.T. Transitions: A Program Evaluation

Cited by 11 publications

References 32 publications

Health Care Transition for Adolescent and Young Adults with Intellectual Disability: Views from the Parents

Health Care Transition for Adolescent and Young Adults with Intellectual Disability: Views from the Parents

Influence of transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions

Caregivers’ Perspectives on Transitioning Dental Care for Adolescents with Special Healthcare Needs–A Cross-Sectional Study

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