Safety and effectiveness of telerehabilitation program in people with severe haemophilia in Chile. A qualitative study

Aliaga-Castillo, Verónica; Horment-Lara, Giselle; Contreras-Sepúlveda, Felipe; Cruz‐Montecinos, Carlos

doi:10.1016/j.msksp.2022.102565

Cited by 8 publications

(8 citation statements)

References 37 publications

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“…Problems associated with Internet access and connectivity ( 17 , 19 - 21 , 23 , 26 ), the need for specialized equipment and software (e.g., smartphone, camera, among others) ( 16 , 21 , 26 , 29 , 32 ), as well as having the technical skills in the use of technological tools to provide and receive virtual service delivery ( 17 , 22 , 25 , 30 , 33 ) were the main barriers associated with the care process in the studies analyzed (n=14). Although the lack of connectivity during virtual care was a recurring complaint among patients, non-attendance at virtual appointments did not exceed 5% of cases ( 20 ), but it was recognized as a factor that increases the perception of poor clinical care ( 21 , 28 ).…”

Section: Resultsmentioning

confidence: 99%

“…The limitation of performing a complete and exhaustive physical examination was identified as a barrier in five studies ( 16 , 22 , 29 , 32 , 34 ) mainly when virtual care was used in patients with neurological pathologies, older adults, and in those requiring a physical rehabilitation process. During the diagnostic process of most pathologies, performing a physical examination is important, both to confirm and to rule out suspicion.…”

Section: Resultsmentioning

confidence: 99%

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Analysis of the virtual healthcare model in Latin America: a systematic review of current challenges and barriers

De La Torre,

Diaz,

Perdomo

2024

mHealth

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Background The virtual care model can be used in all aspects of healthcare, such as prevention, diagnosis, treatment, and follow-up of most medical and surgical conditions. The objective of this study was to identify the current barriers to implementing and consolidating the virtual healthcare model, of “telemedicine”, in Latin American countries. Methods A systematic review was conducted through four databases: PubMed, Scopus, Web of Science, and Virtual Health, including articles in Spanish, Portuguese, and English. A combination of Boolean operators was used with the terms “telemedicine”, “telehealth”, “telecare”, “home care services”, “remote care” and the name of each Latin American country. Articles published from January 2020 to January 2023 that reported on the barriers and challenges of using the virtual care model were included. Results Nineteen articles were included. Brazil (n=5) and Argentina (n=4) were the countries where there was the greatest interest to explore barriers to virtual care. The barriers identified were categorized into five main themes: (I) technological and technical issues; (II) absence of a physical examination; (III) patient’s negative perceptions; (IV) negative perceptions among healthcare professionals; and (V) structural obstacles and those associated with the healthcare system. The main obstacles reported were connectivity problems, lack of a complete physical examination, issues of privacy, high risk of medical malpractice, and absence of local regulation. Conclusions The virtual care model is a safe and cost-effective alternative for the delivery of health services, with multiple benefits for patients and their families. The indication for the use of virtual care should be based on a risk model for patient prioritization. Likewise, the analysis of the main barriers and benefits is fundamental to consolidating this model of care and ensuring its expansion in the region.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Analysis of the virtual healthcare model in Latin America: a systematic review of current challenges and barriers

De La Torre,

Diaz,

Perdomo

2024

mHealth

View full text Add to dashboard Cite

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“…43 A limitation of the study was that only a small set of focus groups were held with haemophilia patients. However, similar themes, sub-themes, and sample sizes 44 arose among the focus groups, and it should be considered that haemophilia is a rare disease.…”

Section: Discussionmentioning

confidence: 97%

Barriers and facilitators of physical activity in adults with severe haemophilia: A qualitative study

Cotino,

Pérez‐Alenda,

Cruz‐Montecinos

et al. 2023

Haemophilia

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BackgroundPeople with haemophilia (PWH) tend to be less physically active than the general population, but there is a lack of research on the specific barriers and facilitators affecting their participation in physical activities.ObjectivesThis study aims to explore perceived barriers and facilitators to physical activity in severe PWH.DesignAn explorative qualitative study based on focus groups.MethodsFour focus groups including 16 participants (severe haemophilia A patients) were conducted to examine the factors perceived as facilitators or barriers to haemophiliacs engaging in physical activity. One researcher conducted a thematic analysis of all data.ResultsThree themes were identified: body function, personal factors, and environmental factors. Key facilitators identified were access to prophylaxis treatment to reduce the risk of bleeding(s), the enjoyability of physical activity, fitness and health motives, social interaction, support, and low cost. PWH faced additional barriers to being physically active including hurtful joints, mobility issues, haemophilic arthropathy, dislike or disinterest, lack of motivation, fear of injury, tiredness, lack of time, lack of guidance, negative social influence, restriction, and lack of coordination of prophylaxis treatment.ConclusionThis exploratory study demonstrated that participation in physical activity in PWH is influenced not only by their own abilities and attitudes, but also by external variables, including family, friends, healthcare professionals, structures, and communities. The results of this study may be used to assist caregivers and health professionals, inform programs, interventions, and policies to promote physical activity and health in severe PWH.

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“…Hybrid and unsupervised modalities are potential modalities to be included in clinical practice. For example, home exercises and telerehabilitation was perceived by PWH as a safe and effective intervention to improve physical condition 31,60 . However, more literature is needed to know the effectiveness of hybrid and unsupervised modalities.…”

Section: Discussionmentioning

confidence: 99%

Exercise variables and pain threshold reporting for strength training protocols in people with haemophilia: A systematic review of clinical trials

et al. 2023

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Introduction: Although strength exercise is often prescribed for people with haemophilia (PWH), it remains unknown how exercise variables and pain thresholds are used to prescribe strength training in PWH. Aim: To analyse how strength exercise variables and pain thresholds have been used to prescribe strength training in PWH. Methods: A systematic search was conducted in PubMed, Embase, Web of Science, CENTRAL and CINAHL databases from inception to 7 September 2022. Studies whose intervention included strengthening training in adults with haemophilia were included. Two independent reviewers were involved in study selection, data extraction and risk of bias assessment.Results: Eighteen studies were included. The least reported variables among the studies were: prophylactic factor coverage (11.1%), pain threshold/tolerability (5.6%), intensity (50%), total or partial range of motion (27.8%), time under tension (27.8%), attentional focus modality (0%), therapist experience in haemophilia (33.3%) and adherence assessment (50%). In contrast, weekly frequency (94.4%), duration (weeks) (100%), number of sets/repetitions (88.9%), repetitions to failure/not to failure (77.8%), types of contraction (77.8%), rest duration (55.6%), progression (55.6%), supervision (77.8%), exercise equipment (72.2%) and adverse event record (77.8%) had a higher percentage of reported (>50% of studies). Conclusion: Future research on strength training for PWH should improve information on pain threshold and other important variables such as prophylactic factor

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Safety and effectiveness of telerehabilitation program in people with severe haemophilia in Chile. A qualitative study

Cited by 8 publications

References 37 publications

Analysis of the virtual healthcare model in Latin America: a systematic review of current challenges and barriers

Analysis of the virtual healthcare model in Latin America: a systematic review of current challenges and barriers

Barriers and facilitators of physical activity in adults with severe haemophilia: A qualitative study

Exercise variables and pain threshold reporting for strength training protocols in people with haemophilia: A systematic review of clinical trials

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