Sailing in a sea of perplexity: Family caregivers' experience of patients with delirium

Huang, Li-Jung; Tsai, Hsiu‐Hsin; Wang, Yiwen; Chou, Chun Liang

doi:10.1111/nicc.12620

Cited by 9 publications

(17 citation statements)

References 18 publications

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“…In a study by Huang et al, the experience of carers of ICU patients with delirium was described as ‘Sailing in a sea of perplexity’. This was due to unfamiliarity with the ICU environment and a lack of knowledge about the care of patients with delirium [ 21 ]. In our study, many patients pointed out that if they had been informed earlier about the possibility of changing their behavior, they may have found it easier to manage it.…”

Section: Discussionmentioning

confidence: 99%

“…This points to the need for improved communication between medical staff and patients. Similarly, in a study by Huang LJ et al, difficulties in decision-making among caregivers were due to limited knowledge of the patient’s medical needs and limited communication with ICU staff [ 21 ]. In a study by Bohart et al, relatives described the need for both written and verbal information about delirium from medical staff [ 20 ].…”

Section: Discussionmentioning

confidence: 99%

“…This gives them a feeling of relief and understanding [ 20 ]. In the Huang et al study, families whose relatives had delirium experienced uncertainty, fear and anxiety [ 21 ]. In our study, we also included the perspective and experiences of ICU patients.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Patients’ and Relatives’ Experiences of Delirium in the Intensive Care Unit—A Qualitative Study

Lange

Mędrzycka‐Dąbrowska

Friganović

et al. 2022

IJERPH

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(1) Introduction: Delirium is a cognitive disorder that affects up to 80% of ICU patients and has many negative consequences. The occurrence of delirium in an ICU patient also negatively affects the relatives caring for these patients. The aim of this study was to explore patients’ and their families’ experiences of delirium during their ICU stay. (2) Method: The study used a qualitative design based on phenomenology as a research method. A semi-structured interview method was used to achieve the aim. The responses of patients and their families were recorded and transcribed, and the data were coded and analyzed. (3) Results: Eight interviews were conducted with past ICU patients who developed delirium during hospitalization and their family members. The mean age of the participants was 71 years. Of the eight patients, 2 (25%) were female and 6 (75%) were male. The relationships of the 8 carers with the patients were wife (in 4 cases), daughter (in 2 cases), and son (in 2 cases). The average length of time a patient stayed in the ICU was 24 days. The following themes were extracted from the interviews: education, feelings before the delirium, pain, thirst, the day after, talking to the family/patient, and return home. (4) Conclusions: Post-delirium patients and their families feel that more emphasis should be placed on information about delirium. Most patients feel embarrassed and ashamed about events during a delirium episode. Patients fear the reaction of their families when delirium occurs. Patients’ families are not concerned about their relatives returning home and believe that the home environment will allow them to forget the delirium events more quickly during hospitalization.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Patients’ and Relatives’ Experiences of Delirium in the Intensive Care Unit—A Qualitative Study

Lange

Mędrzycka‐Dąbrowska

Friganović

et al. 2022

IJERPH

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“…Our scoping review identified 209 articles, from which 13 articles reporting the experiences and attitudes of family/carers of ICU patients who developed delirium during hospitalization were included (Figure 2). Of the included studies, eight were qualitative studies (15)(16)(17)(18)(19)(20)(21)(22), three were quantitative studies (23-25), and two were reviews (one systematic review and one integrative review) (26, 27). The studies were conducted in North America (n = 5), Europe (n = 4), South Africa (n = 1), Asia (n = 1).…”

Section: Resultsmentioning

confidence: 99%

“…According to families and relatives, one of the barriers was inadequate communication between medical staff and carers (15)(16)(17)(18)(19)22). Families often feel uncertain about the interventions they are allowed to perform with their relative.…”

Section: Discussionmentioning

confidence: 99%

Family experiences and attitudes toward care of ICU patients with delirium: A scoping review

Lange

Mędrzycka‐Dąbrowska

Friganović

et al. 2022

Front. Public Health

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IntroductionThe family has an important role in the care of the ICU patient. Research shows that the implementation of non-pharmacological interventions to prevent delirium, including interventions with the family, can reduce the incidence of delirium. The aim of this review was to search the available literature about the experiences and attitudes of family/carers of ICU patients diagnosed with delirium during hospitalization.MethodsA scoping review method was used to map terms relevant to the involvement of relatives in the care of critically ill patients with delirium. To identify studies, the following databases were searched: PubMed, Scopus, EBSCO, Web of Science, and Cochrane Library. The database search was ongoing from 15 July 2022, with a final search on 4 August 2022.ResultsThirteen articles reporting on the experiences and attitudes of family/carers of ICU patients who developed delirium during hospitalization were included in the scoping review. Of the included studies, eight were qualitative studies, three were quantitative studies and two were reviews (systematic review and integrative review). The studies were conducted in North America, Europe, South Africa, and Asia. Our findings show that carers experienced adverse effects associated with delirium in ICU patients such as stress, anxiety, embarrassment, uncertainty, anger, shock. Families/relatives need both emotional and informational support from medical staff.ConclusionRelatives want to be involved in the care of the delirium patient, although this needs improvement in some aspects of care such as: lack of awareness, family/relatives knowledge of delirium, improved education, and communication with medical staff. Recognition of delirium by families is acceptable and feasible. Family involvement may induce an increased anxiety, but this aspect needs further research.

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Experiences of relatives of patients with delirium due to an acute health event - A systematic review of qualitative studies

Meyer,

Mauch,

Seeger

et al. 2023

Applied Nursing Research

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Sailing in a sea of perplexity: Family caregivers' experience of patients with delirium

Cited by 9 publications

References 18 publications

Patients’ and Relatives’ Experiences of Delirium in the Intensive Care Unit—A Qualitative Study

Patients’ and Relatives’ Experiences of Delirium in the Intensive Care Unit—A Qualitative Study

Family experiences and attitudes toward care of ICU patients with delirium: A scoping review

Experiences of relatives of patients with delirium due to an acute health event - A systematic review of qualitative studies

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