School Functioning and Disease Severity in Boys with Hemophilia

Woolf, Alan D.; Rappaport, Leonard; Reardon, Peter; Ciborowski, Jean; D’Angelo, Emanuela; Bessette, J

doi:10.1097/00004703-198904000-00004

Cited by 26 publications

(16 citation statements)

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“…These results confirm previous reports of academic underachievement in children with hemophilia; some previous studies indicated that both HIV-positive and HIV-negative children with hemophilia score below the mean for their ages on similar academic achievement measures (Sirois & Hill, 1993), and others reported poor performance on such tests relative to IQ scores (Colegrove & Huntzinger, 1994;Loveland et al, 1994;Woolf et al, 1989). Our results extend these findings to the siblings of children with hemophilia.…”

Section: Discussionsupporting

confidence: 92%

Longitudinal investigation of neuropsychological functioning in children and adolescents with hemophilia and HIV infection

Smith

Minden

Netley

et al. 1997

Developmental Neuropsychology

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Section: Discussionsupporting

confidence: 92%

Longitudinal investigation of neuropsychological functioning in children and adolescents with hemophilia and HIV infection

Smith

Minden

Netley

et al. 1997

Developmental Neuropsychology

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“…In one study, 10 standardized achievement tests were administered to 22 children with hemophilia. Although the participants received average grades in school, 27% scored more than two levels below their grade on standardized reading tests, and 45% scored more than two grade levels below on standardized math tests.…”

Section: Introductionmentioning

confidence: 99%

High School Completion Rates Among Men with Hemophilia

Drake

Soucie

Cutter

et al. 2010

American Journal of Preventive Medicine

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Background: The benefıts of a high school diploma are well documented. Studies indicate that people with hemophilia have lower than average academic achievement, particularly if they have Ͼ12 bleeding episodes annually.Purpose: This study compares the high school graduation rate of men with hemophilia to that of the U.S. population of men.Methods: Data were obtained from the Universal Data Collection Program, a surveillance project conducted by approximately 130 hemophilia treatment centers in the nation. Data from 7842 men aged Ն18 years were evaluated to determine high school graduation status and were analyzed by race/ethnicity and severity of hemophilia. These data were collected between 1998 and 2008, and analysis was conducted in 2009.Results: Men with hemophilia A had higher or similar high school graduation rates across all racial/ethnic groups and all levels of hemophilia severity, compared with U.S. men of the same age. Graduation rates for black and Hispanic men with hemophilia B were higher or similar to rates of U.S. men, but rates for whites were lower, especially among those with moderate and mild disease. However, when graduation rates were controlled for areas where Amish populations reside, differences in graduation rates for whites disappeared. Conclusions:In this study, participants obtained hemophilia care at comprehensive hemophilia treatment centers. This multidisciplinary, family-centered care emphasizes prevention of complications, encourages medically supervised disease management, and facilitates psychosocial development. The care aims to maximize the affected child's participation in school. This care approach may partially explain the higher-than-expected high school graduation rates among the study population, which is affected by a rare, chronic, and potentially debilitating disorder.(Am J Prev Med 2010;38(4S):S489 -S494)

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“…In their study, Paul E et al found 5.5% of children with hemophilia missed school more than 11 days per year due to a joint problem [9]. Woolf A et al found that school absenteeism is a continuing problem for hemophiliac children with the average hemophiliac missing 18 school days in an academic year [2]. In our data, Children with hemophilia expressed many difficulties in their daily living at school.…”

Section: Resultsmentioning

confidence: 43%

“…Repeated bleeding into joints may result in orthopedic problems due to hemophilic arthritis and thus limit activities and restrict social participation [1]. Despite advances in treatment, children with he- mophilia continue to miss more school than their classmates, which may put them at a disadvantage both academically and socially [2,3]. Even when they are in school, they are often not allowed to participate in athletic activities, which may interfere with the development of social skills, self-esteem, and friendships [4].…”

Section: Introductionmentioning

confidence: 99%