School Reintegration for Youth with Health-Related Conditions

Riccio, Cynthia A.; Maykel, Cheryl; Bray, Melissa A.; Perdue, Elizabeth; Frye, Sara S.

doi:10.1007/s40688-021-00376-3

Cited by 2 publications

(2 citation statements)

References 50 publications

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“…Continuing education efforts by school personnel delivered to these professionals with general guidelines may increase their awareness of the mechanisms involved and requirements for school services. This is particularly important when the child with a chronic health-related disorder requires hospitalization or cannot attend school for some period of time (Riccio et al, 2022).…”

Section: Continuity Of Care and Professional Developmentmentioning

confidence: 99%

Conclusion: Looking back and looking forward.

Bray¹,

Perfect²,

Riccio³

2023

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T his volume provides critical information for a multitude of disorders affecting different body systems with potentially long-term effects on child outcomes. Although there are obvious differences across disorders and for the individuals who are affected, some considerations cut across various health-related disorders. The goal of this chapter is to synthesize the knowledge base accumulated here, as well as what is known about the more frequent disorders not covered (e.g., attention-deficit/hyperactivity disorder). This synthesis is intended to aid in generalization of knowledge across currently identified disorders and new disorders or complications (e.g., those that may present as aftereffects of the COVID-19 pandemic).Regardless of the disorder, medical, cognitive/academic, and social/behavioral factors should be considered in meeting the needs of those with any health-related condition. At the same time, the effects on a given individual may range from minimal to severe in one or all of those functional domains, with variability as the child develops. A theme emerged across disorders, that for most of these conditions, there is vast variability in skill acquisition and execution of those skills on a daily basis. This variability increases with consideration of multiple body system effects, availability of resources within health and educational systems, and impacts on the family system.A gap persists in the consideration of educational and psychosocial needs for these children and youth by medical professionals, many of whom lack fundamental knowledge of the education system and how it operates in providing services to students with health care needs. Similarly, educators and school-based

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Section: Continuity Of Care and Professional Developmentmentioning

confidence: 99%

Conclusion: Looking back and looking forward.

Bray¹,

Perfect²,

Riccio³

2023

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“…Furthermore, parental perceptions of QoL related to their children’s health can also influence school attendance [ 53 ]. An American National Survey with more than 400 children with congenital heart disease reported that they are three times more likely to miss more than 10 days of daycare/school a year [ 54 ]; consequently, school reintegration during and after treatment is paramount [ 55 ] for improving the QoL—and probably the self-esteem—of these patients. Self-esteem levels in youth with CMC are actually significantly lower than their healthy peers, particularly once hospitalization and treatment have ended [ 56 , 57 ].…”

Section: Introductionmentioning

confidence: 99%

Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study

2023

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Well-being in children with a complex medical condition (CMC) impacts the way they view and communicate with their immediate environment as well as their development, and it is thus necessary to inquire about the contextual issues and different needs that a CMC carries. This pilot study aimed to identify factors of pediatric well-being from the experience of hospitalization and convalescence of youth with CMC and their caregivers, in a cross-sectional analysis using a selective methodology complemented by an indirect observational methodology. We analyzed the quality of life and well-being of youth with CMC using a validated KINDLR questionnaire. We collected 35 surveys: 11 from youth with CMC and 24 from caregivers from Spain. We focused the analysis on sociodemographics, well-being perceptions, and coping strategies variables. The results show that children aged between 3 and 6 years and their caregivers scored physical well-being the lowest out of all dimensions of well-being, and they scored family well-being the highest. Moreover, youth between the ages of 7 and 17 years and their caregivers scored school-related well-being the lowest. Coping strategies to deal with stressful situations differ between children and caregivers. While children mainly engage in social withdrawal, caregivers engage in cognitive restructuring and expressing emotions. However, we did not find a relationship between coping strategies and well-being perceptions. These results highlight the need to facilitate communication spaces with both families and health professionals where the voice of children is considered.

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School Reintegration for Youth with Health-Related Conditions

Cited by 2 publications

References 50 publications

Conclusion: Looking back and looking forward.

Conclusion: Looking back and looking forward.

Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study

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