Scoliosis surgery in social media: a natural language processing approach to analyzing the online patient perspective

Dominy, Calista; Arvind, Varun; Tang, Justin E.; Bellaire, Christopher P; Pasik, Sara; Kim, Jun; Cho, Samuel K.

doi:10.1007/s43390-021-00433-0

Cited by 16 publications

(9 citation statements)

References 12 publications

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“…The proportion of positive and negative tweets may vary by the social media platform. 34 However, Twitter is still one of the largest social media platforms. Future work should investigate the differences in perspective and sentiment analysis by the social media platform.…”

Section: Discussionmentioning

confidence: 99%

Twitter Perspectives on Cochlear Implantation: Sentiment and Thematic Analysis

Feier

Nguyen

Choi

2023

Otolaryngol.--head neck surg.

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ObjectiveTo identify themes that contribute to the most positive and negative perspectives of cochlear implants (CIs) on Twitter.Study DesignA cross‐sectional qualitative study.SettingSocial media (Twitter).MethodsIn this study, all English‐language original tweets mentioning “cochlear implant” from 2019 to 2021 were collected from Twitter's Academic Research Database using a custom Python script. Sentiment analysis was performed using VADER, a sentiment analysis tool built to analyze the inherent positivity or negativity of social media posts. Tweets were quantitatively sorted by compound sentiment score (range −1 [most negative] to 1 [most positive]). Thematic analysis based on grounded theory was performed on the most positive, negative, and “liked” tweets.ResultsOf the 19,376 tweets included, the average (standard deviation) compound sentiment score was 0.21 (0.46). A total of 10,375 (53.5%) tweets had a positive tone, 4965 (25.6%) were neutral and 4036 (20.8%) were negative. Of the 100 most negative tweets, the most prominent themes were media representation (21.9%), the controversy of CI within the Deaf community (19.8%), and unrelated to direct patient experience (16.7%). Of the 100 most positive tweets, the most prominent themes were tweets of happiness and support (25.0%), tweets unrelated to direct patient experience (18.0%), and tweets about hearing new sounds (10.0%).ConclusionWhile the majority of tweets on CI carried a positive tone, there are ongoing challenges with the stigma surrounding CI. Public perspectives of CI on social media may help clinicians counsel CI patients and elucidate issues that lead to newfound acceptance or ongoing stigma of CI in the general population.

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Section: Discussionmentioning

confidence: 99%

Twitter Perspectives on Cochlear Implantation: Sentiment and Thematic Analysis

Feier

Nguyen

Choi

2023

Otolaryngol.--head neck surg.

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“…Moreover, truth be told, God answered my questions as He often does. Post scoliosis repair, after more than 10 years down the line in Malaysian academia, the answer became apparent: reveal everything in hopes that the truth will set us all free (Calloni et al, 2017;Dominy et al, 2021;Mancarella et al, 2019;Mummareddy et al, 2017;Yaltırık et al, 2017). Having fallen into the toilet bowl at Tung Shin hospital soon after the scoliosis repair while I was undergoing acupuncture sessions sent me reeling into fits of laughter, and I found myself no longer refraining from my thoughts or my actions, and I made it abundantly clear to my students, the extension of myself, that this packaging is as it is -take it or leave it.…”

Section: The Politicians -Dr M's Methods and How I Grew Up With Themmentioning

confidence: 99%

“…It was a very painful time for me after my scoliosis surgery in every sense of the word painful, although now in retrospect, I have come to the realisation that that pain was necessary. However, it does not negate the mental and psychological anguish I had undergone and what I subjected my poor mother and my closest students to (Dominy et al, 2021). Having always been the strong one and in control, I needed to be cared for in every sense for the first time.…”

Section: Spina Bifida and Scoliosismentioning

confidence: 99%

I have spina bifida and what this means to Malaysia

Abdul-Aziz

2022

Neurosci Res Notes

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In December of 2002, the Malaysian government sent one very highly opinionated individual with spina bifida to do her PhD on her medical condition at University College London (UCL). Truth be told, in retrospect, during the phone interview with Professor Andrew J. Copp, this particular Malaysian student was not aware that her would-be PhD supervisor at that time most likely may not have considered the extent of the severity of her disability and the extent of having to deal with an individual with needs, different from other postgraduate students. UCL and England, being champions of equal opportunity, the focus during the London-Kuala Lumpur phone interview was entirely on her laboratory experience. The individual knew one thing and one thing alone, that she wanted to be regarded as capable purely on the basis of her academic abilities, and keenness on the topic and that she knew she had a huge plus on her side, that the Malaysian government would finance her studies (being of Bumiputera status by virtue of her mother's ethnicity) and having passed all the relevant exams and that all she needed to do was to make the case to procure a PhD studentship from a top global university.

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“…On the contrary, many personal accounts and experiences are shared via blogs, websites, or social media -where young people with scoliosis can freely express themselves, all of which are still not currently recognised as sources of scientific evidence [7,35]. There have been some movements in the literature to start using these sources of experience for medical practitioners to learn more about their patients [36,37].…”

Section: Personal Experiences Connected To Scoliosismentioning

confidence: 99%

Giving Voice to Young People: Evocative Autoethnography as a Method of Researching Personal Experiences Connected o Adolescent Idiopathic Scoliosis. A discursive article

Grantham¹,

Płaszewski²,

Byczkowska-Owczarek³

2023

phr

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Background: Adolescent idiopathic scoliosis (AIS) is one of the most common spine disorders amongst young people, with a rich body of biomedical research mainly focused on the effects of interventions. However, there still needs to be more research regarding personal experiences connected to this complex health condition, including people's views, preferences, or attitudes, even though they constitute evidence-based practice and person-centred care as understood today. This work aims to present that addressing this serious evidence-to-practice gap is needed and possible via qualitative research, specifically evocative autoethnography. Materials and methods:Evocative autoethnography will thus be introduced, described, and reviewed in terms of its usefulness in AIS research, discussing two autoethnographies addressing and based upon scoliosis experiences of the first author of this work, that can serve as examples of how this method can be utilised. Results and conclusions:Evocative autoethnography allows analysing and often exploring such important issues related to AIS as body image, emotional difficulties, or psychological distress, informing health care professionals and rehabilitation practice. This is especially important in the field of AIS, where the personal consequences, coping with the condition, as well as a choice of treatment adherence are often profound and challenging for the patients and their families.

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Scoliosis surgery in social media: a natural language processing approach to analyzing the online patient perspective

Cited by 16 publications

References 12 publications

Twitter Perspectives on Cochlear Implantation: Sentiment and Thematic Analysis

Twitter Perspectives on Cochlear Implantation: Sentiment and Thematic Analysis

I have spina bifida and what this means to Malaysia

Giving Voice to Young People: Evocative Autoethnography as a Method of Researching Personal Experiences Connected o Adolescent Idiopathic Scoliosis. A discursive article

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