Examining Health‐Related Quality of Life (HRQoL), disease‐specific quality of life, and coping behaviors in adolescents with renal disease

Abstract

Introduction: To examine and compare the Health-Related Quality of Life (HRQoL) and disease-specific HRQoL of pediatric renal dialysis and transplant patients based on patients' perspectives. The coping strategies employed by these two groups of patients were also investigated. Methods: Ten adolescents who had undergone kidney transplants (mean age 17.80 Ϯ 1.55 years) and 19 adolescents who were receiving dialysis treatments (mean age 17.16 Ϯ 2.19 years) participated in the study and were asked to complete three questionnaires: PedsQL 4.0 Generic Core Module, PedsQL End-Stage Renal Disease Module, and the KIDCOPE.

Impact of chronic kidney disease on health-related quality of life in the pediatric population: meta-analysis

“…The evaluation of HRQL in pediatric patients with CKD has been a topic of interest in different countries of the world, highlighting publications from Brazil, 25 , 27 Bulgaria, 26 Argentina, 38 Egypt, 39 Singapore, 40 United States, 41 , 42 , 43 , 44 Thailand, 45 England, 46 France, 47 Stockholm, 48 Greece, 49 Australia, 50 and Holland. 51 …”

“… PhF, EF, SF, FScl. N/A *El Shafei et al 26 11.9 ± 3.1 55 5 Peritoneal dialysis Transplant *Marciano et al 27 12 136 2−5 Peritoneal dialysis Mehring et al 38 9,6 ± 4 84 1−5 N/A Abd-Elmonem et al 39 10.62 ± 1.25 32 3−4 Peritoneal dialysis Tay et al 40 17.38 ± 1.99 29 3−5 Pediatric Quality of Life (QL) Inventory 4.0. PedsQL 3.0 (End Stage Renal Disease Modul).…”

“…Studies 26 , 27 , 39 , 40 , 41 , 42 , 46 , 47 , 48 , 49 , 50 , 51 indicate the treatment modality of the pediatric population with CKD, including peritoneal dialysis, hemodialysis and kidney transplantation, only the study by Heath et al 46 included a population that received oral medication.…”

Health‐related quality of life for pediatric patients with end‐stage kidney disease: A systematic review and meta‐analysis of the Pediatric Quality of Life Inventory (PedsQL)

“…8,9 Along with clinical treatments, arising comorbidities associated with ESRD can adversely affect physical and psychosocial HRQoL. 10 Multiple case-controlled studies have reported lower HRQoL in pediatric ESRD patients compared with their healthy counterparts, 8,[11][12][13][14][15][16] but aside from lowered physical functioning, little is understood about how the RRT modalities impact the different dimensions of HRQoL. 17,18 Most HRQoL studies examining pediatric ESRD have been performed in small patient samples, producing conflicting results for subscale determinants of HRQoL, limiting generalizability and leading to inconclusive health-related predictors and recommendations.…”

Factors Associated with Coping Mechanisms among Egyptian Patients with End Stage Renal Disease and on Haemodialysis

“…Since coping with the eff ects of ESRD is essential for patients who receive haemodialysis treatment ( Tay, Wan, Aw, & Kim, 2011 ), a number of studies have thoroughly investigated the issue. Norhayati, et al .…”