<scp>P</scp>ulkurlkpa: The joy of research in <scp>A</scp>boriginal communities

Jeffries-Stokes, Christine; Stokes, Annette; McDonald, Lachlan

doi:10.1111/jpc.13008

Cited by 8 publications

(10 citation statements)

References 12 publications

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“…Contrary to what might have been expected, people responded positively to the program. The majority of the target population participated in clinical screening, 16 Community Leaders publically endorsed the project, many participants committed to changing their lifestyle and all participants endorsed the preventive message for others – especially the young. The data suggest that this outreach clinical service and community‐based approach to health promotion is well‐accepted, and worth implementing more broadly.…”

Section: Discussionmentioning

confidence: 99%

“…There were high rates of participation in both the clinical screening and arts–health components of the project, 16 and it is difficult to separate the unique contributions made by each. We note from participant responses that, in addition to promoting participation in clinical screening, the arts–health residencies made unique contributions to the health promotion messages of the WDKHP and produced a range of community arts outcomes that can be used to further promote these health promotion messages in the future 16,32 …”

Section: Discussionmentioning

confidence: 99%

“…That means that most people in the community were affected by the diagnosis either personally or through a family member. Despite this, participation in clinical screening among Aboriginal people across the 10 communities was documented to be more than 80%, with higher uptake among a number of the remote communities 16 . This suggested that the combined program was addressing the fear engendered by the disease.…”

Section: Methodsmentioning

confidence: 99%

“…This work ranged from community advocacy (e.g. towards provision of healthy foods in shops or roadhouses), to assistance in preparing grant applications for community infrastructure 16 …”

mentioning

confidence: 99%

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Positive community responses to an arts–health program designed to tackle diabetes and kidney disease in remote Aboriginal communities in Australia: a qualitative study

Sinclair

Stokes

Jeffries-Stokes

et al. 2016

Australian and New Zealand Journal of Public Health

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Objective: The Western Desert Kidney Health Project (WDKHP) is an innovative clinical screening, arts–health and community development program, staffed by Aboriginal health workers. The WDKHP is aimed at prevention and early detection, improving the chance of better management of kidney disease among people in 10 predominantly Aboriginal communities in rural Western Australia. This paper aimed to understand community responses to the WDKHP in three of these communities. Methods: Interviews were undertaken with 26 Aboriginal people living in three remote communities. Community responses were analysed with attention to the social organisation of participants in each community and a focus on the perspectives of key groups, identified here as ‘Community Leaders’, ‘Homelanders’, ‘Refuge Seekers’ and ‘Dislocated’. Results: Participants from all groups reported that the WDKHP was highly acceptable, and an effective means of drawing attention to the need for prevention, early detection and management of diabetes and kidney disease. The integration of Aboriginal health workers to explain the project contributed to the high rates of participation in clinical screening. Conclusions: Outreach clinical services can be an appropriate method of engaging people in remote communities in addressing diabetes and kidney disease. Implications: The remote community setting can act as an ‘enabler’ of healthy lifestyle for Aboriginal people, particularly when augmented by well‐designed outreach programs.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

“…This work ranged from community advocacy (e.g. towards provision of healthy foods in shops or roadhouses), to assistance in preparing grant applications for community infrastructure 16 …”

mentioning

confidence: 99%

See 2 more Smart Citations

Positive community responses to an arts–health program designed to tackle diabetes and kidney disease in remote Aboriginal communities in Australia: a qualitative study

Sinclair

Stokes

Jeffries-Stokes

et al. 2016

Australian and New Zealand Journal of Public Health

Self Cite

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“…These include detailed goals and targets specifying objectives and use of the High Level Political Forum to provide peer review of implementation performance 18 , pp. [33][34].…”

Section: Introductionmentioning

confidence: 99%

Water and health interlinkages of the sustainable development goals in remote Indigenous Australia

et al. 2020

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Australia has committed to the 17 Sustainable Development Goals (SDGs) goals under the UN's 2030 Agenda. However, these goals may not be fully achieved in Australia under current policy settings. Australia reports success in achieving the goal for quality and access to safe drinking water and sanitation (SDG 6), though for Australians living in remote Indigenous communities, the experience is very different. Furthermore, the burden of disease is higher in remote communities (SDG 3). Many of these diseases are waterborne or hygiene-related, including prevalence in some remote Indigenous communities of endemic trachoma eye infection, preventable through access to functioning water services and available soap. This research provides a case for identifying, then understanding the interlinkages between SDGs 3, 6, and others locally, as well as nationally. This will enable governments to enact policies for long-term sustainable solutions for remotely-located and marginalised peoples in Australia in line with Agenda 2030 commitments.

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A guide to missing data for the pediatric nephrologist

2018

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Missing data is an important and common source of bias in clinical research. Readers should be alert to and consider the impact of missing data when reading studies. Beyond preventing missing data in the first place, through good study design and conduct, there are different strategies available to handle data containing missing observations. Complete case analysis is often biased unless data are missing completely at random. Better methods of handling missing data include multiple imputation and models using likelihood-based estimation. With advancing computing power and modern statistical software, these methods are within the reach of clinician-researchers under guidance of a biostatistician. As clinicians reading papers, we need to continue to update our understanding of statistical methods, so that we understand the limitations of these techniques and can critically interpret literature.

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Pulkurlkpa: The joy of research in Aboriginal communities

Cited by 8 publications

References 12 publications

Positive community responses to an arts–health program designed to tackle diabetes and kidney disease in remote Aboriginal communities in Australia: a qualitative study

Positive community responses to an arts–health program designed to tackle diabetes and kidney disease in remote Aboriginal communities in Australia: a qualitative study

Water and health interlinkages of the sustainable development goals in remote Indigenous Australia

A guide to missing data for the pediatric nephrologist

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