<scp>PAIN OUT</scp>: The making of an international acute pain registry

Zaslansky, Ruth; Rothaug, J.; Chapman, C. Richard; Bäckström, Ragnar; Brill, Silviu; Fletcher, Dominique; Fodor, Lucian; Gordon, Debra B.; Komann, Marcus; Konrad, Christoph; Leykin, Yigal; Pogatski-Zahn, E.; Puig, Margarita M.; Rawal, Narinder; Ullrich, K.; Volk, Thomas; Meißner, Winfried

doi:10.1002/ejp.571

Cited by 96 publications

(96 citation statements)

References 42 publications

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“…[5][6][7][8] The participating centres in 11 different European countries were able to collect prospective data from 889 patients 12 months after surgery using validated questionnaires. Data were collected without additional dedicated manpower through electronic communication, representing a new approach for a prospective European CPSP study.…”

Section: Discussionmentioning

confidence: 99%

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Chronic postsurgical pain in Europe

Fletcher¹,

Stamer²,

Pogatzki-Zahn³

et al. 2015

European Journal of Anaesthesiology

472

326

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Section: Discussionmentioning

confidence: 99%

“…[5][6][7] A standardised postoperative questionnaire has been developed, translated and validated in different European languages. 8 A collaboration between the PAIN OUT network and the European Society of Anaesthesiology (ESA) Clinical Trial Network provided an interesting opportunity to collect data on CPSP in a large European registry.…”

Section: Introductionmentioning

confidence: 99%

Chronic postsurgical pain in Europe

Fletcher¹,

Stamer²,

Pogatzki-Zahn³

et al. 2015

European Journal of Anaesthesiology

472

326

View full text Add to dashboard Cite

show abstract

“…This may partly be the result of some delay in developing the mechanisms for accessing rapidly and efficiently QPR data and disseminating it to relevant audiences [19]. Other registries appeared to either have a more sustainable business model because of hospital membership fees and support from associations [9, 67] or have an overall lower maintenance cost due to the use of electronic data collection systems linked to ERM [18]. …”

Section: Discussionmentioning

confidence: 99%

Development and Implementation of a Registry of Patients Attending Multidisciplinary Pain Treatment Clinics: The Quebec Pain Registry

Choinière

Ware

Pagé

et al. 2017

Pain Research and Management

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The Quebec Pain Registry (QPR) is a large research database of patients suffering from various chronic pain (CP) syndromes who were referred to one of five tertiary care centres in the province of Quebec (Canada). Patients were monitored using common demographics, identical clinical descriptors, and uniform validated outcomes. This paper describes the development, implementation, and research potential of the QPR. Between 2008 and 2013, 6902 patients were enrolled in the QPR, and data were collected prior to their first visit at the pain clinic and six months later. More than 90% of them (mean age ± SD: 52.76 ± 4.60, females: 59.1%) consented that their QPR data be used for research purposes. The results suggest that, compared to patients with serious chronic medical disorders, CP patients referred to tertiary care clinics are more severely impaired in multiple domains including emotional and physical functioning. The QPR is also a powerful and comprehensive tool for conducting research in a “real-world” context with 27 observational studies and satellite research projects which have been completed or are underway. It contains data on the clinical evolution of thousands of patients and provides the opportunity of answering important research questions on various aspects of CP (or specific pain syndromes) and its management.

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“…Other factors, such as patient characteristics and unmeasured effects of how care is delivered, also modify the response to pain treatment. 15 …”

Section: Discussionmentioning

confidence: 99%

Early Postoperative Pain and its Predictors in the Adult to Adult Living Donor Liver Transplantation Cohort Study

et al. 2016

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Background Little is known about how well postoperative pain is managed in living liver donors, despite pain severity being the strongest predictor of persistent pain with long-lasting disability. Methods We conducted a prospective multicenter study of 172 living liver donors. Self-reported outcomes for pain severity, activity interference, affective (emotional) reactions, adverse effects to treatment, and perceptions of care were collected using the American Pain Society Patient Outcomes Questionnaire-Revised. Mixed effects linear regression was used to identify demographic and psychosocial predictors of subscale scores. Results Donors were young (36.8±10.6) and healthy. Of 12 expert society analgesic recommendations for postoperative pain management, 49% received care conforming to 3 guidelines, and only 9% to 4 or 5. More than half reported adverse effects to analgesic treatment for moderate to severe pain that interfered with functional activity; however, emotional distress to pain was unexpectedly minimal. Female donors had higher affective (Beta=0.88, p=0.005) and adverse effects scores (Beta=1.33, p<0.001). Donors with 2 or more medical concerns prior to surgery averaged 1 unit higher pain severity, functional interference, adverse effects, and affective reaction subscale scores (Beta range 1.06–1.55, all p<0.05). Receiving information about pain treatment options increased perception of care subscale scores (Beta=1.24, p=0.001), while depressive symptoms before donation were associated with lower scores (Beta=-1.58, p=0.01). Conclusions Donors have a distinct profile of pain reporting that is highly influenced by psychological characteristics. Interventions to improve pain control should consider modifying donor behavioral characteristics in addition to optimizing pain care protocols.

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PAIN OUT: The making of an international acute pain registry

Cited by 96 publications

References 42 publications

Chronic postsurgical pain in Europe

Chronic postsurgical pain in Europe

Development and Implementation of a Registry of Patients Attending Multidisciplinary Pain Treatment Clinics: The Quebec Pain Registry

Early Postoperative Pain and its Predictors in the Adult to Adult Living Donor Liver Transplantation Cohort Study

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