Screening Adults with Down's Syndrome for Early Signs of Dementia

McBrien, Judith

doi:10.1108/14769018200900017

Cited by 4 publications

(6 citation statements)

References 6 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Where indicated, the clinician may consider requesting a computed tomography or magnetic resonance imaging brain scan to further investigate the decline in function (McBrien, 2009).…”

Section: Discussionmentioning

confidence: 99%

“…When there is an SCS increase ≥ 7 and/or an SOS increase ≥ 5, we suggest that a referral for a psychiatric assessment should be made. At this point, there should be consideration of requesting a full health screen and relevant bloods by the general practitioner (McBrien, 2009). This would allow to rule out reversible causes of dementia and delirium, including hypothyroidism, infection and folic acid abnormalities (e.g.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Screening and diagnosing dementia in people with Down’s syndrome: implications of using the DLD questionnaire

Perera

Kamieniarz

Iftikhar

et al. 2022

AMHID

View full text Add to dashboard Cite

Purpose The Dementia Questionnaire for People with Learning Disabilities (DLD) is one of the main screening and monitoring tools for dementia in people with Down’s syndrome (DS). As part of a quality improvement project to improve the care for people with DS and dementia in an intellectual disability service, the authors studied the screening and monitoring process by retrospectively investigating the use of DLD and exploring clinicians’ experience of using it. Design/methodology/approach DLDs completed in the service was retrospectively assessed. Changes in DLD scores were matched against people who received a clinical diagnosis of dementia. Data were analysed to estimate sensitivity, specificity and predictive values of DLD. A questionnaire was used to assess clinicians’ experience. Findings Data for 20 service users was collected. DLD cognitive scores showed 80% sensitivity and 60% specificity for the diagnosis of dementia, with a positive predictive value of 40% and negative predictive value of 90%. Staff found DLD to be easy to perform but time consuming. This led to the preparation of a decision tool for appropriateness of performing a DLD. Originality/value The results show that a negative DLD helps to exclude dementia where there is concern over cognitive decline, but a positive result is not specific enough to suggest the possibility of dementia. This shows that DLD may have limitations if used as a screening tool alone but could be used for the monitoring of the disease trajectory of those with a confirmed diagnosis as well as to establish a baseline DLD when a person is screened for dementia first.

show abstract

“…Where indicated, the clinician may consider requesting a computed tomography or magnetic resonance imaging brain scan to further investigate the decline in function (McBrien, 2009).…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Screening and diagnosing dementia in people with Down’s syndrome: implications of using the DLD questionnaire

Perera

Kamieniarz

Iftikhar

et al. 2022

AMHID

View full text Add to dashboard Cite

show abstract

“…In addition, Moran et al (2013) highlights recommendations for the evaluation and management of dementia in adults with intellectual disabilities. Generally of note is that ideally a baseline assessment be conducted at age 30 to capture an individual’s functioning before the potential onset of dementia, followed by reassessment every 2 years for those in their 40s and annually for those aged over 50 (McBrien, 2009). This enables the capturing of an accurate and extensive record of baseline skills’ level in people with intellectual disabilities, which is crucial for regular comparison and key to early diagnosis (Jethwa and Cassidy, 2010; O’Caoimh et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

Professional carers’ experiences of caring for individuals with intellectual disability and dementia

Cleary

Doody

2016

J Intellect Disabil

View full text Add to dashboard Cite

The number of people with intellectual disability living into old age and developing dementia continues to increase. Dementia presents a wide range of challenges for staff due to progressive deterioration. This article presents the findings from a narrative literature review of professional caregivers' experiences of caring for individuals with intellectual disability and dementia. Seven electronic databases were searched using Boolean operators and truncation to identify relevant literature. Search results were combined and narrowed to articles relevant to staff working with individuals with intellectual disability and dementia, and 14 articles met the criteria for review. Themes outlined in the review include staff knowledge of dementia, staff training in dementia, caregiving, challenging behaviour, pain management, mealtime support and coping strategies. Overall carers must review and adjust their care delivery and support to people with intellectual disability and dementia, not only in terms of identifying and responding to their health needs but also through collaborative team working within and across services.

show abstract

“…Bush and Beail (2004) state that the functioning of each person with an intellectual disability must only be compared to a baseline level taken when the person was healthy. It is suggested that baseline assessments for people with Down's syndrome should be in place at age 30 (Turk et al, 2001;McBrien, 2009). Undertaking a baseline assessment at an earlier age may not be accurate as there is evidence of ongoing neurodevelopment in late adolescence and early adulthood (Carr, 2000) Prospective assessments are carried out at a predefined interval schedule while reactive assessments occur when concerns re possible dementia have been raised.…”

Section: What Are We Trying To Assess and When?mentioning

confidence: 99%

Commentary on: a comparison of dementia assessment service provision across three English county intellectual disability services

Dodd

2021

TLDR

View full text Add to dashboard Cite

Purpose The purpose of this paper is to consider the issue of types of assessment offered by services for people with learning disabilities from the research study “A Comparison of Dementia Assessment Services for People with Intellectual Disabilities”. Design/methodology/approach The commentary is based on a review of the associated literature. Findings Assessment for possible dementia is a complex activity. The gold standard is to ensure that the assessment process is comprehensive including both direct assessments with the person and gathering information from key informants. The issues in not adopting this methodology are considered, as are issues in what services and assessments are called. Originality/value The commentary considers the studies presented from a practitioner perspective.

show abstract

Screening Adults with Down's Syndrome for Early Signs of Dementia

Cited by 4 publications

References 6 publications

Screening and diagnosing dementia in people with Down’s syndrome: implications of using the DLD questionnaire

Screening and diagnosing dementia in people with Down’s syndrome: implications of using the DLD questionnaire

Professional carers’ experiences of caring for individuals with intellectual disability and dementia

Commentary on: a comparison of dementia assessment service provision across three English county intellectual disability services

Contact Info

Product

Resources

About