Screening for cystic fibrosis

Britton, John; Knox, AJ; Miedzybrodzka, Z; Dean, John; Haites, Neva Elizabeth

doi:10.1016/0140-6736(91)92341-x

Cited by 12 publications

(3 citation statements)

References 4 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…There is a second area of medical ignorance about what it is like to be disabled. Sometimes, this is about simple clinical facts, such as how long people with cystic fibrosis are likely to live (Britton and Knox 1991). Many of those people who make pronouncements or policies based on how particular impairments are 'dreadful', are not the doctors who work closely with people and families affected.…”

Section: Ignorance About Disabilitymentioning

confidence: 99%

‘Losing the plot’? Medical and activist discourses of contemporary genetics and disability

Shakespeare

1999

Sociology Health & Illness

View full text Add to dashboard Cite

This paper highlights the absence of disability perspectives from research on the cultural construction of genetics. Specifically, it contrasts the discourse on disability emanating from the medical establishment, with the discourse on genetics emanating from the civil rights movement of disabled people. The rhetorical strategies of both positions are criticised, and greater communication and dialogue between different stakeholders in genetics is advocated.

show abstract

Section: Ignorance About Disabilitymentioning

confidence: 99%

‘Losing the plot’? Medical and activist discourses of contemporary genetics and disability

Shakespeare

1999

Sociology Health & Illness

View full text Add to dashboard Cite

show abstract

“…Yet the information people having screening are given stresses the chronic ill health picture of cystic fibrosis. Indeed, most leaflets produced by those offering cystic fibrosis screening have been criticised as being too pessimistic about the prognosis for the condition 6. The demand for screening and the acceptance of subsequent termination might be less if potential parents were given a fuller view of the disease.…”

Section: How Many People Want Screening?mentioning

confidence: 99%

Controversies in Management: Psychological consequences are unclear

Marteau¹

1994

BMJ

View full text Add to dashboard Cite

“…There is actually substantial interest in prepregnancy screening. This is signficant because the acceptability of screening to the general population is likely to alter with the improving clinical picture for cystic fibrosis3 as well as gene therapy.…”

mentioning

confidence: 99%