2024
DOI: 10.1038/s41431-023-01531-5
|View full text |Cite
|
Sign up to set email alerts
|

Secondary use of genomic data: patients’ decisions at point of testing and perspectives to inform international data sharing

Melissa Martyn,
Emily Forbes,
Ling Lee
et al.

Abstract: International sharing of genomic data files arising from clinical testing of patients is essential to further improve genomic medicine. Whilst the general public are reluctant to donate DNA for research, the choices patients actually make about sharing their clinical genomic data for future re-use (research or clinical) are unknown. We ascertained the data-sharing choices of 1515 patients having genomic testing for inherited conditions or cancer treatment from clinical consent forms. To understand the experien… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...

Citation Types

0
0
0

Year Published

2024
2024
2024
2024

Publication Types

Select...
2

Relationship

0
2

Authors

Journals

citations
Cited by 2 publications
references
References 31 publications
0
0
0
Order By: Relevance