Seeking help for obsessive compulsive disorder (<scp>OCD</scp>): a qualitative study of the enablers and barriers conducted by a researcher with personal experience of <scp>OCD</scp>

Robinson, Karen; Rose, Diana; Šalkovskis, Paul M.

doi:10.1111/papt.12090

Cited by 20 publications

(15 citation statements)

References 35 publications

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“…Increased social support and having more than five close friends or relatives were associated with decreased risk of experiencing stigma in the univariate analysis. This is consistent with a number of other studies including Rusch et al [ 21 ], Robinson et al [ 37 ] and Moore & Ayers [22]- who found that use of internet forums by women with post-natal mental illness enabled them to disclose their illness to others. This raises an interesting question for future work in terms of the distinction between social support from peers with a diagnosis of mental illness themselves, and those without mental illness.…”

Section: Discussionsupporting

confidence: 91%

Risk factors associated with experienced stigma among people diagnosed with mental ill-health: a cross-sectional study

et al. 2020

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Purpose: to examine the relationship between religiosity, social support, trauma, quality of life and experienced stigma of mental illness amongst a population diagnosed with mental ill-health. Methods: A cross-sectional survey of day service users in Northern Ireland (n = 295) covering a range of issues including religiosity, social support, quality of life and prior experience of trauma. Stigma was measured using a recognised stigma scale. We used multinomial logistic regression to examine risk factors associated with experienced stigma. Results: Univariate analysis showed significant associations between stigma and age, number of friends, social support, quality of life and prior experience of trauma. Age, quality of life, and trauma remained independently associated with stigma in a multivariate logistic regression model (x 2 (12) = 98.40, p < 0.001). Conclusion: Younger people, those with less social support, prior experience of trauma and with poorer quality of life are at increased risk of experiencing stigma related to their diagnosis of mental illness. The findings provide further understanding of stigma and are useful for those overseeing programmes to improve access to mental health treatment.

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Section: Discussionsupporting

confidence: 91%

Risk factors associated with experienced stigma among people diagnosed with mental ill-health: a cross-sectional study

et al. 2020

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“…These findings, together with other reasons for delayed help-seeking identified in the literature (e.g. stigma[22]), offer insight into the reasons for the substantial delay in help-seeking observed in OCD [23]. The findings suggest that the conceptualisation of OCD as a health problem is a crucial step necessary in initiating appropriate health related behaviour, such as seeking treatment through the medical system including psychiatry or clinical psychology.…”

Section: Discussionmentioning

confidence: 71%

Illness perceptions in people with obsessive-compulsive disorder; A qualitative study

et al. 2019

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BackgroundObsessive-compulsive disorder (OCD) is a serious mental health problem that causes significant impairment and reduced quality of life. Though some substantially benefit from psychological therapies, a substantial proportion of people with OCD disengage from treatment or fail to benefit. Theoretical models such as the Common-Sense Model posit that our management of physical illness depends on our perceptions about the condition. Identifying how people with OCD perceive their condition could lead to important insight that would improve treatment of OCD.ObjectivesTo identify and characterise the illness perceptions of people with OCD.MethodTranscribed semi-structured interviews exploring the illness perceptions of 16 people with OCD were analysed using thematic analysis.ResultsIn some cases, identification of symptoms was hindered by a failure to interpret experiences as ‘symptoms’. Instead, these individuals interpreted symptoms as a personality quirk, or as evidence that they had become deviant. Perceptions of the condition as ‘part’ of the self contributed to views of OCD as permanent. Individuals were concerned about the impact of OCD on friends and family and attempted to minimise its consequences, for example by concealing symptoms from their children, who they feared could acquire OCD.ConclusionApplying a theoretical model of physical health understanding to OCD yielded novel insights, with important implications for support and treatment. To enable early help-seeking and rapid diagnosis, public and professional knowledge about OCD should be extended beyond ‘washing and checking’ to the less widely known OCD-subtypes, such as fear of causing harm. It may be important to identify and challenge views of OCD as permanent early in the course of treatment to maximise engagement. Management of OCD should also address the burden of living with OCD in a family context. Further research to test whether these perceptions lead to coping responses and outcomes in OCD is now needed.

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“…sexual or religious obsessions) or other “internal/cognitive” factors (e.g. reluctance to admit that there may be a problem), fear of criminalization and/or other stigma related factors, or just not knowing where to find help [4, 23]. Educational campaigns presenting OCD as an illness that can be cured and resources to improve access to mental health services could in the near future shorten the delay in seeking treatments.…”

Section: Discussionmentioning

confidence: 99%

Duration of untreated illness and response to SRI treatment in Obsessive-Compulsive Disorder

et al. 2019

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Background:The duration of untreated illness (DUI) is a potentially modifiable parameter associated with worst prognosis in several psychiatric disorders, but poorly investigated in Obsessive-Compulsive Disorder (OCD). Our aims were to estimate the mean DUI in a large sample of individuals with OCD and its impact on response to the first ever adequate SRI treatment.Methods:We retrospectively examined records of 251 patients with OCD (SCID-I, DSM-IV) who referred to our Department and were prospectively and naturalistically treated according to International Guidelines. The DUI was defined as the interval between age at onset and age at which patients received their first adequate pharmacological treatment. Response rates were compared in subjects with brief (≤24 months) versus long DUI. Logistic regression models predicting response and 12-week Y-BOCS score were run with DUI (among others) as independent variable.Results:The mean DUI was 106.19 ± 118.14 months, with a mean interval between onset of the disorder and when patients sought professional help of 82.27 ± 112.30 months. Response rates were significantly reduced in subjects with a long DUI, using both the cut-off of 24 months and the median value of 60 months. Regression analyses confirmed that a long (>24 months) DUI predicts poorer response and higher Y-BOCS scores at 12 weeks.Conclusions:Our results, although preliminary, seem to suggest that a longer duration of untreated illness in OCD is associated with poorer outcome in terms of response to SRI treatments. It is imperative to do all the possible to shorten the DUI, both by improving access to mental health services, improving the ability of primary care physicians and mental health professionals to recognize OCD, and disseminate best-practice prescription guidelines.

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Seeking help for obsessive compulsive disorder (OCD): a qualitative study of the enablers and barriers conducted by a researcher with personal experience of OCD

Cited by 20 publications

References 35 publications

Risk factors associated with experienced stigma among people diagnosed with mental ill-health: a cross-sectional study

Risk factors associated with experienced stigma among people diagnosed with mental ill-health: a cross-sectional study

Illness perceptions in people with obsessive-compulsive disorder; A qualitative study

Duration of untreated illness and response to SRI treatment in Obsessive-Compulsive Disorder

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