“Seizures have become a means of somehow learning things about myself” — A qualitative study of the development of self-efficacy and mastery during a psychotherapeutic intervention for people with epilepsy

Michaelis, Richard; Niedermann, Christina; Reuber, Markus; Kuthe, Martin; Berger, Bettina

doi:10.1016/j.yebeh.2018.04.019

Cited by 26 publications

(13 citation statements)

References 37 publications

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“…Qualitative research has also highlighted a number of common perceptions and experiences among patients with FND that contribute to the burden of illness and impaired quality of life (57)(58)(59)(60). Capturing the distress associated with these experiences may be important to accurately measure the benefit of appropriate treatment.…”

Section: Other Relevant Featuresmentioning

confidence: 99%

Outcome Measures for Functional Neurological Disorder: A Review of the Theoretical Complexities

Nicholson

Carson²,

Edwards

et al. 2020

JNP

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Section: Other Relevant Featuresmentioning

confidence: 99%

Outcome Measures for Functional Neurological Disorder: A Review of the Theoretical Complexities

Nicholson

Carson²,

Edwards

et al. 2020

JNP

Self Cite

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“…Finding meaning in the disease, dealing with it, and accepting forthcoming changes in the life of PWE are all influenced especially by one's own efforts. Michaelis and others came to similar conclusions by suggesting that the patients' development of self-efficacy was motivated by their personal initial goals and facilitated by the encouragement to find individual solutions [35].…”

Section: Discussionmentioning

confidence: 77%

Psychosocial Factors in the Experience of Epilepsy: A Qualitative Analysis of Narratives

Mlinar

Primec

Petek

2021

Behavioural Neurology

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Introduction. Epilepsy is a complex disease. The consequences of epilepsy are varied and manifested in all aspects of people with epilepsy’s (PWE) lives. The purpose of this study was to define individual experiences of epilepsy, expressed in narratives, and to find the stem of each narrative—a core event in the PWE’s experience of the disease around which they structure their overall narrative. Method. A qualitative, phenomenological research method was used. We conducted semistructured interviews with 22 PWE and analysed the content using a combination of inductive and deductive methods, based on which we determined the stem narratives. Results. The stem narrative of the epilepsy narrative is an important life experience of PWE. We divided the stem narratives into four groups: lifestyle changes, relationship changes, the consequences of the inciting incident, and the limitations of the disease. In our study, we found that the stem narrative was, in all but one case, a secondary (psychosocial) factor resulting from epilepsy, but not its symptom (epileptic seizure). The stem narrative, where aspects of life with epilepsy are exposed, points to a fundamental loss felt by PWE. Conclusion. The narrative of the experience of epilepsy has proven to be an important source of information about the disease and life of PWE and also about the aspects at the forefront of life with epilepsy. The secondary epilepsy factors that we identified in the stem narratives were the greatest burden for PWE in all cases but one.

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“…Seizure interruption should not necessarily be seen as an alternative treatment (unless patients insist that they do not wish to take medication) but as part of a comprehensive therapeutic approach. This might lead to an increased sense of control and self-efficacy in those able to apply these techniques successfully (Lohse et al, 2015;Michaelis et al, 2018). Prodromes: symptoms habitually preceding a seizure by more than a few minutes are called prodromes (Alving and Beniczky, 2013).…”

Section: Aura Phenomenon Probable Localization Of Epileptic Activitymentioning

confidence: 99%

The importance of semiological information based on epileptic seizure history

Wolf

Benbadis

Dimova

et al. 2020

Epileptic Disorders

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Semiology is the backbone of any correct categorization of seizures, as epileptic or not, focal or bilateral, and is fundamental to elucidating how they are anatomically generated in the brain. An anatomical hypothesis derived from seizure history is the precondition for optimally designed ancillary studies. Without understanding seizure semiology, no rational therapy is possible. This article describes the semiological approach using patient history based on full use of patients’ self‐reports as well as descriptions by witnesses. Auras represent the subjective aspects of seizures and provide important semiological clues as observable signs, sometimes including rather precise direct anatomical information. Methods of extracting, facilitating and analysing self‐reports including linguistic conversation analysis are presented in detail. It is highlighted that prodromes, seizure triggers and reflex epileptic mechanisms can provide crucial information for diagnostics and therapy. Special issues considering seizure semiology in children are discussed in a separate section. Other sections are dedicated to the two most important issues of differential diagnosis: how to distinguish (1) focal from “generalized” epilepsies, particularly when focal seizure phenomena appear in a bilateral epilepsy; and (2) epileptic from a series of non‐epileptic events.

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“Seizures have become a means of somehow learning things about myself” — A qualitative study of the development of self-efficacy and mastery during a psychotherapeutic intervention for people with epilepsy

Cited by 26 publications

References 37 publications

Outcome Measures for Functional Neurological Disorder: A Review of the Theoretical Complexities

Outcome Measures for Functional Neurological Disorder: A Review of the Theoretical Complexities

Psychosocial Factors in the Experience of Epilepsy: A Qualitative Analysis of Narratives

The importance of semiological information based on epileptic seizure history

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