Selecting a Measure of Health Related Quality of Life

Dempster, Martin; Donnelly, Michael

doi:10.1300/j010v32n01_04

Cited by 12 publications

(7 citation statements)

References 32 publications

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“…Various PROMs have been developed and validated in the CKD population and can typically be classified as a generic instrument or a CKD-specific instrument ( 92 , 127 – 130 ). Generic instruments are PROMs that measure various aspects of patients’ health status and can be administered across the general population or in any patient populations (see Table 1 ).…”

Section: Patient-reported Outcome Measuresmentioning

confidence: 99%

Patient-Reported Outcomes in Patients with Chronic Kidney Disease and Kidney Transplant—Part 1

et al. 2018

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Chronic kidney disease (CKD) is a complex medical condition that is associated with several comorbidities and requires comprehensive medical management. Given the chronic nature of the condition, its frequent association with psychosocial distress, and its very significant symptom burden, the subjective patient experience is key toward understanding the true impact of CKD on the patients’ life. Patient-reported outcome measures are important tools that can be used to support patient-centered care and patient engagement during the complex management of patients with CKD. The routine collection and use of patient-reported outcomes (PROs) in clinical practice may improve quality of care and outcomes, and may provide useful data to understand the disease from both an individual and a population perspective. Many tools used to measure PROs focus on assessing health-related quality of life, which is significantly impaired among patients with CKD. Health-related quality of life, in addition to being an important outcome itself, is associated with clinical outcomes such as health care use and mortality. In Part 1 of this review, we provide an overview of PROs and implications of their use in the context of CKD. In Part 2, we will review the selection of appropriate measures and the relevant domains of interest for patients with CKD.

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Section: Patient-reported Outcome Measuresmentioning

confidence: 99%

Patient-Reported Outcomes in Patients with Chronic Kidney Disease and Kidney Transplant—Part 1

et al. 2018

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“…Statistical analysis of quality-of-life (QoL) data is challenging due to the relatively large number of variables studied and the subjective factors that shape patients' experiences. 1,2 However, it remains important to develop a holistic view of how cancer affects patient populations by critically analyzing patients' perceptions of their cancer treatment. 3,4 Head and neck cancers (HNC) primarily arise in the nasal cavity/nasopharynx, oral cavity, pharynx, larynx, and neck.…”

Section: Introductionmentioning

confidence: 99%

Increased Pain Reporting by Head and Neck Cancer Patients at Radiation Oncology Consultation: A Quality‐of‐Life Analysis

et al. 2020

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Objectives Head and neck cancers (HNC) are associated with significant morbidity. Quality‐of‐life (QoL) analyses can assist with understanding subjective factors shaping the patient experience. Here, we assess for patient and/or tumor factors associated with increased pain reporting at the time of initial radiation oncology consultation at a single institution in 2015. Study Design Prospective cross‐sectional questionnaire research. Methods All new patient consultations in 2015 were offered the European Organization for Research and Treatment of Cancer Quality‐of‐Life Questionnaire Core‐30 (EORTC QLQ‐C30) survey. HNC patients were also offered the EORTC QLQ‐HN35 module. Retrospective chart review was performed on patients who completed the surveys. Patient demographics, tumor characteristics, and QoL responses were analyzed for potential associations. Statistical analyses were conducted using SAS v9.4 (SAS Institute, Cary, NC), with P < .05 considered significant. Results Of 771 new patient consultations, 137 consultations were for HNC patients. Of those, 62 patients completed both surveys. HNC patients reported greater pain relative to all other disease sites (odds ratio [OR]: 2.05; P < .01). On univariate analysis of the EORTC QLQ‐C30 data, increased pain was found to be associated with tumor size > 4 cm (OR: 3.05; P ≤ .05). The EORTC QLQ‐HN35 data revealed lymph node involvement to be independently associated with pain (OR: 3.12; P ≤ .05). On multivariate analysis, increased pain was associated with lack of pain medication prescription at the time of consultation (P ≤ .05) and age ≥ 65 years (P ≤ .05). Conclusion Patients with HNC reported significantly more pain at consultation than patients with other primary malignancies. Understanding factors contributing to subjective pain may allow providers to potentially address these symptoms proactively to improve patients’ QoL. Level of Evidence 2c – Outcomes research. Laryngoscope, 131:326–332, 2021

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“…However, it is unlikely that generic instruments would be sensitive to detecting change among a specific group of patients (Eurich, Johnson, Reid & Spertus, 2006;Owolabi, 2010). A more sensitive measure of HRQoL is provided by a condition-specific instrument -an instrument which has been designed to tap into those areas of life which may be affected by a specific condition (Dempster and Donnelly 2000).…”

Section: Introductionmentioning

confidence: 99%

Measuring Health-Related Quality of Life After Stroke: A Brief Tool

Russell¹,

Dempster²,

Donnelly³

2010

Applied Research Quality Life

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Routine assessment of health-related quality of life (HRQoL) can be time consuming and burdensome for a person with stroke. Therefore the aim of this study was to develop and test a brief instrument for assessing HRQoL among people with stroke. The Quality of Life after Stroke Scale (QLASS) was constructed from items within the Quality of Life Index-Stroke Version and the Chronic Respiratory Disease Questionnaire. It was administered to 92 people with stroke at 3 points in time: immediately after discharge from hospital, 6 months and 12 months later. Results suggest that the QLASS has 19 items which represent 3 factors: emotional functioning, mastery and fatigue which correlate with valid measures of health status and activities of daily living. The QLASS is proposed as a brief, valid HRQoL tool for use among people with stroke.

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Selecting a Measure of Health Related Quality of Life

Cited by 12 publications

References 32 publications

Patient-Reported Outcomes in Patients with Chronic Kidney Disease and Kidney Transplant—Part 1

Patient-Reported Outcomes in Patients with Chronic Kidney Disease and Kidney Transplant—Part 1

Increased Pain Reporting by Head and Neck Cancer Patients at Radiation Oncology Consultation: A Quality‐of‐Life Analysis

Measuring Health-Related Quality of Life After Stroke: A Brief Tool

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